Hi new here

lisapb72
lisapb72 Community member Posts: 1 Listener
edited November 2017 in Everyday life
Hi everyone,

I am a mum of 3 beautiful children, the oldest and youngest like myself have hEDS (which I didn't find out until I was 8 months pregnant with my third child), I also have fibromyalgia, our middle child doesn't have this but he copes with dyslexia. Our oldest has hEDS, scoliosis, lordosis, rare skin condition, eczema and ibs, she is 15 years old. Our youngest apart from hEDS has lordosis , propriception, the rare skin condition and we've just found out he's got a cyst in his spinal cord called a syrinx, we are waiting for a neuro surgeon to see him at Birmingham Children's  hospital. As you can see we have quiet a lot to cope with. I spoke to someone at Scope today and now we are here to be supported and also to support you too.

Thank you for reading my essay.

Comments

  • Jean_OT
    Jean_OT Community member Posts: 511 Empowering

    Hi @lisapb72

    Welcome to the community

    Best wishes

    Jean

  • steve51
    steve51 Community member Posts: 7,122 Championing
    Hi @lisapb72

    A very very big welcome to you this evening.

    I'm very sorry to hear about your ongoing situation.

    How are things at the hospital currently ???

    Please let me know if there is any help/support that I can offer you ????
     
    Many thanks.

  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,765 Championing
    Hi @lisapb72, and welcome to the community!

    Thank you for introducing us to yourself and your family, it's lovely to meet you. It sounds like you have your hands full to say the least, especially as you have your own struggles - just let us know if there's anything we can support you with. In the meantime, feel free to have a chat to any of our friendly community members; you may be particularly interested in our disabled parents group.