Any one out there using Sinemet?

Foxy

We saw a doctor yesterday who would like my son to use Sinemet to try and help distonia. Anyone using this medication? My son Charlie is 6.

gemgems79

hi my little boy has just started on levodopa i think this mayby the same is siminet given for dopa responsive dystonia sorry if i have confused the drugs if they are the same would love to chat gemmax

gemgems79

hi its me again yes its simenet that my 2 year old has just started so would love to chat x

tontorhys

hi,my son has been useing this medicine for the last 2 years,& ive got to say its the best decision i done was put him on it,because of the side effects.but to this day my son has'nt had any of them,it has helped a great deal.

emilymilly

Hi again,as the Sinemet was not preventing the distonia we have stopped using it. Charlie has a fear of high ceilings especially when he is laid on his back. We try our best now not to expose him to this fear.

Sorry I am not much help!