Hi, we are Brookefamily and our 4 month old was diagnosed with Erb's palsy and a stroke — Scope | Disability forum
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Hi, we are Brookefamily and our 4 month old was diagnosed with Erb's palsy and a stroke

Brookefamily
Brookefamily Member Posts: 4 Listener
Following his horrific birth 
He has left sided weakness and we are doing everything we can to help our son with rehabilitation and treatment 

Comments

  • janer1967
    janer1967 Member Posts: 13,418 Disability Gamechanger
    Hi and welcome to the community 

    I'm sorry to hear about your son there is lots of support here for parents have a look in the parents and carers section 

    There is also a programme called navigate on here to help support parents 
  • Teddybear12
    Teddybear12 Community Co-Production Group Posts: 2,204 Pioneering
    Hi @Brookefamily Welcome to the Community. I hope the support that you can look at under the parents and carers section will help you. So sorry to hear about your son. Take care
  • Brookefamily
    Brookefamily Member Posts: 4 Listener
    Thank you both xx
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Community Co-Production Group Posts: 945 Pioneering
    Hello @Brookefamily

    Thanks for reaching out to us. I always appreciate how much courage it must take to reach out.

    Sorry to hear that things have been really tough for you and your son. It must be really worrying for you.

    Unfortunately, this is not my area of expertise but it seems the wonderful @janer1967 and @Teddybear12 have already signposted you to some potential support.

    Have you tried the navigate support for families yet? If so, how have you found it?

    Is there anything else we can do to support you?

    We are here for you and we care about you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities, and assistive technology. Pronouns: She/her.
  • Grandma1
    Grandma1 Member Posts: 6 Listener
    Dear Brooke family, how on earth did you get a diagnosis so quickly, after 4 months! Bless you all. Sending love & courage. xxxps  have you experienced screaming from baby? Unable to placate, for long periods of time?  Thankyou. 
  • Brookefamily
    Brookefamily Member Posts: 4 Listener
    @Grandma1
    Hello :) his facial and Erbs palsy was diagnosed at birth as be failed some tests for his apgar score. 
    Hes been having physio since he was 3 months but noticed from his movement that it didn't quite fit the Erb's bill so we had ultrasounds xx

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