Struggling a bit today

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Beanie71
Beanie71 Online Community Member Posts: 27 Connected
Hi All
Struggling a bit today  

6 weeks in to taking Methotrexate and week 4 of Steroids, pain has eased somewhat but at the moment I'm struggling with a lot of aching in my hips and ankles and overall fatigue, feel I have no energy for anything and when i do try it totally knocks me the following day, am i expecting to much to soon ?  

I've another consultant appointment this week and was wondering if i need anything else adding xx
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Comments

  • vikingqueen
    vikingqueen Scope Member Posts: 1,822 Championing
          Methotrexate can take up to 12 weeks before you see a difference so try and bear with it, the fatigue is another kettle of fish. I still struggle some days and i am 3 years in taking methotrexate, it affects people in different ways. 
           Let your consultant know everything you have written on here plus anything else  you have worries over, that is what they are there for. Try speaking to your doctor as well, you may need painkillers in addition to the steroids. 
  • Beanie71
    Beanie71 Online Community Member Posts: 27 Connected
    Thank you @vikingqueen @woodbine
    I will have a chat with my GP & Consultant  :)

  • vikingqueen
    vikingqueen Scope Member Posts: 1,822 Championing
         Hope you are feeling better soon
  • Beanie71
    Beanie71 Online Community Member Posts: 27 Connected
    Thank you x

  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,611 Championing
    Good luck with the upcoming appointment @Beanie71
  • janer1967
    janer1967 Online Community Member Posts: 21,922 Championing
    Hi @Beanie71 Sorry to hear you are struggling and hope the meds soon kick in, hopefully you can get some advice at your appointment good luck fingers crossed for you
  • Beanie71
    Beanie71 Online Community Member Posts: 27 Connected
    @janer1967 Thank you x

  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Hi @Beanie71, just wanted to check in to see how you were doing. :)
  • Beanie71
    Beanie71 Online Community Member Posts: 27 Connected
    Hi @Chloe_Scope

    Thank you for your message, feel a bit brighter this morning  :)
    Hope your keeping well xx
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    Glad to hear that @Beanie71! Wishing you a lovely day. :)
  • vikingqueen
    vikingqueen Scope Member Posts: 1,822 Championing
          Good morning @Beanie71, did you get to see, or speak to your consultant this week? I hope you are feeling better than you did x
  • Beanie71
    Beanie71 Online Community Member Posts: 27 Connected
    Hi @vikingqueen
    I spoke to a consultant on Thursday, unfortunately it wasn't my usual Lady, I waited an hour and half before he called and he didn't even apologise which I thought was rather rude, but hey.......  No change with the Meds, 20mg Methotrexate once a week and the usual anti-inflammatory med and pain killers, still suffering with the aching hips and ankles which is draining.
    Some days can be a real struggle but we have to put a brave face on don't we.
    How are you doing x

  • vikingqueen
    vikingqueen Scope Member Posts: 1,822 Championing
          I'm doing ok thank you, i have a brilliant rheumy team who i can call anytime, not sure i would tolerate my consultant being rude, i would have to say something..
          If you are still struggling with pain speak to your doctor, you might need different pain killers, it took a while to get mine right but touch wood all is good for now.
          learn to rest when you need to, your body will tell you when it's had enough, nothing wrong with an afternoon nap if you can :)
  • Beanie71
    Beanie71 Online Community Member Posts: 27 Connected
    Thank you @vikingqueen
    I've a great relationship with my GP so she is giving me a lot of support thank goodness.

    xx
  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    It's really great that you have such a good relationship with your GP @Beanie71 :) How are you getting on now? Any change? 
  • Beanie71
    Beanie71 Online Community Member Posts: 27 Connected
    Hi @Tori_Scope

    Hips and feet still aching a lot, cannot do a great deal without them aching afterwards, fatigue too but still going 
    How are you doing ? x

  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    I'm sorry to hear that @Beanie71 :( Do you think there's anything else your health team could do to help you manage the pain? 

    I'm fine, thank you for asking :) Busy day!
  • Beanie71
    Beanie71 Online Community Member Posts: 27 Connected
    Im going to give them a call tomorrow and see.
    Thank you x

  • Tori_Scope
    Tori_Scope Scope Posts: 12,468 Championing
    I hope the call goes well today @Beanie71 :) 
  • Chloe_Alumni
    Chloe_Alumni Scope alumni Posts: 10,506 Championing
    I hope that goes okay today @Beanie71. :)