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Hi, my name is sandi43!

sandi43sandi43 Member Posts: 1 Listener
Hi I'm Sandi 43 I have genetic condition which limits my getting around its called melas no medication it's through the muscles in my body my brother died from it a year and a half ago it's pain in my lower back too I know it causes muscle weakness too


  • Richard_ScopeRichard_Scope Posts: 2,733

    Scope community team

    Hi @sandi43

    Welcome to Scope's community! It's great to have you here.  Just to get you started we have a How To Guide here, you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!  
    If you need anything, just let us know. 

    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @sandi43   Pleased to meet you welcome.

    Thank you for sharing sorry to hear about your brother.

    We are a supportive community care and share.

    May I add have a look at our information on Specific Conditions. Lots of information, support from community members.

    Ask the community anything.

    Please take care

    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,469 Disability Gamechanger
    Hi @sandi43


    We all would like to offer support and a hand of friendship :)

    Ami :)
    Disability Gamechanger - 2019
  • GavelGavel Member Posts: 15 Connected
    Very friendly and useful site. Lots of advice and encouragement here. Welcome.
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