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murff
murff Member Posts: 6 Connected
Hello im new here,  so please bear with me,  i have posted a question but not sure if iv done it correctly or put it in the right place,  :blush:

Comments

  • thespiceman
    thespiceman Member Posts: 6,389 Disability Gamechanger
    Hello @murff I am one of the team of community champions on the site.  Who offers guidance and support, advice and information to new members.

    Have just sent you a reply to your post.  You have done this right please do not worry.

    To find you self around the site. Please have look at 
    Community Guide  Also Community House Rules.

    Hope that helps.

    Please ask if you have any problems please ask any one in the community. 

    For contacting the helpline for information you might need regarding your disability or illness.  Also ask the community as well.

    808 800 3333.

    Please take care.


    @thespiceman


    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
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  • Ami2301
    Ami2301 Community Co-Production Group Posts: 7,946 Disability Gamechanger
    Hi @murff welcome to the community! :)
    Disability Gamechanger - 2019
  • steve51
    steve51 Member Posts: 7,154 Disability Gamechanger
    Hi @murff

    “Welcome”

    I’m on off the “Community Champions” 

    Can you please let me know what the original question was???

    I will do my upmost in assisting you further!!!


  • tamidavis
    tamidavis Member Posts: 14 Connected
    Hi @murff
    Welcome to Scope, I hope you find it helpful :smiley:
  • murff
    murff Member Posts: 6 Connected
    steve51 said:
    Hi @murff

    “Welcome”

    I’m on off the “Community Champions” 

    Can you please let me know what the original question was???

    I will do my upmost in assisting you further!!!



  • murff
    murff Member Posts: 6 Connected
    have been ill for some time, coping and trying to carry on with emphysema,  i have 20% lung capacity and have been told i have end stage emphysema COPD,  i am on oxygen 16 hours a day and have to use a mobile oxygen for when i walk at work, i was off sick last year for 7 months, i tried to claim contributory ESA but told there was no such thing anymore as i lived in a universal credit area , so i appied for that and after being told i was not entitled to benefits because my partner earns 'too' much i felt forced back to work i have been back now for 8 months and im getting vibes from my employer about my role as to whether i can continue and have a meeting with HR next week,  i get PIP,  and the higher aspect of mobility,  but i feel that if work finished me i would be struggling my partner does earn above average but we still have bills like everyone else , i have paid into the system since i have been 15/16 years old, when i actually went for  a meeting at the job centre the interviewer made me feel like i was trying to claim somthing i was not entitled to,  when i went for a lung function test the consultant asked me if i worked, (as i was in my uniform,  i am a nurse assistant), and i said yes  she told me i must be 'clearly mad in the head' my respiratory nurses also are   shocked that i work, but as i said iv been told that i am not entitled to anything ive worked all my life , for what, nothing only to be struggling on, and a miserable life, can someone help me and explain to me why i am not entitled to anything,   thanks in advance x

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