Stuck in hospital

abbeym395

Hello everyone!  I have been stuck in hospital for most of the last 3 weeks.  I have had two failed discharges and was only out for a total of 5 days.  They are calling it functional nausea and vomiting.  They've withdrawn my IV fluids but I'm going to push for some to be restarted after I nearly collapsed when I went down to reception earlier!!  Tomorrow I'm being trialed on a NG tube to supplement the small amounts I can eat.  I'll also be getting a midline if they restart my IV stuff as my veins are destroyed.  I also have mental health problems, IBS, chronic pain syndrome and a few other bits and pieces.

I was hoping to find some comfort among other people who know what it's like to have a body and brain that don't like talking to each other properly.

So hello!!

Adrian_Scope

Hi @abbeym395 and welcome to the community. I'm sorry it sounds like you're having such a rough time. Do you have much of a support network around you?
Please let us know if we can offer you some advice with anything.

abbeym395

I'm just feeling frustrated and angry because I just got seen by a doctor who wasn't even aware of the NG recommendation.  It's like they're so desperate to get me out to they're not thinking about my needs in the medium term.  I have very little in the way of a support network unfortunately.  It's looking like if I get an NG, it won't be until tomorrow.  Otherwise they're sending me home.  I just don't know how to get my feelings listened to.

steve51

Hi @abbeym395

Good Afternoon & Welcome it's great to meet you today 🌝

I am very very sorry to hear about your current situation/problems.

Yes I have been in your "situation" more "times" than I have had "Hot Dinners"

Please please contact me if I can be of any "help/support"

@steve51

abbeym395

Thanks for the offer it's a horrific place to be, that's for sure.

thespiceman

Hello @abbeym395   Pleased to meet you welcome .

Thank you for joining and sharing.

Sorry to hear what you are experiencing.  We as a community do understand .

I am one of the team of community champions. We guide and advise new members who join the community.

I know this is not easy to deal with . Feel for you.  I do think you need to speak to some one like PALS .

Patient liaison services or speak to RETHINK .  Have a look on line might be worth speaking to RETHINK.

https://www.rethink.org.

Helpline advice line 0300 500 0927

They are an advocate service for those  with mental health issues and additional problems not getting any answers with their care.  NHS services and any treatment involved.

Just an idea for you. I know might be interested in helping you.

No one wishes to see a valued member having problems with treatment and care.

Wish you well in your recovery.

Any problems please ask . We are here to help and advise. A member of our team or a member of our community.

Please take care.

@thespiceman

megan_parker

Hi @abbeym395

Lovely to meet you. I am so so sorry to hear about what you are going through, my dad is currently facing a similar situation and has been in and out of hospital 4 times now so I completely understand how frustrating it is. 

You can always come here for support and we will always try to help if we can.

I hope things start to look up for you soon!

Adrian_Scope

I'm sorry @abbeym395. That's a really tough situation to be in. Have you had any news today?

abbeym395

Yes, I have.  They're sending me home.  They think that with my dietary restrictions I'll be better able to eat if I go home.  But my main worry is fluids.  The sister came and talked to me for a long while and she's going to yell at the mental health team and get them to help me more.  I just fear that by the weekend I'll be back.

thespiceman

Hello @abbeym395   Thank you for sharing with the community. 

Please can I ask did you have time to contact RETHINK.?

Just because you have a mental health team if they are not working for you then contact RETHINK.

Every one deserves good mental health and support.

Intervening might be supportive and seek some answers with your care.

Advocate service useful because they can speak on your behalf with your permission discuss before hand with you what you need to ask Doctors or mental health team.  They then talk to the people in involved with your care.

Hope that helps you.

Please keep in touch.

Take care.

@thespiceman

Adrian_Scope

Hope you're doing okay @abbeym395. Are you back at home now?

abbeym395

Yeah.  Managed a little food but feeling quite sick now.

April2018mom

Definitely talk to PAL. Give them a call to discuss your situation tomorrow and see what happens. Keep us posted. 

April2018mom

How are you doing today? 

abbeym395

I'm struggling.  Using my wheelchair because I'm just too unsteady to walk very far even with my walker.  But I'm out, and trying to make the best of it even if my stomach doesn't really want to know!!

April2018mom

Great update! We are currently in the hospital as my son’s bowel and bladder issues have worsened over the past few months. Waiting to see his regular doc. 

Chloe_Scope

Hi @abbeym395, thank you for updating us. I'm sorry to hear that you are struggling to move around. Do you have any follow up appointments to see anyone about this?

abbeym395

My GP did some urgent blood stuff today but I'm not sure what they plan to do if they come back normal.  Frankly I'm really struggling and might have to go back up to the hospital soon.

Chloe_Scope

I hope you don't have to wait long for the results @abbeym395. I'm sorry to hear you are really struggling. Would you be able to get to the hospital if you needed to go back in?

Adrian_Scope

How are you doing today @abbeym395?

abbeym395

I ended up in a and e after my last post as I got really lethargic and confused.  But my bloods were normal enough so they refused to treat me or admit me because they didn't think it would help in the long term.  The doctor was really kind, said that I was being stronger than she'd ever had to be which is really sticking with me and driving me forward.  I'm really struggling but managed, somehow, to get a mini kitchen set up in my bedroom last night.  I've also been seen by a service that should help me advocate and get the multitude of agencies supporting me to actually talk to each other.  She's also going to try and get an OT assessment done to get me some equipment for me.

pollyanna1052

sending all best wishes abbeym xxx

Chloe_Scope

Hi @abbeym395
I'm sorry to hear you ended up in A&E, I hope you are feeling a bit better today!
The service sounds really positive so I hope they are able to help. The OT assessment sounds promising as well

April2018mom

The service sounds like a good one. I hope that they can offer you some answers soon! What tests were done? Have the results come back or not? 
Let us know what happens at the OT evaluation. 

abbeym395

Thanks for the support everyone.  They only did bloods this time which were all basically normal.  I'm starting to get very fed up with everything and my mental health is declining but I'm fighting it all.

April2018mom

Are you seeing a therapist or not? Talking about your mental health does help seriously. 

abbeym395

I'm under the mental health team but they're useless.  I'm currently waiting for an ambulance after an OD, other SH and an urge to hurt others.  Scared but my partner is helpful.

April2018mom

Definitely call on Monday. 

abbeym395

I'm up at hospital now as the ambulance was concerned about the new symptoms.  Now waiting to be sent somewhere in a and e.

April2018mom

abbeym395 said:

I'm up at hospital now as the ambulance was concerned about the new symptoms.  Now waiting to be sent somewhere in a and e.

Hope you feel better soon!

Chloe_Scope

Hi @abbeym395, how are you doing today?

abbeym395

I am incredibly rough.  Waiting to see GP for another potential readmission.  The liaison psych person on Saturday tried to scare me by saying I'd end up in prison if I didn't stop saying I was hearing voices telling me to hurt others, basically.  I'm in so much pain, I'm barely sleeping, I'm vomiting and fed up.  My mental health is now as poor as my physical health and oh, the council is threatening to evict me for the mess that I've been trying to get help with for MONTHS.

I actually hope they readmit me so I can actually get things sorted out.

Chloe_Scope

Hi @abbeym395, I'm so sorry to hear this, it sounds like things have been really tough recently. I really hope they can sort things out as well. 

abbeym395

GP was worried but knows a physical health ward is not the best place for me right now.  She's giving it until tomorrow morning, chasing mental health and if nothing improves then off to hospital I go 

Chloe_Scope

I'll keep my fingers crossed for you! Thank you for keeping us updated

April2018mom

You are in my prayers!

Adrian_Scope

Thinking of you @abbeym395. Hope it goes okay.

abbeym395

Well I saw the doctor, she noticed how dehydrated I looked and basically said there was nothing she could do apart from poke mental health.  So the buck is being passed.  Again.  Made another appointment for Thursday so we shall see.  Fed up with one person saying one thing then the next saying something different!

Chloe_Scope

I'm sorry @abbeym395, I imagine being past from person to person is confusing and frustrating! I hope Thursday goes okay

Adrian_Scope

How'd the appointment go @abbeym395?

abbeym395

It was good One of the people supporting me came to help and this was with my named doctor and he gave me all the time I needed and extra support too.  Then I went and had a coffee with the support worker and we talked everything through.  Feeling more optimistic.  Not going to let this define my life.  Been swimming today at doctors suggestion to keep my legs stronger.  Feeling supported for the first time in awhile.

Adrian_Scope

That's brilliant @abbeym395. Really glad you're feeling a bit better about this.

abbeym395

Unfortunately it was somewhat short lived.  My ability to eat and drink has deteriorated again and my sleep is appalling.  But my test results are fine so nobody seems to care.  My head is pounding my bowels are ridiculous and I get so tired doing even the smallest thing.  I don't know where to turn or how to handle this as everyone just seems to be shrugging their shoulders and saying they don't know.  And the last few days I've come across so many people with a bad attitude towards me because of my wheelchair and it's driving me nuts.

Chloe_Scope

I'm sorry to hear that @abbeym395, how are you doing today?

abbeym395

I found a GP that was willing to listen on Tuesday, after my dietician told me to see them.  They've helped me push to get my gastro appointment moved to next Wednesday.  I feel like hell and I'm barely eating but at least I have that to aim for now.

Chloe_Scope

Hi @abbeym395, I'm glad you were able to find someone to listen to you. I really hope the appointment is helpful and you'll know more after that! 

Wishing you a lovely afternoon Abbey!