If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Needing advice/ helpful tips please!
Options
lms1208
Community member Posts: 3 Listener
Hello all!
Let me introduce myself, my name is Laura. I’m new to this site and greatful for it!
I’ve been suffering from a mystery skin issue for over a year now until FINALLY last week , received a diagnosis of Lichen simplex Chronicus/ Lichen Sclerous.
Does anyone else suffer the same thing? The areas I’m affected is my scalp (I have bald spots) my hands , fingertips , especially around my cuticles (extremely painful. Inside my nose(?!)
Advice PLEASE!
Advice PLEASE!
~ Aural ~
Comments
-
Hello and welcome @lms1208!
-
Hi @lms1208
Welcome to the community. I'm really pleased to read that you now have a diagnosis for your skin condition. I have found some information from British Association of Dermatologists, that might be useful for you.
Lichen Sclerosus
Lichen Simplex
I hope that is of some help?Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
It does! Thank you!
I was more or less hoping to find others who have been through it too~ Aural ~ -
I'm sure some of our community members will be able to share their experiences.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Welcome to the community @lms1208, great to have you with us!
Scope -
Hi and welcome I haven't seen anyone on here mention this condition but that doesnt mean there isnt anyone
Just wanted to say hi -
Hello! And thank you for the the warm welcome!
From what little I can find online, it’s a rare disorder / gets mistaken and misdiagnosed A Lot . They were only able to diagnose me because after I had to keep going in saying”this isn’t working! Look what’s happening now!” And they finally did a biopsy.~ Aural ~ -
This must have been really stressful @lms1208! I hope a diagnosis has allowed you to get the answers you wanted.
Scope -
Hi @lms1208 and welcome to the community.
As you can say - LSC is quite a rare condition and unfortunately not one we come across a great deal here, but members such as @Romaine, @karrie, @OutOfTheWorld99, @jake4dsm and @kate35 have all reported living with Lichen sclerosus.
I hope someone else will come forward with their experiences though and in the meantime you're more than welcome here.
Community Manager
Scope
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 104 Games lounge
- 416 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 776 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 615 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.5K Talk about money
- 4.3K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.3K Talk about your impairment
- 1.8K Cerebral palsy
- 868 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 319 Sensory impairments
- 824 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.