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Hi, my name is KathyH63! Should I update PIP on my daughter's progress?

KathyH63

Hello,

My 24 year old autistic daughter claims PIP including mobility allowance due to her not being able to go round the corner shop or get on buses by herself due anxiety. In the summer, she had travel training and managed to go into town by herself. She has mild learning difficulties. We have since moved house and will need initial support again to manage travelling by bus on a new route. She has recently managed to go round the corner shop by herself once, under duress! She is able to use the microwave now, so does this mean she can make a meal for herself? I'm thinking of contacting DWP to report changes and am aware that she will be reassessed. I'm wondering if it's too soon yet to report the changes. We haven't attempted the new bus route yet but feel that with guidance, over time, she should be able to manage this. I'm worried that I haven't yet reported changes and don't want to get into trouble with DWP. Your thoughts and advice would be appreciated!

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Kimi87

For PIP if a claimant cannot do an activity, reliably, repeatedly, safely and in a timely manner for more than 51% of the time, they are treated as unable to do said activity.

You'd also need to consider things like if she actually needs prompting and/or supervising while using the microwave.

KathyH63

Thank you for taking the time to reply Kimi87. That's helpful. She probably would be able to use the microwave by herself for over 51% of the time now. As for the gas oven in our new house, that's a different matter! Kind Regards.

anisty

Her progress is great but you can safely hold off letting pip know - it won't alter her award.

@KathyH63 - i have a 27yr old son with autism and a borderline learning difficulty (iq of 85)

When we first applied for pip, he was already able to board a bus independently into town and also walk from the stop to his support group. And return back again no problem.

The only thing was it had taken a long time to learn to do this and he would only get one specific bus number (even though other buses go to town)

I put all this on the form and he got enhanced mobility. I thought it must be an error so sent off for the report. Turned out he was awarded as his support worker had said he'd really shut down and freeze if the bus broke down.

At that point, the bus never had broken down so i could not disagree with that and left things.

Fast forward 5 years, his award is now with ADP as we are in Scotland. Renewal time and my son has now shown that he copes well with bus breakdowns. He still uses just the one bus number but can cope with buses coming late etc.

I write all this detail on his form - again awarded enhanced mobility. Oh - and i even stated clearly that my son does NOT have overwhelming psychological distress when travelling alone.

I don't understand why he has enhanced but i am clear in my mind i have been very upfront about his ability to travel alone and that is the decision they made.

With cooking - my son can actually fry an egg, make packet supernoodles, make toast. He can use the gas hob to fry an egg and do the noodles. He cannot make a composite meal. He can make a cheese sandwich. He could not have 2 pans going at once - or toast and egg at the same time.

Again - put all this down and he gets enhanced daily living too.

I think they do know what they're looking for as my son is still pretty much the same as 5 yrs ago. His routine is exactly the same!

(Oh - he has learned to use the coffee machine in his supported employment and can do espresso, latte, capachino etc which i also told them)

Rest assured, your daughter's award will be correct.

KathyH63

Thank You Anisty. That's so helpful. I've been worried sick about not doing the right thing. It's a worry enough having an autistic adult child!

KathyH63

With regards to PIP assessment I do wonder if it depends on whose desk it lands on though!

anisty

https://forum.scope.org.uk/discussion/comment/1080005#Comment_1080005

I think you're right!

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