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A message from Scope's Partnership Team-An opportunity to be Premiership Rugby next charity
Do any of our CP Network members play or enjoy watching Rugby? Scope is writing an application to be Premiership Rugby's next charity. They would love to include a story or quote from someone in our Network about their relationship with Rugby. Inclusivity is a key value of the Premiership and there are lots of…
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Opportunity to participate in research: Living with cerebral palsy and pain?
Do you live with cerebral palsy and experience pain? Rebecca Taylor and her supervisor Ellen Henderson, from Ulster University would like to hear from you. The university are carrying out research project to understand the impact of cerebral palsy and pain. Sara Edwards Scope Cerebral Palsy Specialist
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Wobbling Through 2024: The Positive Stories
The new year comes with new reflection and solitude. I want to highlight some positives within the cerebral palsy community in 2024. Having worked in my role for 2 months, it is easy to get fixated on the challenges and barriers people with CP face. The individual and institutional apathy we see daily. This is a reminder…
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Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025
The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025. We know that 86% or one third of people with cerebral palsy develop epilepsy. Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someone’s life. It can lead to feelings of…
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Reflections on managing change as a disabled person.
When I reflect on 2024, I recognise it’s been a year where significant changes have been a constant in my life. Some of these events have been stressful and it’s been a rollercoaster of emotional highs and lows. It’s important to acknowledge we all have different stress thresholds. Some people can manage change. Others…
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Neurological conditions and access to sport
Sheffield Hallam University Sport and Physical Activity Research Centre is conducting research in playing sports with adults of neurological conditions. Please see the flyer attached for more information about the study: Email: A.Abiodun@shu.ac.uk to participate
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The Cerebral Palsy Charter – World CP Day 2024
RECOGNISING CEREBRAL PALSY AS A LIFELONG CONDITION AND THEREFORE … Enabling access to the framework used by GPs to identify individuals with long term conditions, and offering annual medical reviews. Implementing systematic reviews leading to specialist neuro rehabilitation pathways for health interventions and for…
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Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…
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Investigation of the physical and social Impact of living with hemiplegia.
Do you or your child live with hemiplegia? Have your voice heard UCL is conducting a research study: Investigation of the physical and social Impact of living with hemiplegia. We need adults (18+) as well as parents of children with hemiplegia (0-17 years). The purpose of the study is to hear from the population themselves…
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral Palsy Lucy JamesCerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feeling…
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Maternity Care for women with CP: The RICH Project
We need two more women to join the study. Can you help? RICH Study - The University of Nottingham RIghts and CHoices for women with cerebral palsy: A qualitative studyto understand what works in the provision of their maternity care Purpose of the study: 1. To find out about the reproductive choices and experiencesof women…
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Research study on CP and Mental Health University of Surrey
We are hoping to interview about 15-20 participants with the following criteria: - Be over 18 years old- Be fluent in English- Live with CP- Not currently receiving any form of psychological therapy- Identify as having lived experiences of mental health difficulties related to living with CP- Access to a stable internet…
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Living Healthy Lives: Exploring the effects of growing older with cerebral palsy
For the last 2 years, Scope has been working with Dr. Sonali Shah and the University of Nottingham to understand the effects of cerebral palsy (CP) as people grow older and understand their needs and access to health services as they age. The project was the first and largest UK study about ageing with CP and healthcare…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Scope's Cerebral Palsy Network
The Cerebral Palsy (CP) Network is a group of people with lived experience of CP. The network supports the cerebral palsy community in England and Wales. Who can join? You can join the network if you: * are 18 years or over * have lived experience of CP, or * support someone with CP. Including family, friends, partners or…
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Our Next Welcome Café is Monday 9th of December 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range to…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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In case You Missed it. Spasticity Management with Dr Val Stevenson and Bobath Video
Hello from The Bobath Centre, We wanted to take a moment to thank you for being a part of our Adult meetup with Dr Valerie Stevenson about managing spasticity in CP. We are grateful to Dr Stevenson for her time and are pleased that you were able to join us. The feedback we have received has been very positive and we hope…
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Mental Health and Cerebral Palsy
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your family, has a mental health issue, you are not alone. Mental and physical health are deeply interconnected. While chronic…
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A heartwarming story from Asda's Stockton store
Man with cerebral palsy steps in to help young boy with cerebral palsy. When an eight-year-old boy with cerebral palsy wasn’t sure if he had enough money to buy a big cuddly toy from our Stockton store, checkouts colleague Paul stepped in to help pay for it. Paul, who has cerebral palsy himself, said: "I told the boy it…
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Mounjaro
Suggested by a senior staff nurse I would benefit by going onto Mounjaro due to me being obese and being a diabetic. Clinician I spoke to gave me the impression I would not be able to. If this is the case, do I have any redress?
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My New GP is refusing to prescribe...
Hi, I wasn't sure where to turn or who to talk to about this so I thought the best place to start was here. I have just recently changed to a new gp practitioner due to moving areas. I was due a repeat prescription and as I am new I had to have a phone consultation for my first prescription. A GP phoned me and I told her…
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Atherton man wins world record after half marathon with cerebral palsy
From Leigh Journal.. By Conal Cunningham, Senior Reporter Man smashes world record after running half marathon with cerebral pals has been on an incredible journey from learning to walk to earning a world record for his half-marathon time. Diagnosed with cerebral palsy at one-years-old, Harvey Rowson's family was told that…
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Correct version of Cerebral Palsy Awareness Training for Swimming!
Hi Everybody, Please IGNORE the 1st Post I sent on this Subject, sorry! 😥 Please could you all Sign My Petition, please? 🤔 Thanks! 🥰 💖 😃 👍 It's about all Swimming Instructors having an Award to understand how Cerebral Palsy affects movement in Swimming & how to overcome these Challenges so the Swimming Instructors can work…
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Power Hockey League dates announced
We’re delighted to announce the dates and locations for the 2025 British Power League! This year, we’re going to have teams from across the country playing in Northern and Southern Conferences. The Southern Conference will take place on 23 March at Goals Beyond Grass in Gloucester (GL3 1HX). The Northern Conference will…
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The Traitors contestant shares disability during physical trial
Jake confided he has cerebral palsy after he struggled to carry the heavy statues in the latest mission. Albertina Lloyd·Contributor. Yahoo News. What did you miss? The Traitors contestant Jake confided he has cerebral palsy and growing up he has learned not to be ashamed to ask for help. In the latest episode of the…
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Man's first job inspires a career in the theatre
A 28-year-old man with cerebral palsy who has been employed for the first time said it had given him the confidence to follow his dream of working in theatre. BBC News Biggleswade man's first paid job, inspires new career in the theatre Sara Scope Cerebral Palsy Specialist
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Join us for the next CP Network meeting this Wednesday, 15 January, from 6 to 7 PM
I hope you can join us this Wednesday😀! Julian Fraser and Claire Shutes from the Almond Tree Foundation ran 3 wellbeing workshops for the CP Network in November 2024. Session 1: Wellbeing is part of our nature and always available. Session 2: The role of thought and how life works from the inside out. Session 3: What does…
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I Tried Meditation for My Depression—Here's What I Learned
Article from Verywellmind.com by John Loeppky Disclaimer Meditation can help some people mitigate their depression symptoms. According to experts, using meditation as a form of treatment should be in collaboration with your care team and should not be considered a one-stop-shop solution to mental health conditions. I don’t…
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Community paediatrics rejecting baby with CP
I am a foster mum. Baby R is with me, 3 months old with emerging spastic cerebral palsy following birth trauma.., community peads team rejected him saying he needs acute care, ( as possibly I am Seeing vacant episodes and spasms). in the last 3 weeks we have visited 4 nhs hospitals and had 1-4nights in 2 of them… acute…
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Zoom socials, activities and interests
Hello. Does the CP network do zoom meet ups for socialising and sharing interests and potentially doing an activity together eg meditation, discussions, hobbies etc. Find it really hard to find accessible hobbies and can feel quite isolated. I know that there were similar groups in the lock down.
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Government announces UK Neuro Forum
Andrew Gwynne MP, Parliamentary Under-Secretary of State at the Department of Health and Social Care, has announced a new UK-wide Neuro Forum will be set up to find ways to improve care and support for people affected by neurological conditions. This landmark announcement follows years of campaigning, calling on the…
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CP & surgery
Hello, I'm new to the forum. My husband (37) has Spastic Diplegic CP and is independent. He's been talking to surgeons about possible ankle surgery (fusion etc) to straighten up his ankle. Does anyone have any experience/advice around this? Can anyone recommend any good surgeons in the South East of England who have…
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Muscular Dystrophy; The struggle to plan an accessible Christmas party.
Cerys Davage a journalist at Newyddion S4C reports on her experiences of trying to find an accessible venue at Christmas. Disability: My struggle to plan an accessible Christmas party - BBC News
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Apologies! 🙄
Hi Everyone at the Cerebral Palsy Network, I'm very sorry, I've to re-post this, but a Friend accidentally gave Me the wrong info but this is the right info, I still wish I'd partied more, 🎉 🥳 🎉 studied less, 📚 made, kept intouch 📱with Friends at B.C. & much to the despair of My Parents spent My College years living like…
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Jean Martin Championing cycling as a lifelong mobility aid
The CP Network's very own Jean Martin has been named one of the 100 Women in Cycling 2024 Jean has been involved with Scope since its creation and has been cycling for almost as long! Jean has been cycling for nearly seven decades, starting with a tricycle chosen for her as a child with cerebral palsy to develop her…
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Former Paralympian realises lifelong dream to sing
Simon Thake BBC News, East Midlands A former Paralympian has set her sights on a new chapter in her life - music. Zoe Edge, from Derbyshire, was born with severe athetoid cerebral palsy, external, but she does not see her disability as a limitation. She won a silver medal in boccia at the 1996 Paralympic Games and has gone…
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End of an era for Cerebral Palsy Cymru
Glenys Evans, founder of Cerebral Palsy Cymru retired in November 2024. Thirty five years ago, Glenys was one of a group of parents who started a specialist therapy centre in Whitchurch, Cardiff for children with cerebral palsy. She has been involved in the centre, now based in Llanishen for all of those 35 years. Sadly…
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RICH: RIght and CHoices for expectant mothers living with CP
In January 2024 Scope and the University of Nottingham collaborated to find out about the reproductive choices and experiences of women with cerebral palsy during pregnancy, childbirth and the postnatal period. These are the FINAL resources we developed as part of the NIHR RICH project around the provision and experiences…