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Hi, my name is amziegrace! I just got diagnosed with ADPKD with the variant pkd1

amziegrace

I just got diagnosed with ADPKD with the variant pkd1, and I have several cysts on both my kidneys and liver. Searching for people to talk to that can relate and exchange stories and information.

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Alex_Alumni

Hello @amziegrace and welcome to the Online Community

Thank you for joining, and sharing a bit about yourself and what you'd like to do here.

To help with that I've moved your post over into our rare, invisible and undiagnosed conditions category. I've also marked it as unanswered so everyone can more easily share their thoughts.

How do you find living with ADPKD day to day?

If you'd like to have a look around the rest of the forum please do feel free, here's a few of the best places to get started:

Recent discussions is where you'll find all the latest conversations our members are having
The categories page shows all the different topics for discussion
The virtual coffee lounge is a place to chat, get to know other members, and play games too

I hope this community can act as a place of support for you, and please don't hesitate to reach out if you need anything. I hope you enjoy your time here

Alex

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