'The Elusive Kebab' Intro from russellrobert9 (inc blog) — Scope | Disability forum
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'The Elusive Kebab' Intro from russellrobert9 (inc blog)

russellrobert9
russellrobert9 Member Posts: 4 Listener
edited June 2021 in Start here and say hello!

Hello.  I’d like to introduce myself as Robert Penny*, aged 62, white, male.  I have had a disabling condition since November 2017.   I had what I thought was a problem with my lower back, but it turned out to be metastatic prostate cancer.  The cancer cells had spread to my spine and overnight I became paraplegic.  Since then, I have lived in a care home for the last 3 years.  I use a power chair and get out as much as I can (or did prior to lockdown).  I am fortunate to still have use of my mental faculties and enjoy doing cryptic crosswords, quizzes, word puzzles.  I also enjoy reading – mainly fiction.  I’m ashamed to say that until I became unwell, I had never read a book by a female author (at least as an adult; as a child I’m sure I read Frankenstein by Mary Shelley and Black Beauty by Anna Sewell.   Friends tell me I have still retained my dry sense of humour.   I’ll let you be the judge of that.  I’ve managed to write a blog, which people say makes them laugh, and also gives them insight into the challenges faced on a daily basis by someone with a disabling condition.  I joined Scope because I wanted to make new friends who are in a similar position to me.  Here’s the link, please feel free to peruse.  http://robertsramblings2.blogspot.com/   

 

*Robert is my middle name.  Penny was a shortened version of the first name of my sister, of whom I remember very little (she died in early childhood)


Comments

  • Ross_Scope
    Ross_Scope Posts: 7,487 Scope online community team
    Hello @russellrobert9

    Welcome to the community and thanks for sharing your blog, how long have you been writing? 

    You've certainly been through a lot, and I imagine it helps to express your feelings and convey your experiences in writing.

    Just to let you know, I've removed details of what might be your full name / personal details from your post, in accordance with our community guidelines.
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  • russellrobert9
    russellrobert9 Member Posts: 4 Listener
    edited June 2021
    Thanks for this Ross and for your kind words.  I've only started writing when I developed this disabling conditions, in 2017.  Yes, you're right, I often struggle with face-to-face contact, unless I know them well, so writing is a good way for me to communicate and express my feelings.  Reading, if not writing, has been part of my life from very early on.  Obviously I don't want to give my full name/personal details, but my full name is (Removed by moderator, full name) .  Perhaps I should also change my Username from 'Russellrobert9'?  Ironically I chose (Removed)  to avoid giving (Removed)  and using 'Penny' was a tribute to my sister.  So on this basis I would ask you to reconsider your editing decision (or perhaps suggest a compromise - I will also think on), and also advise on suitability of my Username.  If you decide that there is no choice than to keep the edited changes, then of course I will abide by your decision.  :)

  • Ross_Scope
    Ross_Scope Posts: 7,487 Scope online community team
    Thanks @russellrobert9, I have re-instated part of your original comment and pologies for any confusion. I also removed your full name from your most recent comment.

    If you want us to change your username then please email [email protected] and let us know what you'd like your new one to be :) 

    It's super to hear of the benefits reading and writing have brought you, I'd encourage you to keep it up!
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  • russellrobert9
    russellrobert9 Member Posts: 4 Listener
    Thanks Ross, that's fine.  I'll keep my username as it for now.  My next task is to ensure I make time to read introductions from others who have recently joined (and who will join in the future).  Should be easier to find time once Euros are over - spending too much time watching the football, but at least its only every 4 years!  :) BW Russell
  • Ross_Scope
    Ross_Scope Posts: 7,487 Scope online community team
    That sounds super @russellrobert9, I'm sure other new members will be grateful to hear from you on their posts. We do have a discussion dedicated to the Euros if you want to get involved, it's in the coffee lounge section.
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  • Tori_Scope
    Tori_Scope Posts: 9,644 Scope online community team
    It's great to see that you made it onto the community @russellrobert9 :) Please feel free to have a look around, and let us know if you need anything. 

    Have you been enjoying the Euros? What did you think of the games last night? 
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  • chiarieds
    chiarieds Member, Community Co-Production Group Posts: 12,478 Disability Gamechanger
    Hi @russellrobert9 - & welcome to the community. Enjoying your blog, thank you. I've read 'The Elusive Kebab,' & will come back to read more. :)
  • russellrobert9
    russellrobert9 Member Posts: 4 Listener
    Thanks chiarieds.  I'm glad you are enjoying the blog. :)

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