Hi, my name is papaya!

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papaya
papaya Online Community Member Posts: 2 Listener

Hello. I have invisible disabilities, the worst of which currently is severe fatigue and brain fog from long covid. I'm housebound and looking to connect with others who might understand.

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  • mangoelderberry23
    mangoelderberry23 Scope Member Posts: 14 Connected

    Hi Papaya, I’m sorry to hear what you are experiencing. I do understand how physically challenging fatigue and brain fog can be. I find myself getting scared and anxious when the braun fog hits.
    i do have significant pain issues which are currently aggravated

  • Santosha12
    Santosha12 Online Community Member Posts: 1,866 Championing

    Good Morning @papaya, a very big welcome to you. I'm sorry you suffer from Long Covid, I also have Long Covid, am mostly housebound and have had 32 additional diagnoses over the last few years. I lost two nursing jobs because of my ill health and no longer work. I'm 62.

    If there is anything in particular that you're looking for help or support with please ask at any time. Do you have family or friends or the support of a LC clinic? I'm quite isolated really and have found this Community to be a huge help to me. I hope you do too over time. Anyway, you're very welcome and I hope it becomes a good source of support for you 🫂 🤗.

  • Charlie_Alumni
    Charlie_Alumni Scope alumni Posts: 264 Empowering

    It's great to have you with us @papaya, welcome to the forum!

    If you're happy to, we'd love to hear more about you and your hobbies or interests!

    Please feel free to jump right in and join any discussion you like, the coffee lounge is a great place to start for general chat and socialising.

    If you have any questions or please don't hesitate to ask. 😊

  • papaya
    papaya Online Community Member Posts: 2 Listener

    I understand what you mean about the feelings of fear and anxiety. Its hard isnt it?

  • mangoelderberry23
    mangoelderberry23 Scope Member Posts: 14 Connected

    @papaya yes it is very difficult

  • Mary_Scope
    Mary_Scope Posts: 2,161 Scope Online Community Children and Family Specialists

    A warm welcome to the community from me @papaya 😄

  • Holly_Scope
    Holly_Scope Posts: 3,299 Scope Online Community Coordinator

    Welcome @papaya ☺️ I hope you enjoy being part of our community.