Does anyone here have dystonia oromandibular?

angel56

dystonia oromandibular.Does anyone else have this disability..?thanks/

Sam_Alumni

Hi @angel56

Welcome to the community, sorry you havent had more of a response about this.  Can you tell us a bit more about it?

There is some info here on the Dystonia Society website.

Pippa_Alumni

Hi @angel56, how are you doing?

angel56

Hello pippa thanks for asking ive been really ill of late but am having loads of tests done to check stuff out.bye carollx

Pippa_Alumni

Sorry to hear you've not been well @angel56, and wishing you all the best for your upcoming tests. Do let us know how you get on and if we can be of any assistance!

JennysDad

Hi @angel56
I know the last post here is from January, but I'm hoping you're still in touch so that I can ask if you have contacted the Dystonia Society, at https://www.dystonia.org.uk. Among other things, they too seem to have an online community.
Warmest best wishes to you,
Richard

lindadenise

Hi the Dystonia Society are really helpful they have been excellent with me i suffer from Cervical Dystonia. I have spoken to them and they are doing a letter for me to send to DWP for my MR.