Hi, my name is amziegrace! I just got diagnosed with ADPKD with the variant pkd1

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amziegrace
amziegrace Online Community Member Posts: 2 Listener
edited November 2022 in Rare, invisible, and undiagnosed conditions
I just got diagnosed with ADPKD with the variant pkd1, and I have several cysts on both my kidneys and liver. Searching for people to talk to that can relate and exchange stories and information.

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  • Alex_Alumni
    Alex_Alumni Scope alumni Posts: 7,538 Championing
    Hello @amziegrace and welcome to the Online Community :) Thank you for joining, and sharing a bit about yourself and what you'd like to do here.

    To help with that I've moved your post over into our rare, invisible and undiagnosed conditions category. I've also marked it as unanswered so everyone can more easily share their thoughts.

    How do you find living with ADPKD day to day?

    If you'd like to have a look around the rest of the forum please do feel free, here's a few of the best places to get started:

    • Recent discussions is where you'll find all the latest conversations our members are having
    • The categories page shows all the different topics for discussion
    • The virtual coffee lounge is a place to chat, get to know other members, and play games too


    I hope this community can act as a place of support for you, and please don't hesitate to reach out if you need anything. I hope you enjoy your time here :)


    Alex

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