Hi, my name is maggi007!

maggi007
maggi007 Community Member Posts: 5 Listener
in Start here and say hello!
Thank you for including me

Comments

  • Ami2301
    Ami2301 Community Member Posts: 7,877 Championing
    Hi @maggi007
    Welcome to the community! Would you mind telling us a bit about yourself? :)
  • maggi007
    maggi007 Community Member Posts: 5 Listener
    I am 56 with grown up children my husband is my main carer as I am classed as disabled with the effects of large dose of steroids I take for gca
  • Ami2301
    Ami2301 Community Member Posts: 7,877 Championing
    Could you say what GCA stands for as I'm not sure what it is please :)
  • maggi007
    maggi007 Community Member Posts: 5 Listener
    giant cell arthritis.  it is not common but can lead to blindness and need high dose of steroids to keep it in check. It starts with severe headaches. 
  • maggi007
    maggi007 Community Member Posts: 5 Listener
    The side effects of steroids and reducing them has left me with fibromyalga and diabetes.and will continue using steroids until gca in remission. In nearly two yrs have been in remission for five weeks. 
  • Ami2301
    Ami2301 Community Member Posts: 7,877 Championing
    I haven't come across another member with GCA before, thank you for explaining to me. If there is anything at all that we can do to help then please let us know! :)
  • Pippa_Alumni
    Pippa_Alumni Scope alumni Posts: 5,761 Championing
    Hi @maggi007, and a warm welcome to the community!
  • maggi007
    maggi007 Community Member Posts: 5 Listener
    Thank you 

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