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Hi, my name is Bluey32!
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Bluey32
Community member Posts: 34 Connected
Hi all
Comments
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Thank you steve51 I will keep you in mind ?
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Hi @Bluey32 welcome to the community! Would you like to tell us a bit about yourself?Disability Gamechanger - 2019
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Hi ami2301 I don't know where 2 start lol
I'm 51 female. I've must been diagnosed with abdonino phrenic dyssynergia I have had to stop work as it's too my h for me x -
You're the first person I have come across that has abdonino phrenic dyssynergia! I've just read your other post where you explain a bit more about it, it sounds very painful! Are they able to help with the pain at all?Disability Gamechanger - 2019
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I take 8 50g tramadol a day & 8 30g codeine a day.
There is no cure as yet just pain relief. X -
It is a rare condition & I don't know if anybody in the UK has it apart from me x
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I have put my profile pic up so u can see my big belly x
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I've just had a look online, I've found the IBS Network which may be of use to youDisability Gamechanger - 2019
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It's nothing to do with ibs or bowel. It's my diaphram. Z
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One of the points they make mentions Abdonino Phrenic DyssynergiaDisability Gamechanger - 2019
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Yes I've just read it. My specialist said I don't have ibs/crohns. There are only 2 specialist for my condition in the UK. London & newcastle upon Tyne. I just wish they Cud find a cure for me as I'm in a lot of pain most days x
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Welcome to the community @Bluey32!
I've never come across Abdomino Phrenic Dyssnergia before. Have you spoken to anyone about better pain relief?Community Manager
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No my GPS are scratching there heads Cus they have never herd of my condition. I'm going 2 ask my specialist about better pain relief Cus when I'm really badly in pain I go 2 the gp & they send me 2 hospital & they give me morphine then discharge me after a couple of days x
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