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CP Network and Epilepsy Action Collaboration-Interview with Jan Paterson Epilepsy Action
As part of Cerebral Palsy Awareness month, we are discussing CP and co-existing conditions. Janet Paterson from Epilepsy Action Cymru is hosting an insightful presentation on March 12 2025, "Epilepsy-It's not one type of seizure." Please register at to attend this event. I recently interviewed Jan where we discussed her…
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BBC Reporter spent six hours on floor of accessible toilet
Spending six hours on the floor of a nightclub toilet wasn't how I imagined my evening out would go. Matthew Bassett from BBC Wales reports on the lack of accessible toilets and investigates the general unhygienic state of the facilities. BBC Wales Disability
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Join us next week to mark Cerebral Palsy Awareness Month 2025
Join us next week Wednesday 5 March 2025 to mark Cerebral Palsy Awareness Month. We are excited to welcome a range of inspiring speakers who will share their personal stories of living with cerebral palsy. They will offer insights into the challenges they face and the triumphs they achieve, giving us a deeper understanding…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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Exciting Event with Cerebra and Pedal Power in Cardiff
You’re invited to an exciting day of fun, community, and celebration at the Relay Your Way launch event being held at Pedal Power in Cardiff on Saturday 8th March. This free, family-friendly event marks the official public announcement of Relay Your Way. Created by the national children's charity, Cerebra, Relay Your Way…
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Exciting research project. Ulster University. Your Voice on Pain. Take part.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) compared to those without the condition. Rebecca's personal…
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Interested in PE for Cerebral Palsy?
Participants are needed for a study with Ulster University. They would like to understand the experiences of PE for children with CP. If you are interested please email:Leydon-C1@ulster.ac.uk
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.…
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025
The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025. We know that 86% or one third of people with cerebral palsy develop epilepsy. Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someone’s life. It can lead to feelings of…
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Reflections on managing change as a disabled person.
When I reflect on 2024, I recognise it’s been a year where significant changes have been a constant in my life. Some of these events have been stressful and it’s been a rollercoaster of emotional highs and lows. It’s important to acknowledge we all have different stress thresholds. Some people can manage change. Others…
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Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral Palsy Lucy JamesCerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feeling…
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Living Healthy Lives: Exploring the effects of growing older with cerebral palsy
For the last 2 years, Scope has been working with Dr. Sonali Shah and the University of Nottingham to understand the effects of cerebral palsy (CP) as people grow older and understand their needs and access to health services as they age. The project was the first and largest UK study about ageing with CP and healthcare…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Our Next Welcome Café is Monday 10th of March 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range to…
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In case You Missed it. Spasticity Management with Dr Val Stevenson and Bobath Video
Hello from The Bobath Centre, We wanted to take a moment to thank you for being a part of our Adult meetup with Dr Valerie Stevenson about managing spasticity in CP. We are grateful to Dr Stevenson for her time and are pleased that you were able to join us. The feedback we have received has been very positive and we hope…
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Mental Health and Cerebral Palsy
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your family, has a mental health issue, you are not alone. Mental and physical health are deeply interconnected. While chronic…
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Eating and Drinking Ability Classification System for people with Cerebral Palsy (EDACS)
Since 2023, Sussex NHS Trust and Scope have worked together on an Eating and Drinking Classification System for people with cerebral palsy (CP). EDACS describes how people with cerebral palsy eat, drink and swallow using five distinct levels. EDACS is now used internationally. People with cerebral palsy cannot use the…
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Cerebral Palsy Awareness Month. BBC-Same But Different
BBC-Same But Different. Archie's Story In this short film for primary schools we meet Archie, a ten year old boy who has cerebral palsy. Archie tells us how he views himself and how he would like others to view him. Archie plays wheelchair basketball, where he loves to socialise and be part of a team. Archie sees his coach…
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CP Scotland Play and playfulness in children with cerebral palsy
Webinar - Play and playfulness in children with cerebral palsy Wednesday 2 April, 10.30-12.30 pm In this session, we will explore ways to support play and engagement in children who: require significant physical assistance to move and engage in activities, and/or who are not able to use speech to easily communicate The…
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Webinar on Health Equity for Persons with Cerebral Palsy and Other Disabilities
Webinar hosted by the International Cerebral Palsy Society (ICPS) People with cerebral palsy and other disabilities face health challenges not only as a direct result of their condition but also due to lack of adequate training or resources in the healthcare system or even prejudice and discrimination on the part of…
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My New GP is refusing to prescribe...
Hi, I wasn't sure where to turn or who to talk to about this so I thought the best place to start was here. I have just recently changed to a new gp practitioner due to moving areas. I was due a repeat prescription and as I am new I had to have a phone consultation for my first prescription. A GP phoned me and I told her…
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Transform Your Child’s Progress This Easter / Spring School Holiday with Intensive Therapy!
From Monday 7th April to Thursday 17th April, we’re offering Intensive Therapy to help children with cerebral palsy and other movement disorders make real progress. Available dates are: Monday 7th to Friday 11th April – 5 days Monday 14th to Thursday 17th April – 4 days Can’t make those dates? No problem. We offer…
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CP Midlands Fabulous February Disability Meet-UP This Saturday!
Who's joining us at our Disability Meet-Up this Saturday? Fabulous February Disability Meet-Up! Join us on Saturday, 22nd February for a fun and inclusive get-together hosted by Ability Life West Midlands at Cerebral Palsy Midlands, 17 Victoria Rd, Harborne, Birmingham, B17 0AQ! Connect, share stories & make new friends…
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Dating with CP is Our Next CP Network Event Wednesday 19 February 6PM
This week, our Zoom meeting will be discussing dating with CP. We will be joined be journalist Melissa Parker. Melissa is an award-winning freelance journalist. Her writing has appeared in Radio Times, Stylist, Cosmopolitan, Digital Spy, and Metro. She covers topics from dating to Doctor Who. She focuses on how disability…
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Cerebral Palsy Support Group to launch in Taunton in March
CP Network member Nicole has set up a new support group for people with cerebral palsy that is launching in Taunton. The first meeting will be on Wednesday, March 19, between 2 pm and 4 pm at Compass Wellbeing on Taunton's Belvedere Trading Estate. Nicole said: "Our aims are to tackle the stigma around cerebral palsy, give…
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Augmented Assistance Technology. Question and Answer session with Michael Cash from Voiceitt.
Michael Cash-Voiceitt. Question one: Hi Michael, Welcome to Scope’s online community. We’re here today discussing Augmented Assistive Communication (AAC), particularly your company Voiceitt. Before we get into the details, tell me about yourself and your background. Answer: From a young age my parents noticed I wasn’t…
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Do You Have Difficulty Falling and Staying Asleep?
Everyone needs adequate sleep each night. Sleep allows the body to rest and recharge for the following day. But for people with cerebral palsy, sleeping isn’t always easy, as there is a frequent struggle with spasticity and involuntarily movements. There are a few ways to help address this problem. Cerebral palsy isn’t…
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Man with cerebral palsy to swim 5km for charity
From BBC News A man with cerebral palsy known for taking on fundraising challenges says he is training for his next event. Ash Jenkins, from Bristol, is planning to swim 5km (three miles) in open water at Adam Walker's lake, in Lincolnshire, for charity. He has previously done bungee jumps and indoor skydives - but the…
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Hi, my name is fayluna! Cerebral palsy and incontinence
I have a question, I have cerebral palsy and is anyone else suffering with a little bit of incontinence?
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How Scouts opened the door for my daughter with cerebral palsy
Sophie is a Beaver who has cerebral palsy. When she joined Beavers, it was the first time Sophie said an enthusiastic ‘yes’ to her family about an extracurricular activity with no hesitation. Sophie’s mum, Nicola, writes how inclusive Scouts has been. Her story shows that inclusion isn’t just possible – it can make a huge…
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Activities in West London for 15-year-old
reaching out to see what’s available in west London please. Am asking for our 15yr old daughter who uses a walking frame to get around.
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CP Friends - For Adults with Cerebral Palsy
Are you or someone you know living with Cerebral Palsy (CP)? 🤗 Join Richie, a 21-year-old with CP, at the Hub Ashmore Park in Wednesfield for the "CP Friends" meet-up group! This welcoming space is all about connection, friendship, and support. Enjoy some tea and cake while making new friends in a warm and accessible…
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Join us for the next CP Network meeting on Wednesday, 12 February, from 6 to 7 PM
We are delighted to announce Liz Whiteley will be joining us to talk about emotions and disability. Liz Whiteley is a Sheffield-based Trauma-Informed Therapist offering online sessions across the UK. She specialises in disability counselling and trauma-informed therapy, providing compassionate support to help clients…
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Understanding the Physical and Psychological Impact of Falls in Ambulatory Individuals with CP
Scope and the University of Nottingham are working on a UK Falls study: "Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course." It will add weight to a growing body of research but from a UK perspective. The Research below is the latest paper from the…
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Three year old boy with cerebral palsy running to raise funds for school
Jacob Fallows, a three year old from Devon is running 500m around his school playground in 30 days. Jacob has spastic diaplegia cerebral palsy which affects his legs, but hearing his parents were running to raise money for his local school, he wanted to get involved. Read the full story here Devon News
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Model with cerebral palsy champions adaptive clothes
BBC News Elliot Caswell has cerebral palsy and, like many disabled people, struggles to find clothes that are easy to put on. Now he is one of the models for Primark's range of clothes adapted for adults with disabilities. The 25-year-old from Newcastle says adaptive clothing is life-changing for him and he hopes all major…
