Hi, my name is lin0804! I have Orthostatic tremor — Scope | Disability forum
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Hi, my name is lin0804! I have Orthostatic tremor

lin0804
lin0804 Member Posts: 5 Listener
Hi I have Orthostatic tremor, leg tremors and falling backwards when standing, need to hold onto things so I don't fall, it is a very rare condition and I am coping as best as I can. 

Comments

  • Teddybear12
    Teddybear12 Member Posts: 1,264 Pioneering
    Hi @lin0804 I hope you enjoy being part of the Community. If you have any questions please ask. There is one other person on the site with the same condition as you and I noticed you have already responded to them. I hope you are able to get some support from the Community.  
  • lin0804
    lin0804 Member Posts: 5 Listener
    Hi Teddybear12
    Thanks for the reply👍  It would be great if she gets in touch. Hope she has found out more information from her consultant, then she can get a better insight into what going on.
     I'm new to the site so I'm looking forward to chatting with others to give and hopefully get support.. 
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,996 Disability Gamechanger
     Hi @lin0804 - & welcome to the community. I remember chatting with @Roseann21 about orthostatic tremor, & I found a couple of websites about it, which you may have seen on that thread. I also noticed you've left a post for her, but I've just looked, & she hasn't been active since the end of August. However you replying on that thread, & me trying here (by putting an @ sign in front of her name) may mean she gets an email notification. I do hope so, as she would really like to chat with someone else that has this rare disorder.
    Anyway, it's great you've joined us all, & I look forward to seeing you around the forum. :)
  • lin0804
    lin0804 Member Posts: 5 Listener
    Hi @chiarieds
    Thanks for the information, I will try the @ before and hopefully she gets in touch, it would be great if she did. 
    Thanks for your help, I'm not used to the chats yet but I'm sure I will get the hang of it! 
    I have seen the posts on the other sites they have some good information there, thanks again😊
  • chiarieds
    chiarieds Community Co-Production Group Posts: 10,996 Disability Gamechanger
    You're very welcome @lin0804 :)
  • Ross_Scope
    Ross_Scope Posts: 5,377

    Scope community team

    Hello @lin0804

    Welcome to the community, it's good to see you join us. 

    I'm sure you will be able to receive support from other members, and I look forward to seeing you getting involved. If you have any questions then don't hesitate to ask.

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