Any one out there using Sinemet?
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Foxy
Online Community Member Posts: 1 Listener
We saw a doctor yesterday who would like my son to use Sinemet to try and help distonia. Anyone using this medication? My son Charlie is 6.
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Comments
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hi my little boy has just started on levodopa i think this mayby the same is siminet given for dopa responsive dystonia sorry if i have confused the drugs if they are the same would love to chat gemmax0
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hi its me again yes its simenet that my 2 year old has just started so would love to chat x0
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hi,my son has been useing this medicine for the last 2 years,& ive got to say its the best decision i done was put him on it,because of the side effects.but to this day my son has'nt had any of them,it has helped a great deal.0
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Hi again,as the Sinemet was not preventing the distonia we have stopped using it. Charlie has a fear of high ceilings especially when he is laid on his back. We try our best now not to expose him to this fear.
Sorry I am not much help!0
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