Visual Impaired Members

csno01

Hi Everyone,

I was wondering if there were any visually impaired members who would like to chat? 
Thanks,
CSn01

Adrian_Scope

Hi @csno01. I know quite a few of our members have visual impairments. Hopefully someone will be along soon to talk.

janer1967

Hi @csno01 Welcome to the community, I am sight impaired, I am blind in one eye and reduced vision in the other often suffering from bleeds behind the eye and having regular surgery. At present fingers crossed my vision is ok to allow me to come on here .

Feel free to have a chat and get to know people 

csno01

janer1967 said:

Hi @csno01 Welcome to the community, I am sight impaired, I am blind in one eye and reduced vision in the other often suffering from bleeds behind the eye and having regular surgery. At present fingers crossed my vision is ok to allow me to come on here .

Feel free to have a chat and get to know people 

Hi janer1967,
Nice to hear from you. 

I am registered blind myself and have Nystagmus too, so I can relate. Its great that you are able to post on the forums. I use a variety of gadgets and technology to help me. 

Take care.

janer1967

@csno01its great you have gadgets to assist you and to know for future ref there is stuff around to help communicate. 

Take care look forward to seeing you on here 

Chloe_Scope

Hi @csno01! I'm partially sighted and use a long cane to get around.

I have visual cortex disorder and my sight started deteriorating about 3 years ago. 

atlas47

Hi @csno01

I have tagged @mikehughescq, to answer your post, as he has posted about his VI issues on numerous threads.

Hope this helps.

Stay kind and be safe.

Best wishes

mikehughescq

Thanks for that @atlas47. Yes, I’m albino and have Nystagmus. Registered sight-impaired and use a guide cane (between a symbol and navigation cane). Have lots of reasonable adjustments in work and probably much to talk about. Have also had Kestenbaum Tenotomy surgery. 

mikehughescq

Just wanted to flag up that Albinism UK have started doing meet-ups by Zoom. Zoom isn’t the most accessible app but the meetings are informal and lovely and there us an intention to keep doing them. Check out their web site for more details.

ross2503

Severely sight impaired user here. I have Cone-rod Dystrophy. 

Hope everyone is doing well! 

Chloe_Scope

Great to have you with us @ross2503!

csno01

ross2503 said:

Severely sight impaired user here. I have Cone-rod Dystrophy. 

Hope everyone is doing well! 

Hi Ross,

Good to hear from you.

I am partially sighted and have Nystagmus also. I use a guide cane to help me navigate. I hope you enjoy this forum.

CSn01

Sparklebright62

Hi to all of you

I am Partially Sighted since both Rerolentalfibroplaysia in one eye and only have 1.5 sight in my left eye I am very good at walking into doors walls people ect hurting myself along the way
I have optitions appointment next week so will let you know how I get on.
Nice to meet you all if you would like to chat let me know I am on messages and whats app.

Sparklebright62

roberttaylor570

Hi @Sparklebright62 I too have poor sight.  My right eye has been as good as blind since birth as it never taught itself to see so only picks up extremely little light .  My left eye is not perfect.  I am therefore Registered Blind and have been for many years.  I attended a school for the Visually Impaired and found this to be the best education I could have had.

I hope you are well and not bumping into too much.

Chloe_Scope

Thank you for sharing this with us @roberttaylor570! 

I hope your appointment goes okay next week @Sparklebright62.

Ross_Scope

Thanks for sharing @Sparklebright62, I hope your appointment goes well  

I also bump into quite a few things, but I've found myself doing that less since I got my canes, particularly outdoors  

Sparklebright62

Hi to you all,

Thankyou for replying to my message will let you know the outcome.


Sparklebright62.

Ross_Scope

  No problem @Sparklebright62

Sparklebright62

Hi to all,

I have been to the optitions today getting blurred vision and walking into doors ect I have to go back next Thursday for another scan and Oct test both eyes really red inside said I might have glucoma from being diabetic yuck.


Sparklebright62

Tori_Scope

Thanks for letting us know @Sparklebright62! 

I think it's good that they're investigating further. Hopefully they'll be able to put a bit of a treatment plan together for you. 

janer1967

Hi @Sparklebright62 I have glaucoma too but mine came on suddenly in one eye and was too late to treat so I went blind in that eye.

I am constantly monitored in my other eye and it is under control after having laser surgery and cryo surgery and using drops

Early treatment is key so please keep up with the appointments

Chloe_Scope

Hi @Sparklebright62, I imagine this wasn't pleasant news to receive! I hope next Thursday goes okay and please let us know if we can do anything else to help.

Sparklebright62

Hi to all,

I have been back to the optitions today she is referring me back to hospital for 2 failed field tests and other problems so she didn't say anything else about glucoma this time but I guess she will be sending me to the low vision clinic as I keep walking into doors ect and getting bruises on arms and legs
and feel right strange only seeing with one.5 eyes and blurred vision in ok eye and I keep constantly blinking also muscle spasms in eyes 2.


Sparklebright62.

Ross_Scope

Best of luck with the referral @Sparklebright62, let us know how you get on  

I'm sure the low vision clinic will be able to give you some answers and advice on any treatments, in my experience of going to those clinics they've always been fantastic. 

janer1967

Hi a;;

Further to my hospital appointment yesterday I now have to have an injection every month to my eye to reduce some swelling and also have now been registered as partially sighted

I am blind in one eye and reduced vision in the other due to glaucoma and several severe bleeds, there is no room left for anymore laser treatment. They are trying their best to preserve my vision and there are other further treatments available, so fingers crossed

Chloe_Scope

Hi @janer1967, that must have been a lot to take in. How are you feeling about it all?

janer1967

@Chloe_Scope I feel ok I knew it was coming really 

Now have to surrender my driving licence which is upsetting but I haven't drove for 3 years now after my amputation I could have got an adapted car but with the sight problems this isnt an option 

Added bonus I now have a valid excuse not to be the nominated driver if out 

Chloe_Scope

I get that, still can be tough when it does actually happen. Have you been to a low vision clinic at all @janer1967 ? They obviously can't help with driving, but might be able to offer equipment and support to make other things a bit easier.

janer1967

@Chloe_Scope no I haven't I am waiting to be contacted by the team and I think they do an assessment so hoping I will get some info and tips then 

I'm not too sure how it all works 

Ross_Scope

Hopefully there are some treatments that they can provide for you @janer1967 and the useful vision you do have can be preserved  

Does your local authority have a sensory needs service? May also be worth getting in touch with them as well to see if there are any recommendations they can make.

Hope you're managing okay  

janer1967

@Ross_ScopeI was only referred last week to the service so hoping when they contact me they can offer some suggestions and services that can help me

I am doing ok been like this a while its just now it has been recognised by the medical team, my son helps me a lot would be lost without him. I know lots parents cant wait for their kids to leave home but I am dreading it. Not be for a while yet though he only 14 

Ross_Scope

I'm glad that your son helps you out a lot @janer1967, he sounds lovely  

As you say, he won't be leaving for a while yet and I suppose the advantage of that is that it gives you time to prepare for whenever that time comes. I'm sure you will manage perfectly well but I understand why you aren't looking forward to it.

Chloe_Scope

I hope they are in touch soon @janer1967! If you are unsure how it works, here is some information from RNIB which might help. Please do let us know how you get on.

• Explore the information on this page, ask a question on Sight Advice FAQ or find a sight loss organisation through the Sightline Directory.
• Speak to a Sight Loss Adviser by calling our Helpline on 0303 123 9999, 8am-8pm on weekdays and 9am-1pm on Saturdays.
• Meet with one of our hospital-based Eye Clinic Liaison Officers (ECLOs).

janer1967

Thanks @Chloe_Scope some very useful stuff there 

Sparklebright62

Hi to all,

I went to hospital on Tuesday and had a field test which I failed again doc said not relevant for some reason and has referred me for a brain scan in a few weeks.To see if I have something pressing on my nerves.Nice Not.
So will go from there.
And as for walking into the doors ect I have to contact my gp and for balance issues 2.


Sparklebright62

Tori_Scope

I can imagine that'd be a bit worrying @Sparklebright62. I hope that the scan goes okay  

Ross_Scope

Best of luck with the scan, hope all goes well  

Chloe_Scope

Hope it goes okay @Sparklebright62

Sparklebright62

Chole  Scope,

Thankyou for your reply.


Sparklebright62

Sparklebright62

Hi to all,

I went back to the doctors the other day when I went for an injection in my shoulder and was told I have rheumatiod arthritis.
As all my ligaments are rubbery and keep getting swelling too.
So hopefully I will now get treated for the condition and not be pushed from pillow to post.

Sparklebright62.

Tori_Scope

Fingers crossed this is the start of getting things sorted @Sparklebright62 Have they told you what the next step is? I know that some of our other members also live with rheumatoid arthritis, so if you ever need support from people who understand what you're going through it could be worth making a post about it.

csno01

roberttaylor570 said:

Hi @Sparklebright62 I too have poor sight.  My right eye has been as good as blind since birth as it never taught itself to see so only picks up extremely little light .  My left eye is not perfect.  I am therefore Registered Blind and have been for many years.  I attended a school for the Visually Impaired and found this to be the best education I could have had.

I hope you are well and not bumping into too much.

Thank you for sharing @roberttaylor570. Hello @Sparklebright62 I hope you are both safe and well?

csno01

Sparklebright62 said:

Hi to all,

I went back to the doctors the other day when I went for an injection in my shoulder and was told I have rheumatiod arthritis.
As all my ligaments are rubbery and keep getting swelling too.
So hopefully I will now get treated for the condition and not be pushed from pillow to post.

Sparklebright62.

I am sorry to hear that @Sparklebright62. I hope you are ok?