Hi, my name is Karenjames67!

Karenjames67

Hi good morning my name is karen .
I'm a mum of 4 .a Gran, of one .also a wide.
Myself and my 4 children have a condistion called ehlers danlos. My 3 girls are disabled Wheelchair users most times.my granson also special push chair.
My husband is disabled. My son struggles with his dislocations but gets by .
I'm the soul carea for my family . 
I'm so glad there's somewhere privet I could talk .Thank you .x

chiarieds

Hi @Karenjames67 - I'm very pleased to be the first to welcome you to this very supportive & friendly community, Karen, as my family is also affected by Ehlers-Danlos Syndrome (hEDS) + the neurological complication of Chiari 1 Malformation.

Myself, children, & our eldest daughter's 3 children all have this. You certainly have an awful lot going on with your husband being disabled too, & it is good to have this forum as somewhere to talk. Even with different disorders that others have, I've found that people here really care, & do their best to help each other. So, yes, please do chat here any time, & say if you have any questions too.

Karenjames67

Hi sorry to hear your family suffer eds.
My youngest daughter has her own Facebook page if you would like to give it a look .
It's Emily's life Eds UK. It's a blood hard fight .big hugs xx

chiarieds

Thank you for the Facebook link, Karen....I have found it, & will read more tomorrow.

Adrian_Scope

Welcome to the community @Karenjames67.

Chloe_Alumni

Welcome to the community @Karenjames67, great to have you with us.