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We want to hear from you: please tell us about your experience of the online community.

Needing advice/ helpful tips please!

lms1208

Hello all!

Let me introduce myself, my name is Laura. I’m new to this site and greatful for it!

I’ve been suffering from a mystery skin issue for over a year now until FINALLY last week , received a diagnosis of Lichen simplex Chronicus/ Lichen Sclerous.

Does anyone else suffer the same thing? The areas I’m affected is my scalp (I have bald spots) my hands , fingertips , especially around my cuticles (extremely painful. Inside my nose(?!)
Advice PLEASE!

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Comments

christian96

Hello and welcome @lms1208!

Richard_Scope

Hi @lms1208
Welcome to the community. I'm really pleased to read that you now have a diagnosis for your skin condition. I have found some information from British Association of Dermatologists, that might be useful for you.
Lichen Sclerosus
Lichen Simplex
I hope that is of some help?

lms1208

It does! Thank you!
I was more or less hoping to find others who have been through it too

Richard_Scope

I'm sure some of our community members will be able to share their experiences.

Chloe_Alumni

Welcome to the community @lms1208, great to have you with us!

janer1967

Hi and welcome I haven't seen anyone on here mention this condition but that doesnt mean there isnt anyone

Just wanted to say hi

lms1208

Hello! And thank you for the the warm welcome!
From what little I can find online, it’s a rare disorder / gets mistaken and misdiagnosed A Lot . They were only able to diagnose me because after I had to keep going in saying”this isn’t working! Look what’s happening now!” And they finally did a biopsy.

Chloe_Alumni

This must have been really stressful @lms1208! I hope a diagnosis has allowed you to get the answers you wanted.

Adrian_Scope

Hi @lms1208 and welcome to the community.
As you can say - LSC is quite a rare condition and unfortunately not one we come across a great deal here, but members such as @Romaine, @karrie, @OutOfTheWorld99, @jake4dsm and @kate35 have all reported living with Lichen sclerosus.
I hope someone else will come forward with their experiences though and in the meantime you're more than welcome here.