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Adhesive Arachnoiditis - hoping to find support in how to cope without medical support and care.
Hi! My name is Lanie and looking forward to seeing what you are about. I have multi level disc injuries and a rare neurological disease called Adhesive Arachnoiditis. I cannot sit at all without excruciating pain and disc bulging. All my nerve endings inside my spine have been damaged and now cause intense pain everywhere. I have to lie on my bed 24/7 but can manage to get up to get something when necessary. Nerve damage to both legs. I still have a good life because of my Christian Faith. Without it I would not be here. My main concern is I have no medical support. The AA disease was caused initially from medical harm which means no Gp or consultant will see or help me. They are afraid of litigation which I wouldn’t do. They also dont like helping when they do not understand the problem. I am finding their attitude to me very hard to cope with. I am not asking for advice on medical help. But hoping to find support in how to cope without medical support and care. Thank you everyone!