Newly Diagnosed ONH

LisaMitch1985

Hi, my 8 month old daughter has recently been diagnosed with bilateral optic nerve hypoplasia. I’m so overwhelmed with everything. I wondered if anyone else has children with the same diagnosis or visually impaired that could offer any advice? Thanks 😊

Ross_Alumni

Hello @LisaMitch1985 and welcome to the community  

It's normal to feel overwhelmed or uncertain when your child receives a diagnosis, I was diagnosed with my sight loss at the age of 7 and my mum was very worried at the time. 

It's important to ensure that you and your daughter receive all the support you need from doctors or specialists at this time while you're going through the process of adapting to the diagnosis. 

Scope also has a range of family services that you can read about over on this page, some of which can be there to support parents of young children. We also have this really useful information page about accepting a child's diagnosis that you might find it helpful to read. 

This is a very supportive and welcoming site to be a part of so I’m hopeful that you’ll find it to be a positive outlet. Feel free to have a look around and get involved wherever you’d like 😊 I have included below a few of the pages I’d recommend having a look through to get used to things:

• The virtual coffee lounge which is one of our categories, in which we play games and talk about general subjects such as hobbies and interests
• The recent discussions page, which shows an overview of everything happening across the community
• The categories page, which shows a full list of discussion groups on the community

If you have any questions at all then don’t hesitate to ask.