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Needing advice/ helpful tips please!
lms1208
Member Posts: 3 Listener
Hello all!
Let me introduce myself, my name is Laura. I’m new to this site and greatful for it!
I’ve been suffering from a mystery skin issue for over a year now until FINALLY last week , received a diagnosis of Lichen simplex Chronicus/ Lichen Sclerous.
Does anyone else suffer the same thing? The areas I’m affected is my scalp (I have bald spots) my hands , fingertips , especially around my cuticles (extremely painful. Inside my nose(?!)
Advice PLEASE!
Advice PLEASE!
~ Aural ~
Replies
Scope community team
Welcome to the community. I'm really pleased to read that you now have a diagnosis for your skin condition. I have found some information from British Association of Dermatologists, that might be useful for you.
Lichen Sclerosus
Lichen Simplex
I hope that is of some help?
Specialist Information Officer - Cerebral Palsy
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I was more or less hoping to find others who have been through it too
Scope community team
Specialist Information Officer - Cerebral Palsy
Want to tell us about your experience on the community? Talk to our chatbot and let us know.
Just wanted to say hi
From what little I can find online, it’s a rare disorder / gets mistaken and misdiagnosed A Lot . They were only able to diagnose me because after I had to keep going in saying”this isn’t working! Look what’s happening now!” And they finally did a biopsy.
Scope community team
As you can say - LSC is quite a rare condition and unfortunately not one we come across a great deal here, but members such as @Romaine, @karrie, @OutOfTheWorld99, @jake4dsm and @kate35 have all reported living with Lichen sclerosus.
I hope someone else will come forward with their experiences though and in the meantime you're more than welcome here.
Scope