Hi, I'm Ioana31! My daughter has a very rare gene mutation (SMC1A) and global development delay

Ioana31

My daughter, Sara is 8 year old and her diagnostic is a very rare gene mutation (SMC1A) and global development delay. 
Thank you! 

chiarieds

Hello @Ioana31 - & welcome to the community. Thank you for joining, & telling us about your daughter. How are you & your daughter doing? Her problems must come with difficulties, but Scope has some services that may support you too as a parent, which you may find helpful. Please see: https://www.scope.org.uk/family-services/     Please also chat here too at any time.

Ross_Alumni

Hello @Ioana31 and welcome to the community, how are you today?

janer1967

Hi and welcome to the community from me too