Anybody suffers from Polymialgia Rheumatica?

sunbeam

Anybody suffers from Polymialgia Rheumatica?Any advice appreciated

Chloe_Alumni

Hi @sunbeam and a very warm welcome to the community! I will love your discussion in the hope of others being able to advise. In the meantime why not look around the community and get involved with anything that interests you Please do let me know if there is anything that I can do!

Pippa_Alumni

Hi @sunbeam, and welcome- great username!

You appear to be the first person to discuss Polymialgia Rheumatica on the community so far- would you perhaps like to tell us some more about your own experiences?

sunbeam

Stat the moment I am not suffering too much as I am on medication. I was wondering if anyone had any experience of this complaint?

axwy62

I don't have PR and never did, though it is one of the completely wrong diagnoses I've been given in the past, so I have done a bit of research. From what I remember speaking to another lady at the clinic who had it, once the meds kicked in she was a lot better and was managing well, but she had to keep taking them for a very long time.

dougal1

Hi sunbeam, 
Welcome ,I've suffered from polymyalga for a number of years, was on high dose of steroids and pain killer's it's in remission at mo, although I wake up with really sore shoulders, hope that help x