New here and scared

Holl
Holl Online Community Member Posts: 1 Listener

Hi everyone, I've sat here writing and deleting this line over and over again. 35, chronically ill and disabled, neurodiverse, isolated, lonely and terrified. I don't think I have ever felt this hopeless or desperate. It took over 2 years to have my PIP reviewed, for it to be taken away altoghter and then nearly a year long fight with mandatory reconsideration for them to award me what I should have been entitled to from the start. All for it now to be taken. My husband is my full time carer. I haven't even figured out how this will affect him. The area I live is is heavily tory and reform. I was bullied out of work and now too unwell to work, my privately rented home is unsuitable; it was a struggle trying to get any help or advice on these things before but now, it seems impossible. The hostility here is palpable. I don't even know where to start with any of it. I appreciate we are all in very similar boats right now so I apoligise for the word vomit. I'm glad to have found a safe space. Sending everyone love and strength

Comments

  • Sandy_123
    Sandy_123 Scope Member Posts: 63,033 Championing

    Morning @holl welcome to the forum, I'm glad you posted as it's lovely here for support and making friends.

    I'm glad you finally got your pip after much hassle and a long wait

  • judie
    judie Online Community Member Posts: 324 Empowering

    Good morning @holl. As Sandy_123 says it's good you took time to post. You're amongst people who totally understand how you are feeling and what you have been through. Welcome

  • Agnia
    Agnia Online Community Member Posts: 2,168 Connected

    Hi @Holl ,

    Thank you for writing here and Welcome to the Scope forum .

    im really truly sorry that you feel isolated and lonely, please i would like to wish you a nice morning and day today, and im sending you all my best wishes and warm thoughts and warm hugs.

    Please take care of yourself the best you can. ♥️

    Kind regards.

  • Mary_Scope
    Mary_Scope Posts: 1,446 Scope Online Community Children and Family Specialists

    Hi @holl and a warm welcome to the community.

    Thank you for felling us a little about yourself. I hope you find the community a safe and supportive space, we have lovely people on here!

  • luvpink
    luvpink Online Community Member Posts: 2,026 Championing
    edited March 28

    Hi welcome to the community Holl

  • Sofia123
    Sofia123 Online Community Member Posts: 23 Connected

    Aww, sorry you are having a hard time and got bullied. I sort of feel isolated from society too. I am caring for my mum full time (she suffers from severe schizophrenia) for the last few years ever since my dad passed from a brain hemorrhage, and it can be hard and isolating on us all as a family. She lost her friends/family due to her illness as she won't come out of the house due to her hallucinations. I am her primary source of strength but I too have my own mental health issues to deal with, so its been a difficult ride! Sending all my love to you, drop me a message anytime you fancy a chat x