Anyone else with mastocytosis and able to offer some advice?

Stuart2412
Stuart2412 Community Member Posts: 20 Listener
edited June 2025 in Rare, invisible, & undiagnosed conditions

Hi all I am quite new my name is Stuart I was diagnosed with mpn I recently had a bone marrow biopsy my results I was told yesterday by the haemotologist I have mastocytosis which is a form of leukemia so not good they have ask for specialist advice from other hospitals so you can emagine my head is all over the place is anyone out there in my situation

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  • Stuart2412
    Stuart2412 Community Member Posts: 20 Listener

    Anyone got advise

  • Albus_Alumni
    Albus_Alumni Scope alumni Posts: 11,373 Championing

    Hi @Stuart2412 welcome!

    I'm so sorry to hear about your recent news. We're all here for support if you need us. ❤️

    Hopefuly another community member with experience will see this and offer some words of wisdom soon.

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