Any one out there using Sinemet?

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Foxy
Foxy Community member Posts: 1 Listener
edited June 2014 in Families and carers
We saw a doctor yesterday who would like my son to use Sinemet to try and help distonia. Anyone using this medication? My son Charlie is 6.

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  • gemgems79
    gemgems79 Community member Posts: 3 Listener
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    hi my little boy has just started on levodopa i think this mayby the same is siminet given for dopa responsive dystonia sorry if i have confused the drugs if they are the same would love to chat gemmax
  • gemgems79
    gemgems79 Community member Posts: 3 Listener
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    hi its me again yes its simenet that my 2 year old has just started so would love to chat x
  • tontorhys
    tontorhys Community member Posts: 1 Listener
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    hi,my son has been useing this medicine for the last 2 years,& ive got to say its the best decision i done was put him on it,because of the side effects.but to this day my son has'nt had any of them,it has helped a great deal.
  • emilymilly
    emilymilly Community member Posts: 1 Listener
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    Hi again,as the Sinemet was not preventing the distonia we have stopped using it. Charlie has a fear of high ceilings especially when he is laid on his back. We try our best now not to expose him to this fear.

    Sorry I am not much help!