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Growing up with cerebral palsy. Then, Now and What comes next. Podcast.
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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A Better way to Understand Pain in Cerebral Palsy Study
How do adults with cerebral palsy experience and communicate pain? I'm Rebecca Taylor, a researcher at the University of Ulster, studying this important issue. Many individuals with CP struggle to express their pain, which can hinder their access to support and treatment. I'm seeking insights from adults with CP,…
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CP Sport Swimming Nationals are BACK 🏊♀️
Entries are now open for this year's event Date: Saturday 18th April 2026 Location: Alfreton Leisure Centre Church Street, Alfreton, DE55 7BD, Derbyshire, United Kingdom Time: 9am until 3:30pm (subject to change) Age: 10 + (as of 31/12/2026) Entry Deadline: Sunday 29 March 11:59pm Register today
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CP Network Wales winter meetings moved online. Please join us In One Month.
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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
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An ongoing battle-Parents battle for their children to access changing places in hospitals
It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…
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Join an Exciting Project on Cerebral Palsy
We need children diagnosed with Cerebral Palsy and their parents to help with a PhD project. Your insights can help improve condition management through technology. Take part in shaping the future! What You Will Do: • Co-design Sessions: Share your experiences through fun, creative activities. Eligibility Criteria: • Age:…
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FIDELIO Project Falling in the lives of adults with Cerebral Palsy
FIDELIO Project Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course Can you help the University of Nottingham and Scope? Purpose of the study is to collect information about: Why adults with cerebral palsy fall, trip, stumble – from standing, from a…
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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You've Got to be Ballsy to Have Cerebral Palsy Poem and Video
On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and under the patronage of the Cariplo Foundation, the International Cerebral Palsy Society, Cerebral Palsy Europe…
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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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Chest health and cerebral palsy
Help improve chest health for children and young people with cerebral palsy. Here is a video that explains more about the research: Participants needed: • People aged 8-25 with cerebral palsy • Parents or carers • Health, social, and education professionals • Researchers Your input will guide crucial measures for research…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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Publication of Commissioning Framework for Children and Young People with Cerebral Palsy
After working with NHS England and other key stakeholders, the most important of which were families, Scope is very pleased to announce that the Commissioning Framework for Children and Young People with Cerebral Palsy was published at the start of May. The framework can be found here: NHS England » Commissioning framework…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Women and Theatre: Women with CP Telling Their Stories
Bridging The Gap Funders University of Birmingham ESCR IAA User Engagement Fund The Burdett Trust for Nursing Bridging the Gap is a partnership project with Women & Theatre and the University of Birmingham. It responds to research undertaken by Dr Sonali Shah, about the experiences of women & girls with Cerebral Palsy in…
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youngest elite player with cerebral plasy
From Yahoo Life Eight-year-old Coby Tandy from Pontypridd, Wales, who has cerebral palsy, has been selected to represent Europe at the European Blackball Association Nations Cup in Gibraltar, Spain, this April. Despite mobility challenges, Coby regularly competes against adults in UK disability pool events and has become a…
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Where Sexuality and Cerebral Palsy Meet: An Intersectional Perspective
LGBT+ History Month invites us to reflect not only on visibility and progress, but also on whose stories are still too often marginalised. At the intersection of sexuality and disability — specifically cerebral palsy — those stories are frequently overlooked. Yet for many people, identity is never singular. Sexuality and…
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cp inclusion
hi there, I am an undergraduate student wanting to conduct research on cerebral palsy as it is understudied. I aim to bring awareness to what needs to be improved in education to make it more accessible and inclusive. I kindly ask if you could have a look at this survey and if you know anyone who fits the criteria and pass…
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CP Sport and Cerebral Palsy Awareness Month 2026
March is Cerebral Palsy Awareness Month from 1st March to 31st March 2026 Across the month, we’ll be sharing stories, updates and content that raise awareness of CP, celebrate our members, and highlight the importance of inclusion. We’d love for you to be part of it, so make sure you’re following us on all social media…
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Having my baclofen pump replaced
This is posted on behalf of @Globster On the 7th January 2026, I had to have my baclofen pump replaced because it reached the end of its battery life. The procedure took place at the Queen's Medical Centre in Nottingham under general anaesthesia, and it took 2 hours in total because they also had to check whether the…
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RIghts & CHoices to maternity care for women with cerebral palsy video
This video was made by Dr Sonali Shah with the support of Scope, CPAAUK and ScienceExplained. It is part of a NIHR funded project to explore access and utilization to maternity care for women with CP. It is informed by interviews with women with CP talking about barriers and facilitators experienced during pregnancy,…
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RICH: RIght and CHoices for expectant mothers living with CP
In January 2024 Scope and the University of Nottingham collaborated to find out about the reproductive choices and experiences of women with cerebral palsy during pregnancy, childbirth and the postnatal period. These are the FINAL resources we developed as part of the NIHR RICH project around the provision and experiences…
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People refusing to let me be more independent with my Cerebral Palsy
Hi I wanted to start this discussion because I have been thinking about my own independence. I would love to learn to drive but problem is I have people telling me that I can't do it because I have a weakness in my right side and it annoys me when people like my family say you can't do this you can't do that. I have…
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Welsh CP Network Meeting 17 February 2026.
Join Scope's Welsh CP Network on Tuesday, 17 February at 6 pm. It's our second online meeting! It was great see so many people from across Wales at our first meeting in January 2026. We want to grow our Welsh community, so please spread the word about these new meetings for Wales. You can sign up for February's meeting by…
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Cerebral Palsy Didn’t Stop This Woman From Becoming a Poet and Teacher
From The Better India By Nishtha Kawrani Edited By Vidya Gowri Venkatesh Born with cerebral palsy, Vinayana Khurana overcame immense physical challenges to become a poet, life coach, and guest teacher at Delhi University. Her journey proves that sometimes obstacles can become growth opportunities. Some lives remind us that…
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Take Part in BBC Race Across the World
You might have watched the BAFTA-winning TV series ‘Race Across the World’ on BBC One. The production company behind the show has been in touch with Cerebral Palsy Scotland because they would like to increase inclusion and representation in their next series. They're encouraging people from the cerebral palsy community to…
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Tips for shoes for child with cerebral palsy that wears a splint?
Hi my little boy is nearly 3 and has cerebral palsy and he has to wear a splint on his right foot but I find it hard to get shoes that fit his splint especially boots or wellies. He currently wears crocs majority of the time as I have found they are the easiest for putting on with his splint. Just wondering if anyone has…
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Dystonia IMPACT study
DYSTONIA IMPACT STUDY UPDATE The Dystonia IMPACT Qualitative Study explores what matters most to children and young people living with dystonia and other hyperkinetic movement disorders, and to their families. We are pleased to share that since opening, the study has recruited 27 parent/carers and 15 children and young…
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Calling the All-Wales CP Network
Calling the Welsh CP Network. Good afternoon. I'm preparing for the second online Welsh CP Network meeting. It's taking place on Tuesday 17 February at 6pm. Last month, we mentioned topics we would like to focus on, and this is shaping our Network. This week, I spoke to a Police Officer who delivers Hate Crime Awareness…
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CP Teens Workshops in 2026!
Perfect for young people with cerebral palsy and physical disabilities looking to learn new skills, get creative, connect with others, and have fun! All workshops are free* Shout About Your Skills – Personal Development WorkshopOnline | 17 March Learn to recognise your strengths and communicate them confidently - useful in…
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How adults with cerebral palsy successfully confront and cope with ableism
Back in 2024, Scope took part in a study about cerebral palsy (CP) and ableism, alongside Ability First, Cerebral Palsy Australia, Scope Australia, Cerebral Palsy Support Network, CP Achieve, Cerebral Palsy Support Network and Healthy Trajectories. Purpose This study focused on how adults with cerebral palsy successfully…
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Cerebral Palsy Teens Up Coming Events
We have lots of upcoming initiatives and activities! From online quiz nights and relaxed lunch socials to creative workshops and our annual Sponsored Wobble through Chatsworth Park, there’s something for everyone What’s on offer: • Social meet-ups - bowling, lunch clubs & relaxed catch-ups online and in-person • Virtual…
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State-of-the-art new NHS lab to help support people with conditions like CP
A new "gait lab" has opened at the Freeman Hospital in Newcastle Sam Volpe Health Reporter Chronicle Live A new "state-of-the-art" service for children and adults has opened at the Freeman Hospital. The "gait lab" will support those with cerebral palsy, spina bifida and a range of neurological conditions affecting…
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Automatic tool to prevent hip dislocation in children with cerebral palsy
Researchers from the Universities of Manchester and Liverpool, together with Manchester Imaging Ltd, (a local company that specialises in developing AI medical devices), have received a £1.2 million grant from the National Institute for Health and Care Research’s (NIHR) ‘Invention for Innovation’ (i4i) programme, to build…
