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Hi, my name is Karenjames67!

Hi good morning my name is karen .
I'm a mum of 4 .a Gran, of one .also a wide.
Myself and my 4 children have a condistion called ehlers danlos. My 3 girls are disabled Wheelchair users most times.my granson also special push chair.
My husband is disabled. My son struggles with his dislocations but gets by .
I'm the soul carea for my family . 
I'm so glad there's somewhere privet I could talk .Thank you .x

Replies

  • chiariedschiarieds Community Co-Production Group Posts: 9,181 Disability Gamechanger
    Hi @Karenjames67 - I'm very pleased to be the first to welcome you to this very supportive & friendly community, Karen, as my family is also affected by Ehlers-Danlos Syndrome (hEDS) + the neurological complication of Chiari 1 Malformation. :(
    Myself, children, & our eldest daughter's 3 children all have this. You certainly have an awful lot going on with your husband being disabled too, & it is good to have this forum as somewhere to talk. Even with different disorders that others have, I've found that people here really care, & do their best to help each other. So, yes, please do chat here any time, & say if you have any questions too.
  • Karenjames67Karenjames67 Member Posts: 3 Listener
    Hi sorry to hear your family suffer eds.
    My youngest daughter has her own Facebook page if you would like to give it a look .
    It's Emily's life Eds UK. It's a blood hard fight .big hugs xx
  • chiariedschiarieds Community Co-Production Group Posts: 9,181 Disability Gamechanger
    Thank you for the Facebook link, Karen....I have found it, & will read more tomorrow.
  • Adrian_ScopeAdrian_Scope Testing team Posts: 8,001

    Scope community team

    Welcome to the community @Karenjames67. :smile:
    Community Manager
    Scope
  • Chloe_ScopeChloe_Scope Scope Posts: 10,653 Disability Gamechanger
    Welcome to the community @Karenjames67, great to have you with us. :)
    Scope

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