If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Hi, my name is lillysavage!

lillysavage
Member Posts: 5 Listener
Hi pleased to be here.
I’m not one for posting a lot but do read comments etc.
I’ve had ME/CFS for almost 25yrs but had to fight for 12yrs for a diagnosis.
I was also diagnosed with fibromyalgia around 4yrs.
last year I was diagnosed with vasovagal episodes.
Just a few weeks ago diagnosed with osteoarthritis in my left knee.
I’m also asthmatic.
I also suffer with migraines.
I also have a prolapsed bladder.
Looking forward to seeing what this group has to offer.
thanks for reading.
I’m not one for posting a lot but do read comments etc.
I’ve had ME/CFS for almost 25yrs but had to fight for 12yrs for a diagnosis.
I was also diagnosed with fibromyalgia around 4yrs.
last year I was diagnosed with vasovagal episodes.
Just a few weeks ago diagnosed with osteoarthritis in my left knee.
I’m also asthmatic.
I also suffer with migraines.
I also have a prolapsed bladder.
Looking forward to seeing what this group has to offer.
thanks for reading.
Comments
-
Hi and welcome to the community Feel free to join in or ask any questions
-
Thank you.x
-
Welcome to the community @lillysavage
It's really good to have you on board!
Thanks for telling us a bit about yourself and your conditions. Are you managing living with those conditions okay? I'm sure it must be difficult at times, especially with the new diagnosis.
We discuss all sorts of things here on the community. To get a taste, you might like to take a look through the list of the most recent discussions. The coffee lounge is also a good place to start, as it'll allow you to get to know other members through casual conversation and games. If you're not sure where to start and want to browse to start with, you can view a list of our categories of discussion here.
I look forward to seeing you around! Please don't hesitate to give us a shout if you need anything.Online Community Coordinator, she/her
Concerned about another member's safety or wellbeing? Flag your concerns with us.
Want to tell us how we're doing? Complete our feedback form now. -
Thank you.
my husband is a great support & takes up a lot of the house work etc,he does the shopping too and works a lot.
most days are spent just resting as my energy levels are so low I struggle to stay awake.x
-
Welcome to the community @lillysavageDisability Gamechanger - 2019
-
Thank you.x
-
Welcome to the community from me too @lillysavage I hope you enjoy being part of this friendly group.
-
Thank you.x
Brightness
Categories
- 55.4K All Categories
- 10.8K Start here and say hello!
- 5.3K Coffee lounge
- 4.1K Disability rights and campaigning
- 1.6K Research and opportunities
- 160 Community updates
- 12.3K Talk about your situation
- 1.8K Children, parents, and families
- 845 Work and employment
- 601 Education
- 1.2K Housing, transport, and independent living
- 1.1K Aids, adaptations, and equipment
- 305 Dating, sex, and relationships
- 270 Exercise and accessible facilities
- 22.4K Talk about money
- 2.3K Benefits and financial support
- 4.5K Employment and Support Allowance (ESA)
- 12.9K PIP, DLA, and AA
- 2.7K Universal Credit (UC)
- 4.2K Talk about your impairment
- 1.4K Cerebral palsy
- 710 Chronic pain and pain management
- 720 Rare, invisible, and undiagnosed conditions
- 774 Autism and neurodiversity
- 953 Mental health and wellbeing
- 315 Sensory impairments
Complete our feedback form and tell us how we can make the community better.