Parents, carers and disabled parents
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

Any one out there using Sinemet?

FoxyFoxy Member Posts: 1
We saw a doctor yesterday who would like my son to use Sinemet to try and help distonia. Anyone using this medication? My son Charlie is 6.


  • gemgems79gemgems79 Member Posts: 3
    hi my little boy has just started on levodopa i think this mayby the same is siminet given for dopa responsive dystonia sorry if i have confused the drugs if they are the same would love to chat gemmax
  • gemgems79gemgems79 Member Posts: 3
    hi its me again yes its simenet that my 2 year old has just started so would love to chat x
  • tontorhystontorhys Member Posts: 1
    hi,my son has been useing this medicine for the last 2 years,& ive got to say its the best decision i done was put him on it,because of the side effects.but to this day my son has'nt had any of them,it has helped a great deal.
  • emilymillyemilymilly Member Posts: 1
    Hi again,as the Sinemet was not preventing the distonia we have stopped using it. Charlie has a fear of high ceilings especially when he is laid on his back. We try our best now not to expose him to this fear.

    Sorry I am not much help!
Sign in or join us to comment.