Hi, my name is Bluey32!
Options
Bluey32
Community member Posts: 34 Connected
Hi all
Comments
-
Thank you steve51 I will keep you in mind ?
-
Hi @Bluey32 welcome to the community! Would you like to tell us a bit about yourself?Disability Gamechanger - 2019
-
Hi ami2301 I don't know where 2 start lol
I'm 51 female. I've must been diagnosed with abdonino phrenic dyssynergia I have had to stop work as it's too my h for me x -
You're the first person I have come across that has abdonino phrenic dyssynergia! I've just read your other post where you explain a bit more about it, it sounds very painful! Are they able to help with the pain at all?Disability Gamechanger - 2019
-
I take 8 50g tramadol a day & 8 30g codeine a day.
There is no cure as yet just pain relief. X -
It is a rare condition & I don't know if anybody in the UK has it apart from me x
-
I have put my profile pic up so u can see my big belly x
-
I've just had a look online, I've found the IBS Network which may be of use to youDisability Gamechanger - 2019
-
It's nothing to do with ibs or bowel. It's my diaphram. Z
-
One of the points they make mentions Abdonino Phrenic DyssynergiaDisability Gamechanger - 2019
-
Yes I've just read it. My specialist said I don't have ibs/crohns. There are only 2 specialist for my condition in the UK. London & newcastle upon Tyne. I just wish they Cud find a cure for me as I'm in a lot of pain most days x
-
Welcome to the community @Bluey32!
I've never come across Abdomino Phrenic Dyssnergia before. Have you spoken to anyone about better pain relief?Community Manager
Scope -
No my GPS are scratching there heads Cus they have never herd of my condition. I'm going 2 ask my specialist about better pain relief Cus when I'm really badly in pain I go 2 the gp & they send me 2 hospital & they give me morphine then discharge me after a couple of days x
Brightness
Categories
- All Categories
- 13.1K Start here and say hello!
- 6.7K Coffee lounge
- 70 Games lounge
- 386 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.3K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 770 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 589 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 739 Transport and travel
- 31.8K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.2K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 871 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 819 Rare, invisible, and undiagnosed conditions