Hi, my name is ClaireS! I think I may have EDS, but can’t get the GP to take me seriously

Options
ClaireS
ClaireS Online Community Member Posts: 6 Listener

hi, I’m new to the forum so not sure what to say really, but im looking for some advice on something but not sure where to start really.
thanks

Comments

  • Holly_Scope
    Holly_Scope Posts: 3,144 Scope Online Community Coordinator

    Welcome to the community @ClaireS 😊 No problem, what would you like some advice with and we'll try and help as best we can.

  • ClaireS
    ClaireS Online Community Member Posts: 6 Listener

    I think I may have Ehlers danlos syndrome but can’t get the GP to take me seriously. I’ve raised it a few times now but both times it’s been dismissed.
    Not sure what to do really.

  • Holly_Scope
    Holly_Scope Posts: 3,144 Scope Online Community Coordinator

    Hi @ClaireS bless you, sorry to hear you've been dismissed. Is this all with the same Doctor? I'm just thinking it might be worth asking to run it past another at your Surgery. Is it that they've diagnosed you with something else, or completely dismissing this in it's entirety?

  • ClaireS
    ClaireS Online Community Member Posts: 6 Listener

    thanks for replying, sorry for the late reply.

    It’s been a few doctors now that I’ve mentioned it too, they just dismiss it tbh,

    It’s hard to diagnose EDS the doctor said to me.