Hi, my name is sam, I’m 21 n I have Crohn’s disease

samchaltonnnx
samchaltonnnx Online Community Member Posts: 1 Listener
edited September 2022 in Start here and say hello!
Hey I’m new n have Crohn’s disease 

Comments

  • chiarieds
    chiarieds Online Community Member Posts: 16,682 Championing
    Hi @samchaltonnnx - & welcome to this friendly & supportive community. How are you today? :)
  • Tori_Scope
    Tori_Scope Scope Posts: 12,453 Championing
    Welcome to the community @samchaltonnnx :) Thank you for joining us!

    How do you find living with Crohn's disease?
  • Binky1234
    Binky1234 Online Community Member Posts: 467 Empowering
    Hi Sam I also have Crohns and have had it for over 30 years.

    You could join https://crohnsandcolitis.org.uk/info-support/become-a-member/radar-key

    I have a radar key and I must say it's been worth its weight in Gold as you have the toilet to yourself.

    I'm 99% certain and if your on benefits you get a discount.

    Also you can apply to your local council for a blue badge. The council won't give you a blue badge on your Crohns alone you need to state that you find walking extremely difficult due to joint pain because of Crohns, walking is difficult due to the severe concentration it takes to try and control your bowel not to mention the tummy pain you experience. I have a blue badge via local council it costs me £20.00 every 3 years and again I find my bb my lifesaver especially on hospital appointments etc


    Here is a link how someone with Crohns won their appeal.

    https://www.benefitsandwork.co.uk/news/claimant-who-can-walk-and-run-gets-high-rate-mobility-for-incontinence