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Hi, my name is Freddie!

FreddieFreddie Member Posts: 4 Listener
 I am my husband's carer he is terminally ill with motor neurons disease I have been his care for 9 years .In this time I have gone into debt just trying to keep house and kids going I have had no respite as my husband refuses it and not a lot of help .I have saved the government millions by keeping my husband at home and also sacrificed my life and well being .I am now at my wits end and had enough .

Replies

  • CockneyRebelCockneyRebel Member Posts: 5,257 Disability Gamechanger
    Hello Freddie and welcome

     I am so sorry that you are in this position
    Is there anything we can do to help ?
    Sometime a rant can help and we are here to listen if you want

    CR
    Be all you can be, make  every day count. Namaste
  • Pippa_AlumniPippa_Alumni Scope alumni Posts: 5,851 Disability Gamechanger
    Hi @Freddie and welcome to the community, although I'm sorry it's under such circumstances. As CR says, we're all here to listen and support you where you can: just let us know what we can help you with. I hope today is as kind as possible to you and your husband. 
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Freddie

    Welcome to our online community/website.

    It’s great to meet you & your husband.

    Please please let me know if I can be off help/support in anyway???????


  • FreddieFreddie Member Posts: 4 Listener
    edited December 2017
    I would like to take th the government to court for leaving me in this situation when I have saved them millions keeping him at home and giving my life up and kids lives up .I don't think it's fair I have no rights .
  • AlexAlex Scope Posts: 1,324 Pioneering
    Hi @Freddie,

    Do you get any support? e.g. from the local authority or through benefits?

    You do have rights. The top two links on the Carers UK site outlines the practical and financial support you might be able to get. Sorry in advance if you've already tried these routes to get support. 
  • FreddieFreddie Member Posts: 4 Listener
    We get benefits and carers come in for one hour a day to wash him .and I have no rights everything that happens is up to my husband I don't have a say in anything.I have just been left to get on with it.me and my children have had to give up our lives and the government has saved millions because he wants to stay at home where is my choice in this as I said my children and I have no rights.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Freddie

    I’m so so sorry “truly”

    I really really feel your “pain”

    Even though I have got my own “pain 24/7” 

    Please please let me know if I can help you in anyway????

  • FreddieFreddie Member Posts: 4 Listener
    Thank you I am seriously thinking about leaving him and putting my kids first.
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Freddie

    Please please let me know if there’s anything that I can help you with ???

    “Anything”
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