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Leeds meet up feedback
Hi everyone We currently run an in‑person cerebral palsy group at the Leeds Hub on Mondays. We want as many of our community in and around Leeds to attend as possible. We would love to hear what you want and need from a cerebral palsy group. Please comment or message us to tell us: • What kind of support would you want…
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Autism Acceptance Month and Cerebral Palsy
Cerebral Palsy and Autism: Coexistence. Bridging the gap between two seemingly disparate neurological conditions, researchers unravel the enigmatic dance of autism and cerebral palsy within the human brain. These two conditions, while distinct in their primary characteristics, often intersect in ways that challenge our…
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The Palsy Podcast 2026
What a month! The Palsy Podcast Project is now complete. Thanks to everyone who took part. You can still listen on Apple Podcasts, Spotify, or watch on YouTube! Apple Podcastshttps://podcasts.apple.com/.../the-palsy.../id1881241822 Spotifyhttps://open.spotify.com/show/2I3mFYLGsA0kMKjM0SnkKR...…
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The Palsy Podcast with Ciaran Fitzgerald
I am joined on episode 27 of The Palsy Podcast by Richard Luke. Richard is Scope's Cerebral Palsy Specialist. Richard talks about his experience growing up with CP, forming relationships and starting a family. Richard talks about his experience in becoming a dad and the internalised ableism he felt. Richard is the…
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Naidex,community,and the joy of not pretending you can do everything the hardway
There is something about Naidex that feels a bit like stepping into a very specific kind of family gathering. Not the stressful kind with overcooked buffet food and one relative asking inappropriate questions. The good kind. The kind where people just get it. Where nobody blinks at a wheelchair, a walking aid, adapted…
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We’re looking for disabled young people to speak to Journalists
We’re looking for disabled young people who might be open to speaking to journalists ahead of the release of the Milburn review in spring 2026 (likely between March and May). The review is an independent investigation into the rise in youth economic inactivity. We’re hoping to identify someone who: is a disabled young…
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Cerebral Palsy Awareness Month "Embracing Identity Through Laughter" Rhys Thorne
I recently had the pleasure of speaking with Welsh comedian Rhys Thorne, whose fresh voice, quick wit and lived experience bring something truly special to the comedy scene. Our conversation explored the intersections of cerebral palsy, LGBTQ+ identity, creativity, and personal resilience. And how humour becomes a powerful…
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Interview with Pat Herring: Five Decades of Advocacy and Community
Cerebral Palsy Awareness Month is also a time to recognise the supporters and advocates who stand alongside the CP community. I recently had the privilege of spending time with Pat Herring — an advocate, campaigner, parent of an adult living with CP, and long-standing member of the CP Network who has been involved with…
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Listen to Our Sara on the Palsy Podcast!
@SaraC_Scope joins Ciaran Fitzgerald for episode 4 of The Palsy Podcast. Sara is a CP specialist for the charity Scope, and talks about her experiences growing up, forming relationships and starting a family. Sara has started the Wales Cerebral Palsy Network and is keen for people with CP across Wales to get involved.…
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Cerebral Palsy Is Lifelong — Services Must Be Too
Cerebral palsy does not disappear at 18. Yet adult services for people with CP are often fragmented, inconsistent, or difficult to access. Adults with CP are: • navigating employment and career progression • managing fatigue, pain and secondary conditions • experiencing ageing with a lifelong neurological condition •…
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It's Cerebral Palsy (CP) Awareness Month! Some people to read or listen to
March is here, and with it comes Cerebral Palsy Awareness Month 2026 — a time to celebrate our community, amplify lived experience, challenge assumptions, and show the world just how diverse, creative and powerful the CP community really is. Cerebral palsy isn’t one story. It’s millions of stories. Different bodies.…
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Startle Reflex and Cerebral Palsy (CP)
As we approach Cerebral Palsy Month, I thought I would spotlight a question that I get asked in my role as cerebral palsy Programme lead for Scope. The question about the startle reflex is a really good (and very common) question. Outside of the cerebral palsy world, it’s one that often gets under-recognised outside of…
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Help Shape New Technology for Children with Cerebral Palsy 🌟
We are looking for children with Cerebral Palsy, and their parents, to take part in a PhD research project. Your experiences will help us design better technology to support children with CP. What You Will Do You and your child will join creative online sessions. These sessions are relaxed and activity‑based. You will be…
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Samantha Maxwell-Author and Chair of Wrexham Accessibility Project
Samantha Maxwell-Interview with Sara Edwards, Cerebral Palsy Specialist. Samantha Maxwell from Wrexham has cerebral palsy and is the author of CP Isn’t Me and Disabling Ableism. Samantha's third book, Silenced, was published in September 2025. It takes a deeper look into the relationship between disability and mental…
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Growing up with cerebral palsy. Then, Now and What comes next. Podcast.
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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You've Got to be Ballsy to Have Cerebral Palsy Poem and Video
On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and under the patronage of the Cariplo Foundation, the International Cerebral Palsy Society, Cerebral Palsy Europe…
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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
