Find out how to let us know if you're concerned about another member's safety.
Chronic Pain Group Lifeline removed

Daniel
Member Posts: 21 Connected
Suffering from osteoarthritis and recently being diagnosed with fibromyalgia, on the whole my conditions can only be 'managed' not toatlly cured. We attended an excellent 'chronic pain group' amongst other people with similar problems. The help and advice received through attending this group at the local hospital has been a lifeline to the people who attend. We have learnt so much medically, helping us to understand the reasons why we feel the way we do. Also talking to others with similar conditions encourages patients and provides excellent advice etc. The powers that be have decided to close this group, (actually 4 of them), leaving us without help and lost without this vital support. We are simply in 'limbo' so to speak and feel totally let down by the very people who are there to help us! The CCG has not contacted the patients and I genuinely believe this is simply a 'money saving act'. Attending such groups alliviates the need to take as much toxic medication, where the talking is much more affective than suffering from the toxic side effects!
Comments
-
Hi Daniel, I run Northamptonshire chronic pain group, I have chronic pain myself and because there was nothing in my area I now hold my own meetins in local cafes. I fully understand what you r going through. Anyone is welcome at my meetings but as I said they are held in Northants, Where are you?
Lou
Northants chronic pain support
www.ncpsuk.com
-
Thank you so much for answering, it is so kind of you. I live in Northumberland and the professional who ran the groups was from Scotland. England no longer fund this but he continues to run groups in Scotland.
Good luck with your group meetings wish I lived closer.
-
oh Daniel this breaks my heart! I wish I could support EVERYONE with chronic pain as it is such a lonely experience, but sadly I can't, I wish you all the best.
Lou
Northants chronic pain support
www.ncpsuk.com
-
Thank you again and all the best, Just telephoned the NHS and they are "still in discussions" ! Don't know what they are finding to discuss? It is either a closure or not? Pity we the patients are not involved. XX
Brightness
Categories
- 53K All Categories
- 10.4K Start here and say hello!
- 4.8K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities to get involved in
- 149 Community updates
- 12K Talk about your situation
- 1.7K Children, parents, and families
- 756 Work and employment
- 576 Education
- 1.1K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 277 Dating, sex, and relationships
- 264 Exercise and accessible facilities
- 21.2K Talk about money
- 2.1K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.3K PIP, DLA, and AA
- 2.4K Universal Credit (UC)
- 4K Talk about your impairment
- 1.3K Cerebral palsy
- 675 Chronic pain and pain management
- 700 Rare, invisible, and undiagnosed conditions
- 751 Autism and neurodiversity
- 928 Mental health and wellbeing
- 298 Sensory impairments
Complete our feedback form and tell us how we can make the community better.