If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

New to the site

Options
joybells
joybells Community member Posts: 6 Listener
Hi my name is Joy. I new to this site,i am a carer to my hubby but also have disabilitys myself. Such as Fibromaygia and newly diagnosed as coeliac so life but touch at the moment. 

Comments

  • Ami2301
    Ami2301 Community member Posts: 7,935 Championing
    Options
    Hi @joybells welcome to the community! Sorry to hear about your recent diagnosis. We have many members in our community who have Fibromyalgia and I'm sure they will be happy to get in contact with you to offer support. Let us know if you have any questions :)
    Disability Gamechanger - 2019
  • joybells
    joybells Community member Posts: 6 Listener
    Options
    Thank you. 
  • Adrian_Scope
    Adrian_Scope Posts: 11,392 Scope online community team
    Options
    Hi @joybells, welcome to the community! I hope you'll find our discussions on chronic pain useful, as well as our parents and carers group, but please let us know if you have any questions or need some advice.
    Community Manager
    Scope
  • emmarenshaw
    emmarenshaw Community member Posts: 710 Empowering
    Options
    Hello @joybells welcome to the community.
  • joybells
    joybells Community member Posts: 6 Listener
    Options
    Thank you. I am a carer,but i have my own disabilitys which i struggiling with at the moment. Sadly nobody seems to advise me at the monent. So feel quiet down. 
  • emmarenshaw
    emmarenshaw Community member Posts: 710 Empowering
    Options
    Hi @joybells there’s lots of advisors and members of the Scope Team on here if you need any help with anything.
  • joybells
    joybells Community member Posts: 6 Listener
    Options
    Thank you Emmarenshaw. Think.i have to many problems ,dont know where to start to be honest. I a very upbeat person,but not at the moment
  • emmarenshaw
    emmarenshaw Community member Posts: 710 Empowering
    Options
    @joybells I understand. I know it feels like a lot the Community and the team are here if or when you are ready. Just ask and someone will be happy to help.
  • joybells
    joybells Community member Posts: 6 Listener
    Options
    I appreciate that,thank you. I have fibromalygia, also coeilac they think  they should done blood test months ago,but they didnt,so ive been wheat,diary,yeast,lactose. Sulphites free for months. Do feel better. But dont want to go back on all these dor 6 weeks,and be ill 
  • emmarenshaw
    emmarenshaw Community member Posts: 710 Empowering
    Options
    @joybells That’s an awful lot for you to deal with. I’m glad you are feeling better.
  • [Deleted User]
    [Deleted User] Posts: 32 Connected
    Options
    The user and all related content has been deleted.
  • joybells
    joybells Community member Posts: 6 Listener
    Options
    Badgerfreedom60 said:
    Hello Joy, I cared for a lady with fibro myalgia and also know 2 others, I understand what a difficult, painful and invisible disease it is so bless you, and take care x 
    Ah thank you for replying  yes hard as i also care for my hubby who paprapelgic. Plus my coeliac. 
  • Sam_Alumni
    Sam_Alumni Scope alumni Posts: 7,665 Championing
    Options
    Welcome to the community @joybells :)
    Scope
    Senior online community officer
  • steve51
    steve51 Community member Posts: 7,147 Championing
    Options
    Hi @joybells

    Welcome it’s great to meet you this evening.

    I am one of a number of “Community Champion’s” here at “Scope”

    Please please let me know if there’s anything that I can help/support you with??? 

    @steve51




If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.