If some treatment ends but needs don't change.
My daughter has autism and a learning disability and needs heavy social support.
At first application there was just me as her carer providing that support. She got 4 points in the mixing with others section.
She needs someone with her to attend all medical appointments and events or activities and the first time she meets anyone. She cannot make phone calls herself etc. If she HAS to go alone I still have to make the journey with her and wait nearby and she needs heavy role play and scripting. She is in supported work currently in an autism charity a couple of hours a week.
At PIP renewal she had started Open Uni and has remote support from an autism organisation for mental health and social support via remote zoom who help her with social scripts and encouragement alongside me.
She still got the four points for mixing with others.
The funding for this will end when she finishes uni but her needs won't have changed and she will still need her carer to access everything. The autism organisation has suggested after her DSA funding ends that she should apply for access to work help so that that continues but I am aware that this is taking months.
Am I meant to tell them that the treatment from the outside agency has ended when it does because it says to contact if there is a change in needs and there isn't.
