burning feet syndrome

maryjane67
maryjane67 Community member Posts: 16 Listener
edited October 2021 in Rare, invisible, and undiagnosed conditions
hi quick up date i have been diagnosed  with burning feet syndrome as well as arthritis in my knees and shoulders  do anybody know if they are linked 

Comments

  • chiarieds
    chiarieds Community member Posts: 16,360 Championing
    Hi @maryjane67 - as far as I'm aware, the cause of this is often unknown, & I don't think arthritis & burning feet syndrome are linked. I would suggest you discuss this further with your GP or specialist, however.
    Meanwhile, there's some info here: https://www.nhs.uk/conditions/erythromelalgia/   & the website mentioned there gives useful advice & some understanding of the condition, &, importantly, what may help. Please see: https://erythromelalgia.org/    altho it's USA-based, as this is a somewhat rare disorder, they have members from 17 countries.
  • maryjane67
    maryjane67 Community member Posts: 16 Listener
    hi thank you  my doctor does not seem that interested i have this for about that last 3.4 months also i have this feeling in my arms ,and bit in my hands i just thought it was due to to my arthritis in my joints ache and pains from that . thank you  chiarieds
  • chiarieds
    chiarieds Community member Posts: 16,360 Championing
    edited October 2021
    You're welcome @maryjane67 - I'm sorry your GP seems disinterested. I wonder if you could speak to another GP to see if they're more helpful. Meanwhile, there's a guide for patients from the 2nd link I gave above. Please see: https://erythromelalgia.org/wp-content/uploads/2017/09/TEA-PatientGuideBook-1.pdf

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