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Irlen syndrome
hannahmiller23
Community member Posts: 10 Connected
I have condition called Irlen syndrome and I am ambassador for my condition. I like raising awareness for my condition and feel more needs to be done as in schools many children are going undiagnosed do I feel every school needs a Irlen screener, as I didn’t get diagnosed to I got to college
Comments
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Hi @hannahmiller23, and a warm welcome to the community!
Great to hear that you're campaigning for positive change, would you like to tell us some more about Irlen syndrome? -
a perceptual processing disorder. It is not an optical problem. It is a problem with the brain's ability to process visual information.
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Hi @hannahmiller23 welcome to the community! Do you know what can cause this?Disability Gamechanger - 2019
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caused by a defect in one of the visual pathways that carries messages from the eye to the brain. This defect causes a timing fault in processing visual information.
Symptoms of irlen are light sensitivity, reading problems, headaches, migraines, other physical symptoms. Check out irlen.com -
Jennifer14Owen Please don’t comment on my post,
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Please be respectful to all members, the community should be a supportive place for everyone. How have you been over the recent months @hannahmiller23Disability Gamechanger - 2019
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Ami2301 Yes It should be, feel am being pick on.
Being busy with certain awareness I being doing, not long done Irlen talk to job club I go to -
I apologise, how is the job club going?Disability Gamechanger - 2019
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She done it to me before.
yes it’s going great, my second time doing the course
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If this has been ongoing, I would advise you to contact the Scope team at community@scope.org.uk if you have not done so already. It's great to hear you are enjoying the courseDisability Gamechanger - 2019
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Yes ongoing for while now, she trying to spoil things
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I have reported the member's comment so the Scope team will be aware and will monitor any further commentsDisability Gamechanger - 2019
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Thank you
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Hi Hannah,, thank you for sharing and raising awareness. I read into the condition as my son (diagnosis of autism and anxiety was struggling with the light and complaining of all daylight hurting his eyes. He now wears sunglasses. There isn't an NHS test for this though is there?
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Kirtyd
Unfortunately no test on NHS, The testing is carried out by certified Irlen Screeners or by Irlen Diagnosticians.check out Irlen.com. You find your local centre. Could I ask you where do you live.
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Hi @Jennifer14Owen Just to let you know that I’ve removed your comment from this discussion.
We want the community to be a safe and supportive place. If you have any questions or concerns please email us community@scope.org.uk
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Have a look at
"Colors, colored overlays, and reading skills"
https://www.frontiersin.org/articles/10.3389/fpsyg.2014.00833/full
and may be "Scotopic sensitivity and color vision with a blue-light-absorbing intraocular lens"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1913934/
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Hello Hannah, so good to hear that you are speaking up for Irlens Syndrome. My role is in the field of eyes and we often come across patients with such symptoms in the hospital and can see how distressing it is for them. I just wanted to add how important it is to get an eye test done as well at the Optometrists. This would rule out any problems with the eye muscles and vision, which are best treated. They may then refer you into the hospital but this depends on the Optometrists.
Overlays can help with the light sensitivity and movement of words but not necessarily with the muscles and vision.
Community Volunteer Adviser with professional knowledge of Sensory Visual Impairment, Specific Learning Difficulties with Vision, Neurological conditions and dyslexia.Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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