Hi my name is Sasha21

Sasha21

Just looking for company and get help and advice on being on here. Give help if anyone needs it. I have been told I have got hereditary spastic paraplegia,fibromyalgia, early menopause, diverticulitis, irritable bowel syndrome and probaly other stuff going on as well. Been ill all my life. 

janer1967

Hi and welcome yo the community 

And for telling us about yourself 

Feel free to join in or ask any questions 

Sasha21

Hi, thanks

Ami2301

Welcome to the community @Sasha21 how are you doing today?

Sasha21

thanks in alot of pain.

Ross_Alumni

Hello @Sasha21

Welcome to the community and thanks for introducing yourself. 

I'm not sure how much of the community you have browsed, but the virtual coffee lounge is always a good place to start  

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Sasha21

thanks nice to meet you.

Tori_Scope

Welcome to the community @Sasha21 I'm sorry to hear you're in a lot of pain. Have you spoken to your doctor, a specialist, or a pain management team about getting the pain under control? Is it a new pain, or something you often experience? 

Please do give us a shout if you need any support navigating the site.

Sasha21

It is something I often experience but just seems a bit worse at the moment. I am waiting to hear back from my Doctors.

Tori_Scope

I'm glad you've spoken to them about it @Sasha21. Fingers crossed they'll get back to you soon. Did you contact them regarding all of your conditions? Are you under any specialist teams?

Sasha21

Not under any special teams. They got back to me had a load of blood tests today.

Tori_Scope

Hopefully the blood tests will give some kind of indication of what might be happening @Sasha21. Are you able to do anything to distract yourself from the pain at the moment? 

Sasha21

Not really as no matter what I do it hurts. How are you? Thanks for asking by the way nice to have someone to talk too.

Tori_Scope

I'm sorry to hear that @Sasha21. I know you said you weren't under any specialist teams at the moment, but have you ever asked to be referred to a pain management clinic? They might be able to help you get the pain a little more under control. 

That's okay, all of our members are here for you I'm pretty well, thanks for asking! Plodding my way through lockdown. 

Do you know when you might get the results from your blood test? 

Sasha21

i tried that but no luck with helping the pain.Next week re blood tests.
Glad to hear your prettty well.

Sasha21

blood results normal dont know what to do now as I wasnt just asking about the pain I was asking about swelling as well. But just got an email that you cant reply saying we cant do anything about the pain see a physio. That was it.