Hi, my name is Bluey32!

Bluey32

Hi all 

steve51

Hi @Bluey32

Good Evening it’s great to meet you today.

I am one of the Community Champion’s here at Scope.

Please let me know if you require any further help????

@steve51

Bluey32

Thank you steve51 I will keep you in mind ?

Ami2301

Hi @Bluey32 welcome to the community! Would you like to tell us a bit about yourself?

Bluey32

Hi ami2301 I don't know where 2 start lol
I'm 51 female. I've must been diagnosed with abdonino phrenic dyssynergia I have had to stop work as it's too my h for me x

Ami2301

You're the first person I have come across that has abdonino phrenic dyssynergia! I've just read your other post where you explain a bit more about it, it sounds very painful! Are they able to help with the pain at all?

Bluey32

I take 8 50g tramadol a day &  8 30g codeine a day. 
There is no cure as yet just pain relief. X

Bluey32

It is a rare condition &  I don't know if anybody in the UK has it apart from me x

Bluey32

I have put my profile pic up so u can see my big belly x

Ami2301

I've just had a look online, I've found the IBS Network which may be of use to you

Bluey32

It's nothing to do with ibs or bowel. It's my diaphram. Z

Ami2301

One of the points they make mentions Abdonino Phrenic Dyssynergia

Bluey32

Yes I've just read it. My specialist said I don't have ibs/crohns. There are only 2 specialist for my condition in the UK. London & newcastle upon Tyne. I just wish they Cud find a cure for me as I'm in a lot of pain most days x

Adrian_Scope

Welcome to the community @Bluey32!
I've never come across Abdomino Phrenic Dyssnergia before. Have you spoken to anyone about better pain relief?

Bluey32

No my GPS are scratching there heads Cus they have never herd of my condition. I'm going 2 ask my specialist about better pain relief Cus when I'm really badly in pain I go 2 the gp & they send me 2 hospital & they give me morphine then discharge me after a couple of days x