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mandalin
mandalin Community member Posts: 2 Listener

Hi everyone. First of all sorry if my English isn’t perfect! Im writhing here from Sweden praying and hoping that maybe someone out there recognize my symptoms. I’m a 60 year old woman and I’m been having this “sickness “ for over 20 years , no doctor finds anything wrong whit me . I will try to describe my symptoms for you . In a normal week I can feel perfectly fine maybe 2-3 days , in those days I work out in the gym , planting flowers in my garden , cleaning, cooking ,playing football with my grandkids without any problems at all . But then there is these other days . I wake up feeling like I have the worst hangover you can imaging. (I don’t drink alcohol since many years but remember that feeling) I can’t even walk the stairs without getting out of breath. Nothing helps this days . I can’t understand why I can feel great one day and so sick the other day, or the next. The only thing I figured out is that I have my bad days when I wake up in the night and then goes back to sleep. If I wake up at 4 a clock in the morning and gets up I will have a good day. But if I fall back to sleep and then wake up again at 7-8 in the morning I will be sick all day . If anyone have any ideas or suggestions for me please let me know! I’m starting to lose hope and this is my last desperate try . Thank you for reading. 

Comments

  • poppy123456
    poppy123456 Community member Posts: 57,256 Disability Gamechanger
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    Hi,

    Unfortunately, we are not medical professionals so we won't be able to give you any medical advice, as it's against the rules here. Have you tried speaking to a different Doctor for a 2nd opinion?
    I would appreciate it if members wouldn't tag me please. I have all notifcations turned off and wouldn't want a member thinking i'm being rude by not replying.
    If i see a question that i know the answer to i will try my best to help.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,650 Disability Gamechanger
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    Hello @mandalin and welcome to the community :) 

    Sorry to hear of the symptoms you are experiencing, it must be really frustrating to have seen doctors but never received a definite answer as to what it is.

    When was the last time you saw a doctor about it? Were they able to give any suggestions as to why they couldn't find out what the problem is?


    This is a very supportive and welcoming site to be a part of so I’m hopeful that you’ll find it to be a positive outlet. Feel free to have a look around and get involved wherever you’d like 😊 I have included below a few of the pages I’d recommend having a look through to get used to things:

    • The virtual coffee lounge which is one of our categories, in which we play games and talk about general subjects such as hobbies and interests
    • The recent discussions page, which shows an overview of everything happening across the community
    • The categories page, which shows a full list of discussion groups on the community

    If you have any questions at all then don’t hesitate to ask.


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  • mandalin
    mandalin Community member Posts: 2 Listener
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    Thank you! 
  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,981 Disability Gamechanger
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    You are welcome @mandalin. It is the very least you deserve. If we can do anything else to support you, please don't hesitate to let us know  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
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