Hi, my name is AliG! Concerns our son is outside the system — Scope | Disability forum
If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.

Find out how to let us know if you're concerned about another member's safety.
Please read our updated community house rules and community guidelines.

Hi, my name is AliG! Concerns our son is outside the system

Options
AliG
AliG Community member Posts: 1 Listener
Hi Everyone. Not sure if this is the right place for me but I hope so🙂 I have a son with Aspergers and quite debilitating OCD. He’s 22. He can work bar work, waiter for short time until the OCD takes over and his masking no longer works. He’s never had any benefits. He is on medication. He refuses help. Our concern is he’s outside the system and basically we (his mum and I) are worried for his long term future.
Thankyou for reading
Tagged:

Comments

  • L_Volunteer
    L_Volunteer Community Volunteer Adviser, Scope Member Posts: 7,978 Disability Gamechanger
    edited November 2022
    Options
    Hi @AliG. Welcome to Scope's forum. It is great to see you have joined us. How are you at the moment? 

    I think the most important thing is that you feel able to reach out to us when you need and want to.

    Please try not to worry too much about where your posts go, we can always help to put posts in the right place if needed.

    You mention your main concern being that your son is outside the system and worried for his long term future. 

    Could you tell us more, such as what system you would like your son to be inside and which part of his long term future you are mostly worried about?

    I just want to make sure we provide you with the support you need and deserve. We are all here for you and listening to you  :)
    Community Volunteer Adviser with professional knowledge of education, special educational needs and disabilities and EHCP's. Pronouns: She/her. 

    Please note: if I use the online community outside of its hours of administration, I am doing so in a personal capacity only.
  • Tori_Scope
    Tori_Scope Scope Posts: 12,493 Disability Gamechanger
    Options
    A warm welcome to the community from me too @alig :) Thank you for posting here, and for telling us about your son.

    The worry over what'll happen to your child in the future is a common one, so you're certainly not alone. I've moved your post into our children, parents, and families category. I hope that you can connect with some other parents in a similar position!

    Do you have any specific concerns around his long term future? For example, are your concerns about him supporting himself financially, or being able to take care of himself by completing daily tasks, and so on.
    National Campaigns Officer, she/her

    Check out our Playground Accessibility Map

Brightness

Complete our feedback form and tell us how we can make the community better.