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We want to hear from you: please tell us about your experience of the online community.

I am hoping to make some friends on here

Holly63

Hi my name is Holly and I am new to the group. I was diagnosed with Reflex Sympathetic Dystrophy in 1993, since then I have had to use a wheelchair to get out and about. I also have Hypermobility and Sciatica. I am hoping to make some friends on here and to talk to people who understand how it feels to be disabled. Thank you for letting me join the group. ?

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Comments

Ami2301

Hi @Holly63 welcome to the community !could you tell us a bit more about Reflex Sympathetic Dystriphy?

Adrian_Scope

Hello @Holly63 and welcome to the community. Really glad to have you with us. How are you doing today?

steve51

Hi @Holly63

Good Afternoon & Welcome it’s great to meet you today.

I am one of the Community Champion’s here at Scope.

Please please let me know if if there’s anything that I can help you with????

@steve51

Edster77

Hi @Holly63 Hello and welcome

Holly63

Ami2301 said:

Hi @Holly63 welcome to the community !could you tell us a bit more about Reflex Sympathetic Dystriphy?

Hi Ami2301 thank you for your reply Reflex Sympathetic Dystrophy (aka Chronic regional pain syndrome) is a condition that effects the sympathetic nervous system, usually in one of the limbs, causing severe pain and burning to the limb. There's a bit more info here.
https://www.health.ny.gov/diseases/chronic/reflex_sympathetic/

Holly63

Adrian_Scope said:

Hello @Holly63 and welcome to the community. Really glad to have you with us. How are you doing today?

Thank you forthe wwarm welcome, Adrian. I have some pain at the moment which is preventing me from sleeping tonight. Hopefully I will get some sleep soon. ??

Holly63

steve51 said:

Hi @Holly63

Good Afternoon & Welcome it’s great to meet you today.

I am one of the Community Champion’s here at Scope.

Please please let me know if if there’s anything that I can help you with????

@steve51

Thank you Steve, it's good to meet you too. ?

Holly63

Edster77 said:

Hi @Holly63 Hello and welcome

Hello Edster, thank you for welcoming me into the group. ?

Antonia_Alumni

Welcome to the community @Holly63 I hope you slept well? How are you doing today? Thank you for sharing this with us. You may be interested in joining our dealing with chronic pain discussions group. and our Disabled people discussions group. Please let us know if you have any questions.

Holly63

Antonia_Scope said:

Welcome to the community @Holly63 I hope you slept well? How are you doing today? Thank you for sharing this with us. You may be interested in joining our dealing with chronic pain discussions group. and our Disabled people discussions group. Please let us know if you have any questions.

Hi Antonio thank you for welcoming me into the group I didn't sleep too good last night, hopefully I will have a better night tonight. Thank you for letting me know about the chronic pain discussion group, I will check it out. ? Thank you I will do. ?