Find out how to let us know if you're concerned about another member's safety.
Support in Leeds for child anxiety and autism

slpy83
Member Posts: 1 Listener
Just wondered if anyone is in Leeds and can offer me any advice on there experience with where to get help for their child.
Went to the doctors was told refer to Mindmate they said there isn't enough evidence so referred us to Jess Cluster. We've worked with Jess Cluster, Catholic care, school nurse and the school had a meeting yesterday they all said they don't know what else to do and that a referral to Mindmate again but you'll be lucky if they see him before high school.
I'm stuck at where else I can get support for my child I've been fighting for the last 3 years and I'm right back at the beginning.
Comments
-
Hi @slpy83 sorry to hear you're struggling to get some support. It sounds like you're going around in circles. @Adrian_Scope could you help at all?
LouiseLouise Hesketh
Community Champion -
Hello @slpy83 and a warm welcome to the community. Has your son got a diagnosis or are you still working towards this? It can be very frustrating to have to fight for the right support and I'm sorry it sounds like you've had such difficulty getting this for your son.
Have you been in touch with the National Autistic Society at all? https://www.autism.org.uk/ -
-
Good morning. @slpy83 - I'm Louise and I work for Scope in Leeds running the Parents Connect service there. I've only just started accessing the forum so have only just seen your message.
A couple of things I can suggest. Firstly, have school initiated an Early Help Plan for your son? If not, then Scope can help get one set up. If you email [email protected], they'll be able to have a chat with you.
Secondly, there are a few autism groups in Leeds that may be able to offer support. Both ZigZag and ABC are particularly good and it doesn't matter whether you have a diagnosis or not. Leeds Mencap may also be able to help with their Family Support service. http://www.leedsmencap.org.uk/support-for-adults/parents-carer-support-groups
Lastly, if you feel like you need support yourself, my service is here to help parents of children with additional needs. We are running some workshops during lock-down and will be doing face-to-face sessions once the crisis is over. If you need our help, please email us at parentsconnect.scope.or.uk
Hope that helps. :-) -
Brightness
Categories
- 52.9K All Categories
- 10.4K Start here and say hello!
- 4.8K Coffee lounge
- 4K Disability rights and campaigning
- 1.5K Research and opportunities to get involved in
- 148 Community updates
- 12K Talk about your situation
- 1.7K Children, parents, and families
- 756 Work and employment
- 574 Education
- 1.1K Housing, transport, and independent living
- 1K Aids, adaptations, and equipment
- 275 Dating, sex, and relationships
- 263 Exercise and accessible facilities
- 21.1K Talk about money
- 2K Benefits and financial support
- 4.4K Employment and Support Allowance (ESA)
- 12.3K PIP, DLA, and AA
- 2.4K Universal Credit (UC)
- 4K Talk about your impairment
- 1.3K Cerebral palsy
- 673 Chronic pain and pain management
- 698 Rare, invisible, and undiagnosed conditions
- 749 Autism and neurodiversity
- 923 Mental health and wellbeing
- 297 Sensory impairments
Complete our feedback form and tell us how we can make the community better.