Myasthenia Gravis memory loss

Options
littlechef
littlechef Online Community Member Posts: 71 Contributor
edited August 2020 in Everyday life
Hello everyone .
Can anyone please help me I suffer from Myasthenia Gravis and Nf1 I seem to be having some memory lose I am forgetting things like what I have done or should be doing even if I have taken my medication.luckily my tablet box is morning to evening . I'm getting very worried I am even putting things on hear n the wrong place .I'm 57 coming 58 next Saturday can anyone please give me some advice .

Comments

  • GeoffBosworth195661
    GeoffBosworth195661 Online Community Member Posts: 161 Empowering
    Hi littlechef, welcome to the scope, and after reading your condition it is understandable why you are in such a mix-up and it must be very frustrating. My advice to you in this area is in different segments of different conditions. So what I would say I will forward the Myasthenia web site where they have the updated information for your condition. This will help you out with full details of any information you need to know. When you go on the site just click on below and it will come up with a friendly site. Phone emails it as it all put your mind at ease take care and I'm sure everything will be sorted for you. 
  • littlechef
    littlechef Online Community Member Posts: 71 Contributor
    @GeoffBosworth195661
    Thank you so very much for your advice to be honest my neurogest is not very good and I don't have a lot of trust in her at times I feel like I'm banging my head against the wall I have asked so many questions and just told that's not part of MG but others says it is I feel let down I am having so many problems even my doctor can't help just that my neurogest is the only one who can help me. 

    I have had neuroendocrine cancer 2times from NF1 my neurogest should be calling me next week fingers crossed.  I've been very tired for 12 months I have also had stroke like symptoms for a number of years sent to hospital and sent home again so you can understand why I'm so mixed up.
    Thank you once again. 
  • littlechef
    littlechef Online Community Member Posts: 71 Contributor
    @GeoffBosworth195661
    I'm always very tired suffer with dizziness and head feels very heavy not matter how much sleep I have I want more mestinon only works for a couple of hours hand goes stiff for a couple of minutes I have had so many health issues over the years and all very rare. 
    Feeling very confused ?. 

Categories