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Hi new here
lisapb72
Member Posts: 1 Listener
Hi everyone,
I am a mum of 3 beautiful children, the oldest and youngest like myself have hEDS (which I didn't find out until I was 8 months pregnant with my third child), I also have fibromyalgia, our middle child doesn't have this but he copes with dyslexia. Our oldest has hEDS, scoliosis, lordosis, rare skin condition, eczema and ibs, she is 15 years old. Our youngest apart from hEDS has lordosis , propriception, the rare skin condition and we've just found out he's got a cyst in his spinal cord called a syrinx, we are waiting for a neuro surgeon to see him at Birmingham Children's hospital. As you can see we have quiet a lot to cope with. I spoke to someone at Scope today and now we are here to be supported and also to support you too.
Thank you for reading my essay.
I am a mum of 3 beautiful children, the oldest and youngest like myself have hEDS (which I didn't find out until I was 8 months pregnant with my third child), I also have fibromyalgia, our middle child doesn't have this but he copes with dyslexia. Our oldest has hEDS, scoliosis, lordosis, rare skin condition, eczema and ibs, she is 15 years old. Our youngest apart from hEDS has lordosis , propriception, the rare skin condition and we've just found out he's got a cyst in his spinal cord called a syrinx, we are waiting for a neuro surgeon to see him at Birmingham Children's hospital. As you can see we have quiet a lot to cope with. I spoke to someone at Scope today and now we are here to be supported and also to support you too.
Thank you for reading my essay.
Replies
Hi @lisapb72
Welcome to the community
Best wishes
Jean
Jean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist
A very very big welcome to you this evening.
I'm very sorry to hear about your ongoing situation.
How are things at the hospital currently ???
Please let me know if there is any help/support that I can offer you ????
Many thanks.
Thank you for introducing us to yourself and your family, it's lovely to meet you. It sounds like you have your hands full to say the least, especially as you have your own struggles - just let us know if there's anything we can support you with. In the meantime, feel free to have a chat to any of our friendly community members; you may be particularly interested in our disabled parents group.