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Hi, I am new here

Hi, my name is Sam. I am 21 and have a condition called hypophosphatemic rickets. It has affected since birth and affects me in many ways. I am currently recovering from a operation i had around 2 months. A external frame was fitted on my lower right leg, and that it will be on for around 6 months. Thank you. Feel free to ask questions
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How have you been coping since your operation?
Disability Gamechanger - 2019
Disability Gamechanger - 2019
Disability Gamechanger - 2019
Disability Gamechanger - 2019
Disability Gamechanger - 2019
We want to help you anyway we can
Disability Gamechanger - 2019
Thanks for sharing this with us, and glad to see you've had a chat with Ami. At the very least, I hope it helps being among others who understand. If we can be of any assistance, do let us know.
I am just frustrated, ive always tried to cover my condition up any way possible. Pretending that i dont have it. Ive never had people which know what its like to not be considered "normal"
I am 21 and all i want to be doing is living the life i want to live. Its almost like i cant accept what i have and whats happened to me
If you ever want to have a rant or a chat, I'm always here
Disability Gamechanger - 2019
I hope I can be supportive and be there to help with any words I can offer
Ready always to listen.
I was born with a genetic condition effecting hands and feet. From young age constant torment of having operations required to correct the defects and disability.
After while you suddenly get into this sinking feeling been emotive after all . You want a normal life. I reckon spent nearly half in my lifetime in hospitals for one thing or another.
I am in my early fifties I stopped having any more around my early twenties. Even though advised to continue.
Recently been aware of getting older but realise how time is so short.
I do think it is this helping or hindering feelings the most I can get from my own experiences. What again but add to that the just try to cope with what I have now.
Had numerous counselling and therapy to understand myself more.
Have addiction history all because of it. The mental state I have because of that all integrated to my time in hospitals.
Add to that not helping my families chagrin and demeanour to all of this. Believed contributed to my mental state.
Somethings not right when you leave a child in hospital and forget about that your in hospital. Even went on holiday .
I would and do advise the need to talk about what you have been going through. You are not alone.
I use this forum to help others but help myself and try to learn if I can be beneficial to my well being.
Give and support those like yourself if we can as a community understand.
One point I would add is to speak to some one regarding your mental health.
Many charities I look for on line have a number of clientele with disabilities. Acceptance is never easy part of having a disability but the ones I got in touch with all helped me be more understanding of my own fragility.
What they very much can offer is support for your mental health and sign post you regarding your disability.
Have the information and advice . Can help with benefits and all around that. Any thing else you might need.
Pleasure to meet you.
Take care
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
Disability Gamechanger - 2019
Disability Gamechanger - 2019
All we can as community is to be here to give much support. Offer guidance and information. If I can .
I know and my friend @Ami2301 are happy to listen to you anytime you want.
I know this is difficult and not easy. Acceptance is ever one of the hardest things I have to admit in my life.
Yet I know inside want peace and solace. I added my story because not for attention but for sharing and caring as I do about all our members.
Say it is OK for you have these emotions and feelings.
Always here anytime you wish to.
Pleasure to meet you.
@thespiceman
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes
Disability Gamechanger - 2019