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Talk about mental health issues that people have with brain injury

ArNoLdChIaRiSuFfErEr

After having had brain surgery it has left me in a lot of pain and with depression. It would be good to talk to someone with these sort of issues so that we can offer support to each other.

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Comments

Ami2301

Hi @ArNoLdChIaRiSuFfErEr welcome to the community! I am sure members of our community will be happy to offer support and someone will always be here if you need to talk about anything

steve51

Hi @ArNoLdChIaRiSuFfErEr

Good morning it’s great to meet you today ???

I am one of the Community Champion’s on here.

Yes I have also had a “Brain Injury”

I have also got “Chronic Pain” myself for my “sins”

Please please let me let me know if there’s anything that I can help you with??

@steve51

ArNoLdChIaRiSuFfErEr

Thankyou for replying to me. Out of all my friends and family I am the only one with Brain Injury and I would like someone to talk to who will understand so that I won’t feel alone at times.

ArNoLdChIaRiSuFfErEr

Ami2301 said:

Hi @ArNoLdChIaRiSuFfErEr welcome to the community! I am sure members of our community will be happy to offer support and someone will always be here if you need to talk about anything

Thankyou for replying. I think this website is a very good idea for people with disabilities to offer support to each other.

steve51

Hi @ArNoLdChIaRiSuFfErEr

Yes we do become the only one’s in our “family’s & friends” who have had a B/I.

They all don’t really understand as we become “The Hidden Disables”

Please let me know if you need any help/support???

@steve51

ArNoLdChIaRiSuFfErEr

Thankyou @steve51. Because you look ok people think you are ok. I like doing lots of puzzles and games on my iPad because it makes me think. How do you cope with B/I ? Have you had it for a long time?
@ ArNoLdChIaRiSuFfErEr

Ami2301

What's your favourite game to play on your iPad @ArNoLdChIaRiSuFfErEr?

steve51

Hi@ArNoLdChIaRiSuFfErEr

Yes I had my Stroke in 1998 at the age off 32.

Things have snowballed ever since.

I take each day as it comes as one day I feel great and the next 3 are awful.

@steve51

ArNoLdChIaRiSuFfErEr

@Ami2301
I like playing Word and Colouring by Numbers. Do you like playing games?

Ami2301

I do, I did try colouring by numbers but I got bored Haha! I like tetris style games

ArNoLdChIaRiSuFfErEr

Hi @steve51

How are you?

Sorry to hear about your stroke.

I have had had brain surgery due to a condition called Arnold Chiari. It is where the brain is too big for the skull which causes lots of neurological problems including chronic head pains every time I coughed, laughed or sneezed. The surgeon had to remove the cerebellum tonsils which has relieved the head pains but have made the other symptoms worse.

I often laugh at myself which helps. Like you I take each day at a time and try to listen to my body otherwise I have two or three bad days.

ArNoLdChIaRiSuFfErEr

Hi @ Ami230

How are you today?

We have just got back home after having dinner at our local nurseries. Am just chilling in the conservatory. My husband is a happy bunny because his favourite football team has won Everton has won 1-0 to Arsenal.
Hope you’re having a good day.

Ami2301

I am good thank you @ArNoLdChIaRiSuFfErEr how are you? It sounds like you've had a nice day!

ArNoLdChIaRiSuFfErEr

Yes I have thanks and it will get better because we will have our grandson staying with us tomorrow till Wednesday for the Easter Holidays. He is our little ray of sunshine @ Ami2301. Have you been on this website page for long?

Ami2301

Oh bless! I'm sure you all will have a lovely time

I have been a member of the community since February 2018 but had to take 3-4 months out as I was very poorly but I am in much better health now and I love being here so much!

steve51

Hi @ArNoLdChIaRiSuFfErEr

I’m not to bad today thanks.

How are you doing?????

Wow I had the Stroke in my Cerebellum.

It was caused by a “AVM”

This is a cluster of abnormal blood vessels.

This has effected both sides of my body.

I no longer have a “good side” anymore

@steve51

ArNoLdChIaRiSuFfErEr

@steve51
Oh my gosh. I can relate to what you’re probably going through. Do you get depression with it? My right side was affected with pain. The neurologist said it is as if I have had a stroke. My brain has reprogrammed itself since surgery. . I love going out with friends and family and meeting other people. Although I have to pace myself otherwise I will have at least two or three bad days.

Are you in a wheelchair too? I hope you have got a good support network?

steve51

Hi @ArNoLdChIaRiSuFfErEr

That’s Great!!!!

My Stroke in1998 took out my left side.

And I have had many operations/tests since.

I had Radiation Treatment in 2005 that gave me “Chronic Pain” down my right side.

“Not Good”

I don’t think “Glue & Radiation” is a great mix.

@steve51

ArNoLdChIaRiSuFfErEr

Hi @steve51

How are you today? We had our grandson staying with us this past couple of days as it is the Easter holidays. We took him to Clacton on Tuesday and yesterday we took him to Norfolk for the steam engines. He is great fun to have around. I am chilling now as much as we enjoy having him it is very tiring.
Take care.

steve51

Hi @ArNoLdChIaRiSuFfErEr

It has been a lovely day here today I have cut the front lawn this afternoon.

I am very shattered now so time to chill and watch the football.

Boy will I pay for it tomorrow. Never mind it is looking great!!!!!

How has your day been?????

@steve51