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Listen to Our Sara on the Palsy Podcast!
@SaraC_Scope joins Ciaran Fitzgerald for episode 4 of The Palsy Podcast. Sara is a CP specialist for the charity Scope, and talks about her experiences growing up, forming relationships and starting a family. Sara has started the Wales Cerebral Palsy Network and is keen for people with CP across Wales to get involved.…
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Cerebral Palsy Is Lifelong — Services Must Be Too
Cerebral palsy does not disappear at 18. Yet adult services for people with CP are often fragmented, inconsistent, or difficult to access. Adults with CP are: • navigating employment and career progression • managing fatigue, pain and secondary conditions • experiencing ageing with a lifelong neurological condition •…
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It's Cerebral Palsy (CP) Awareness Month! Some people to read or listen to
March is here, and with it comes Cerebral Palsy Awareness Month 2026 — a time to celebrate our community, amplify lived experience, challenge assumptions, and show the world just how diverse, creative and powerful the CP community really is. Cerebral palsy isn’t one story. It’s millions of stories. Different bodies.…
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Startle Reflex and Cerebral Palsy (CP)
As we approach Cerebral Palsy Month, I thought I would spotlight a question that I get asked in my role as cerebral palsy Programme lead for Scope. The question about the startle reflex is a really good (and very common) question. Outside of the cerebral palsy world, it’s one that often gets under-recognised outside of…
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Help Shape New Technology for Children with Cerebral Palsy 🌟
We are looking for children with Cerebral Palsy, and their parents, to take part in a PhD research project. Your experiences will help us design better technology to support children with CP. https://www.youtube.com/watch?v=iU8s4JC7F_0 What You Will Do You and your child will join creative online sessions. These sessions…
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Celebrating LGBTQ+ History Month: a cerebral palsy lens
LGBTQ+ History Month celebrates LGBTQ+ culture, history, and achievements. It is also a time to think about the progress we still need to make. You may hear the word intersectionality this month. This means that some people face more than one type of discrimination. For example, someone can be both gay and disabled. CP…
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Samantha Maxwell-Author and Chair of Wrexham Accessibility Project
Samantha Maxwell-Interview with Sara Edwards, Cerebral Palsy Specialist. Samantha Maxwell from Wrexham has cerebral palsy and is the author of CP Isn’t Me and Disabling Ableism. Samantha's third book, Silenced, was published in September 2025. It takes a deeper look into the relationship between disability and mental…
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Creative Pathways is coming to Leeds!
We are excited to work with Embrace Space Arts and The Rosie Jones Foundation to run Creative Pathways Leeds. This is a free, one‑day visual arts event for young people aged 14 to 24 who have cerebral palsy. It will take place at Scope’s Community Hub in Leeds. • Thursday 9 April • Scope Community Hub, Leeds (LS10 1JF) •…
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Growing up with cerebral palsy. Then, Now and What comes next. Podcast.
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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A Better way to Understand Pain in Cerebral Palsy Study
How do adults with cerebral palsy experience and communicate pain? I'm Rebecca Taylor, a researcher at the University of Ulster, studying this important issue. Many individuals with CP struggle to express their pain, which can hinder their access to support and treatment. I'm seeking insights from adults with CP,…
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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
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An ongoing battle-Parents battle for their children to access changing places in hospitals
It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…
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Join an Exciting Project on Cerebral Palsy
We need children diagnosed with Cerebral Palsy and their parents to help with a PhD project. Your insights can help improve condition management through technology. Take part in shaping the future! What You Will Do: • Co-design Sessions: Share your experiences through fun, creative activities. Eligibility Criteria: • Age:…
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FIDELIO Project Falling in the lives of adults with Cerebral Palsy
FIDELIO Project Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course Can you help the University of Nottingham and Scope? Purpose of the study is to collect information about: Why adults with cerebral palsy fall, trip, stumble – from standing, from a…
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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You've Got to be Ballsy to Have Cerebral Palsy Poem and Video
On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and under the patronage of the Cariplo Foundation, the International Cerebral Palsy Society, Cerebral Palsy Europe…
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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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Chest health and cerebral palsy
Help improve chest health for children and young people with cerebral palsy. Here is a video that explains more about the research: Participants needed: • People aged 8-25 with cerebral palsy • Parents or carers • Health, social, and education professionals • Researchers Your input will guide crucial measures for research…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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Bronchitis
How do people with CP deal with bronchitis. I seem to have stalled in recovery
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Advice from the community
Hello Community I have never been diagnosed with cerebral palsy, but after putting all my health issues together, it seems to fit well into a non-severe category but still something which affected me profoundly. When I was six I had two operations for strabismus (lazy eye). About this time I developed a stutter. My…
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International Women's Day 2026 and CP Awareness Month
On International Women’s Day, and during Cerebral Palsy Awareness Month, it feels especially important to recognise the women helping to shape the future of our community. Through my role at Scope, leading the Cerebral Palsy Network, I have the privilege of connecting with women across the UK who are driving change every…
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SEND Research opportunity with the Council for Disabled Children
University researchers and the Council for Disabled Children are running a UK-wide survey about how health, education and social care services are provided for disabled children and young people. We are interested to discover and what a high-quality service might look like. This is part of a programme of research funded by…
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Sexual surrogate
Hi, I have cerebral palsy and I am struggling to find a sexual surrogate, I need some advice on this please, I would appreciate the help.
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Support is Infrastructure not Charity
Cerebral palsy isn’t the barrier. The barrier is when support systems don’t work. When support works well: • People stay in employment • Families remain stable • Skills and talent are retained • Health outcomes improve • Communities benefit From accessible transport and housing, to workplace adjustments and peer networks —…
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Accessible and adapted climbing event: book now! CP Teens
Accessible and adapted climbing event: book now! Prepare to push your limits, explore something new, and try the adaptive climbing wall. This experience is centred around building confidence, breaking barriers, and having fun - regardless of your ability or experience level. The expert team from the Outdoor Education…
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Help with decorating my flat?
This discussion was created from comments split from: Help with decorating a new home .
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Disability Sports Wales Event. Gwent.
I attended the Disability Sports Wales Insport event at Cwmbran Stadium in Torfaen, Wales, on Friday, 20 February 2026. It was a great opportunity to try several sports in one space. There was boccia, golf, table tennis and boxing. But the sports attracting the most interest were wheelchair rugby and curling. Attendees…
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Not sure what’s going on
I’ve had Cerebral Palsy since birth (I also have autism), and things ebb and flow but recently things are different. I have more pain which gets worse when I’m warm or a certain muscle is warmed up. I used to love going for a drive this now causes pain. There’s a throbbing in my feet and shooting pains down my legs.…
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What are you doing on Friday evening? 👀
Join CP Teens for the first quiz of 2026 online! 5-6:30pm, Friday 20 February. 5 rounds - Animals & Nature, Film & TV, Music, Trivia, and Logos! Prizes up for grabs: 1st prize: £25.00 Love2Shop Voucher 🛍️ 2nd prize: Bath/Body Set (male or female) 🛀 3rd prize: Otto Koning Travel Mug with lid, handle and straw 🥤 £2.00 to…
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SEEN & HEARD
The Rosie Jones Foundation Episode 1: Same but Different Join Rosie Jones and Abbie Hills as they candidly discuss their lived experiences and explore the similarities and differences between how their ataxic cerebral palsy manifests, and what self-care looks like to them. As we continue our mission to create a world in…
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'We're a family': my experience as a disabled Arsenal fan – video
From The Guardian Thomas Clements is as big an Arsenal fan as anybody. He follows his team home and away and is even named after Mickey Thomas, scorer of Arsenal’s decisive second goal against Liverpool in their 1989 title win. However, whereas the majority of match-goers might take for granted the seemingly small things…
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New optimal pathway for adults with neurological conditions launched
The mental health optimal clinical pathway for adults with neurological conditions has now been published. The pathway is the latest in a series which has been developed by clinical leads with support from National Neuroscience Advisory Group (NNAG) members, patient groups and people affected by neurological conditions,…
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Growing Up with Cerebral Palsy: One Adult's Perspective
By Aideen Blackborough, Online event, March 10 from 7:30 pm to 9 pm GMT Overview A supportive evening for parents, offering an adult perspective on cerebral palsy, childhood, and what the long view can look like. If you’re parenting a child with cerebral palsy, it’s natural to have questions about what the future might…
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NHS Court Case
Hi everyone, I'm new here and suffer from cerebral palsy. So I will be brief. After DECADES of receiving surgical appliances support from the NHS I have been told that I will no longer be supplied with those appliances. Its not because I don't medically require them or have medically and miraculously been cured. Its…
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Welsh CP Network Meeting 17 February 2026.
Join Scope's Welsh CP Network on Tuesday, 17 February at 6 pm. It's our second online meeting! It was great see so many people from across Wales at our first meeting in January 2026. We want to grow our Welsh community, so please spread the word about these new meetings for Wales. You can sign up for February's meeting by…
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Relationships, consent, and cerebral palsy
With Valentine’s Day approaching, it is an ideal time to explore conversations about relationships, dating, intimacy, and sexuality. CP Guide, guide us through some talking points. We recognise that people with cerebral palsy, like everyone else, deserve access to information that supports confidence, self-expression, and…
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Limitless Voices – We want to hear directly from AAC users
Limitless Voices – We want to hear directly from AAC users through self-advocacy presentations and leadership showcases. We invite AAC users to submit abstracts for our 40th anniversary conference! As we celebrate four decades of advocacy and innovation in augmentative and alternative communication, we’re seeking…
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Cerebral palsy health care a 'never-ending battle'
From BBC News Kirsten Robertson A woman with cerebral palsy says guaranteed annual health checks for people with her condition could end "fragmented" health care. Adults with cerebral palsy risk developing early-onset health conditions like chronic pain, mobility difficulties and cardiovascular disease. Molly Lane, who…
