Everyone in the Scope Community is very aware, of course of their limitations with their health condition(s)
I personally believe that with us only being able to write down what we want to express here, it can be a challenge to realize that the people you are friendly with and genuinely supportive of may be struggling with messaging back, as much as they want to do so, even though they are really looking forward to hearing from you.
This is not surprising, as around 80% of all communication between people is done by the observation of body language.
Writing to each other has great advantages, don't get me wrong but the other person who is messaging you will have little idea, despite the fact that that you really do want to hear from them, that you may be struggling with dealing with lengthy posts, with a lot of different subjects in them. This may also involve multiple posts of this kind from the same sender in a relatively short period of time.
In my case, with ME/CFS, anxiety and depression I'm at great risk of experiencing
Being overwhelmed
Being anxious
Having an increased lack of motivation
Being less able to do things that are vital to my basic functioning.
Having increased brain fog and lack of concentration.
Having an increase in already debilitating fatigue
Having an increase in already very reduced mobility
Having an even greater unawareness of my surroundings and what other people who are present say to me.
Having less time to spend having quality time with loved ones or enough time to deal with other things in life that are essential or are important to me.
Concern from loved ones that answering long, overly complicated messages is having a detrimental effect on my health condition and well being.
I'm sure that there is much you can relate to there from the increased problems I have with this situation, plus your own issues, due to your individual health conditions
I love being part of this community in every way. My favourite part of joining in here is being supportive of others, particularly when they are feeling down or struggling in some way and they say that I've been able to help them. This in turn does a great deal to uplift and support me in the same way.
This includes campaigning for change, particularly at the moment with the massive issue of proposals for huge welfare cuts.
Plus, just simply having a chat about things that are interesting to us or pleasantly passing the time of day with each other.
As you can see I have a tendency towards long posts but excessively long posts, containing many different subjects cause the above results, making me want to consider whether I want to be part of this community, where on the other hand, I know how deverstating it would be for me to leave it, on the other hand.
This would have a knock on effect on my regular involvement on the New Green Paper and the Get your MP to act against cuts Discussions where I know for a fact that others especially my great friend @noonebelieves would certainly miss my contribution to those conversations
What do you think about this?
Have you had this same situation with messages that others have sent to you?
Have you suffered in silence or ended your contact with someone who has quite unwittingly taken so much of your time and energy, that it has made you become upset and frustrated plus it has worsened your health condition, as you don't know how on earth you are going to tell them about what they are so innocently doing?
How has it made you feel?
My experience of this suggests that there must be others that have an issue with this and the problems it can cause, as I have come across it several times.
Would anyone be willing to speak up about this, for their sake and the sake of others who benefit from their support on this community, who are affected too?
Please do, if you can, as it's said a problem solved is a problem halved and with the lovely people on this community, I think that your input would be much appreciated and that you would not be disapproved of.
I believe that this may be a very valuable and much needed conversation.
Do you think I'm right?
My apologies as this post has had to be fairly long and involved lol to get the ball rolling, so to speak. Please aim to make your responses, not too long and to make them reasonably to the point or, of course, I'm afraid that I will struggle to deal with them!!
I look forward to hearing from you. 😊
