Diagnosed with HSP7. Looking for stories and information.
Hi everyone, Got diagnosed with HSP7 last October 2024. I'm 41 years old. Recently married with 2 young kids. Living over in Ireland. Taking 5mg Baclofen three times a day. Anyone else in a similar situation? Don't really know what's in my future and would love to hear some stories/information.
Comments
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Hi and a very warm welcome to the community.
I have no idea what HSP7 is, sorry.
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Oh sorry, Hereditary Spastic Paraplegia 7 😂
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no worries.
Are you Irish yourself?
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I sure am! Just reaching out to see if anyone's in the same boat. Looking on Google just scares me 😂
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Hey there @Irishguy A big welcome to the community and an extra big congratulations on the recent marriage. 😁
I'm afraid I don't know a great deal about HSP7, but hopefully if I move your discussion, more people in the know will see and hopefully offer some top advice. I hope that's OK?
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You're the boss! 😂
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I'll be back in a minute, I'm just showing this to my boss. 😆
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