ageing with cerebral palsy

ruth1

Hi 

I am 26 years old and I have told that I could arthritis  as my blood test has back I have inflammation. I am waiting for next blood test appointment. 

Richard_Scope

Hi @ruth1
Have you been experiencing more pain in your knees, and ankles?

Arthritis is a common Post-Impairment Syndrome symptom for people like us living with cerebral palsy. But it is best to wait for your next blood test.

ruth1

hi Richard 
I do experience severe pain in both of my knees and my hips.

ruth1

I also experience severe pain in my neck and lower back, shoulders, my hips, my knees and in my ankles too. which my doctor knows about it now.

ruth1

I have recently diagnosed with Dystonia but I do not qualify for any medication but thankfully UCLH Cerebral Palsy Clinic is helping me.

Jimm_Alumni

Hey @ruth1, sorry to hear you don't qualify for any medication. It's good you are still getting help though, have the Cerebral Palsy Clinic given you any idea of what sort of help they can provide?