Hi, my name is lin0804! I have Orthostatic tremor

lin0804

Hi I have Orthostatic tremor, leg tremors and falling backwards when standing, need to hold onto things so I don't fall, it is a very rare condition and I am coping as best as I can. 

lin0804

Hi Teddybear12

Thanks for the reply?  It would be great if she gets in touch. Hope she has found out more information from her consultant, then she can get a better insight into what going on.

 I'm new to the site so I'm looking forward to chatting with others to give and hopefully get support.. 

chiarieds

 Hi @lin0804 - & welcome to the community. I remember chatting with @Roseann21 about orthostatic tremor, & I found a couple of websites about it, which you may have seen on that thread. I also noticed you've left a post for her, but I've just looked, & she hasn't been active since the end of August. However you replying on that thread, & me trying here (by putting an @ sign in front of her name) may mean she gets an email notification. I do hope so, as she would really like to chat with someone else that has this rare disorder.

Anyway, it's great you've joined us all, & I look forward to seeing you around the forum.

lin0804

Hi @chiarieds
Thanks for the information, I will try the @ before and hopefully she gets in touch, it would be great if she did. 
Thanks for your help, I'm not used to the chats yet but I'm sure I will get the hang of it! 
I have seen the posts on the other sites they have some good information there, thanks again?

chiarieds

You're very welcome @lin0804

Ross_Alumni

Hello @lin0804

Welcome to the community, it's good to see you join us. 

I'm sure you will be able to receive support from other members, and I look forward to seeing you getting involved. If you have any questions then don't hesitate to ask.