Parent of adult with spasticity quadriplegia and respiratory problems

Alister1
Alister1 Online Community Member Posts: 11 Listener
in Start here and say hello!

Hi,

I’m Mum to Alister who turned 28 last month. Alister lives at the nursing home within The Epilepsy Society in Chalfont St Peter and we only live 10 mins away so I am able to visit most days. Alister has respiratory problems as well as his CP and requires care 24 hours per day.
Would love to hear from anyone who may be in a similar position

Comments

  • Mary_Scope
    Mary_Scope Posts: 1,389 Scope Online Community Children and Family Specialists

    Hi @Alister1 and a warm welcome to the community!

    Thank you for telling us a bit about yourself and your son. It's lovely to have you here and I hope you enjoy your time on the community😀

    We do have a CP network here and I will tag them now @SaraC_Scope @Lucy_Scope @Richard_Scope who offer specialist information and support to people with CP as well as their families!

  • SaraC_Scope
    SaraC_Scope CP Network, Scope Posts: 249 Empowering

    Hi @Alister1

    Welcome to the community. I'm Sara and one of the CP Specialists within the CP Network team.

    I've heard great things about the Epilepsy Society's Chalfont Centre from my acquaintances in the epilepsy community. I also have CP and epilepsy.

    We have a wonderful cerebral palsy community within Scope. We host monthly Zoom meetings on the second Wednesday of each month, which you are welcome to join with Alister. It's a space to access resources, have conversations and connect with others. I've included the link here. CP Network

    There is a great Facebook page called Cerebral Palsy Adult Advice It's an informative place where you can ask questions, read through the posts and connect with those who have lived experience.

    I hope this information helps. If you have any further questions, please contact our team.

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