Neurological conditions
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Narcolepsy and Cataplexy -

BaggiebirdBaggiebird Member Posts: 5 Listener
edited August 2019 in Neurological conditions
I have Narcolepsy and Cataplexy, and other conditions.
Living in a small town in Worcestershire my Doc only knows me with the condition.
I am lucky to be part of a fb group full of Narcoleptics.Anyone is Worcestershire?

Replies

  • M_AnthonyM_Anthony Member, Scope Volunteer Posts: 309 Pioneering
    @Baggiebird

    Hello Baggiebird, welcome to our forums and community!

    We hope you enjoy using the forums, you will find great support and everyone is friendly here. Have a look at the various groups, including the coffee lounge for general chat.

    I am not based in Worcestershire, however we have a large community and I am sure other people will get back to you that are close or in your area. In the meantime we look forward to talking to you more!
  • BaggiebirdBaggiebird Member Posts: 5 Listener
  • thespicemanthespiceman Member Posts: 6,408 Disability Gamechanger
    Hello @Baggiebird   Pleased to meet you welcome.

    Thank you for joining and sharing.

    I am one of the team of community champions.  We guide and advise, help new members who join the forum.

    Please have a look around our website. You come to the right place for friendship and support.

    Please ask the community anything. Some one will know from our team or a member of our community.

    Please take care.

    @thespiceman
    Community Champion
    SCOPE Volunteer Award Engaging Communities 2019
    Mental Health advice, guidance and information to all members
    Nutrition, Diet, Wellbeing, Addiction.
    Recipes
  • Chloe_ScopeChloe_Scope Scope Posts: 10,652 Disability Gamechanger
    Welcome to the community @Baggiebird! Please have a look around, get involved and let us know if we can do anything to help :)
    Community Partner
    Scope

    Tell us what you think?
    Complete our feedback form to help us to improve your community.
  • Ami2301Ami2301 Member Posts: 7,447 Disability Gamechanger
    Hi @Baggiebird welcome to the community! :)
    Disability Gamechanger - 2019
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Baggiebird

    Good Evening it’s great to meet you today.

    I am also a Community Champion here at Scope.

    Previously I lived in the Warwickshire area
    not far from Worcester.

    I had many friends/work colleagues who lived in around the area.

    Please let me know if you need any help/support????

    @steve51

  • AilsAils Member Posts: 2,268 Disability Gamechanger
    Hi @Baggiebird and welcome to the Community.  It is nice to meet you and thank you for sharing with us.  You have come to the right place to meet friends and I'm sure there will be other members from Worcestershire too.  I hope you enjoy your time on the Community and look forward to seeing you around it.  If there is anything else we can help you with in the meantime then please don't hesitate to ask us.  All the best.  :smile:
    Winner of the Scope New Volunteer Award 2019.   :)
  • Adrian_ScopeAdrian_Scope Testing team Posts: 7,934

    Scope community team

    Hello @Baggiebird. Welcome to the community! Just give us a nudge if you need any support.
    Senior Community Partner
    Scope

    Your feedback is really important to the development of the online community, so please remember to complete our online community annual survey
  • Bluey32Bluey32 Member Posts: 34 Connected
    Hi I'm so glad you have a fab page for your condition. I cannot find anybody in the UK with my condition at all. It would be so nice to talk to some one with the same disability as me. Well done in finding a group xx
  • steve51steve51 Member Posts: 7,175 Disability Gamechanger
    Hi @Bluey32

    I am one of the Community Champion’s on our site.

    If you need a hand 🖐 looking 👀 for info & someone with the same condition as you.

    Please let me know how you feel????

    @steve51
  • DozyLowe19DozyLowe19 Member Posts: 3 Connected
    Heya @Baggiebird
    I’m a fellow Narcoleptic with Cataplexy and I am glad I found scope where sometimes it’s nice to connect with people with other disabilities with different outlooks on life.
    I hope you are aware of NarcolepsyUK who have helped me immensely throughout the years. xxx
  • Tori_ScopeTori_Scope Posts: 4,033

    Scope community team

    It doesn't look like @Baggiebird has been online for a while, but I'm really glad that you find our community helpful @DozyLowe19 :) I look forward to seeing you around on other threads! 
    Online Community Coordinator, she/her

    Want to give us feedback? Complete our feedback form now.
  • matthew2909matthew2909 Member Posts: 16 Connected
    I have Narcolepsy and Cataplexy, and other conditions.
    Living in a small town in Worcestershire my Doc only knows me with the condition.
    I am lucky to be part of a fb group full of Narcoleptics.Anyone is Worcestershire?
    hey how are you im matthew 
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