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Hi, my name is sandi43!

sandi43sandi43 Member Posts: 1 Listener
Hi I'm Sandi 43 I have genetic condition which limits my getting around its called melas no medication it's through the muscles in my body my brother died from it a year and a half ago it's pain in my lower back too I know it causes muscle weakness too

Replies

  • Richard_ScopeRichard_Scope Posts: 2,733

    Scope community team

    Hi @sandi43

    Welcome to Scope's community! It's great to have you here.  Just to get you started we have a How To Guide here, you can see all the latest posts here, jump in and get involved and don't worry we are a friendly bunch!  
    If you need anything, just let us know. 


    Scope
    Specialist Information Officer - Cerebral Palsy

    Want to tell us about your experience on the community? Talk to our chatbot and let us know. 
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @sandi43   Pleased to meet you welcome.

    Thank you for sharing sorry to hear about your brother.

    We are a supportive community care and share.

    May I add have a look at our information on Specific Conditions. Lots of information, support from community members.

    Ask the community anything.

    Please take care

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Ami2301Ami2301 Community Co-Production Group Posts: 7,469 Disability Gamechanger
    Hi @sandi43

    Welcome! 

    We all would like to offer support and a hand of friendship :)

    Ami :)
    Disability Gamechanger - 2019
  • GavelGavel Member Posts: 15 Connected
    Very friendly and useful site. Lots of advice and encouragement here. Welcome.
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