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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
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CP Network Wales winter meetings moved online. Please join us.
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
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An ongoing battle-Parents battle for their children to access changing places in hospitals
It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…
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Join an Exciting Project on Cerebral Palsy
We need children diagnosed with Cerebral Palsy and their parents to help with a PhD project. Your insights can help improve condition management through technology. Take part in shaping the future! What You Will Do: • Co-design Sessions: Share your experiences through fun, creative activities. Eligibility Criteria: • Age:…
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FIDELIO Project Falling in the lives of adults with Cerebral Palsy
FIDELIO Project Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course Can you help the University of Nottingham and Scope? Purpose of the study is to collect information about: Why adults with cerebral palsy fall, trip, stumble – from standing, from a…
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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You've Got to be Ballsy to Have Cerebral Palsy Poem and Video
On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and under the patronage of the Cariplo Foundation, the International Cerebral Palsy Society, Cerebral Palsy Europe…
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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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Chest health and cerebral palsy
Help improve chest health for children and young people with cerebral palsy. Here is a video that explains more about the research: Participants needed: • People aged 8-25 with cerebral palsy • Parents or carers • Health, social, and education professionals • Researchers Your input will guide crucial measures for research…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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Publication of Commissioning Framework for Children and Young People with Cerebral Palsy
After working with NHS England and other key stakeholders, the most important of which were families, Scope is very pleased to announce that the Commissioning Framework for Children and Young People with Cerebral Palsy was published at the start of May. The framework can be found here: NHS England » Commissioning framework…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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CP and difficulty coughing
Hi. I have spastic quadriplegia and am a full time power chair user. More recently, I have been having difficulty coughing (particularly when I have a cold) due to spasticity and weak muscles in the chest. I just wondered does anyone else have this problem? If so, what helps? I have briefly looked at using a cough assist…
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Disabled teenager who was left in school during fire takes safety campaign
A teenage boy who was left alone upstairs during a school fire has taken his campaign for stronger safety rules for disabled students to Parliament. Lucas Vezza-O'Brien has cerebral palsy and says he was "terrified" when smoke began to fill the corridor on the first floor of his school in Hyde, Greater Manchester, in…
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What my disability taught me about parenting
What's it like navigating the world as a disabled parent? Datshiane Navanayagam speaks to two women from the US and Italy about the reality of parenting with a disability and about why it’s important to reconsider some of the common misconceptions that exist within society around the kind of life that disabled mothers can…
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Spastic Diplegia
Hi, I was diagnosed with Spastic Diplegia at birth? Unfortunately, I was born before the internet. I cope fairly well with the physical side but its the psychological side which has affected me the most. I think I am fully aware of the psychological side now but it has destroyed by life. Anyone else have any experiences on…
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Rosie Jones says she carried ‘a lot of guilt’ in her twenties
Holly Bishop | Wednesday 26 November 2025 08:26 GMT Rosie Jones has shared a message to ableists as she reflects on her personal journey of learning to own her disability. Appearing on Katherine Ryan’s What’s My Age Again? podcast on Monday (24 November), the 35-year-old comedian said she “carried a lot of guilt” during…
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Home care and late-evening calls
Hello, Are there any home care agency users out there who have "late" evening visits — i.e. 10:30? I find it difficult to find a company that will come at a time I feel appropriate for my (middle) age. Anything after 9pm — 8pm with some — seems to be as if they're making a special allowance, and it's really restrictive.…
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Second opinion for AFOs
Hi All, My 10-year-old daughter has worn AFOs for many years. She has always been pretty difficult to cast and fit for AFOs as she is so tight. This is becoming an increasing problem as she grows and she is increasingly getting sores on her feet from the pressure of the AFOs. She really needs to use the AFOs for walking as…
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Facebook charity page restored after ban mix-up
Article by Steve Beech and Dan Hunt, BBC Derby. Full Article The founder of a charity that supports teenagers with cerebral palsy has spoken about the "nightmare" of being unable to use its Facebook page for more than a year after it was flagged as having inappropriate content. CP Teens UK, based in Chesterfield,…
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So happy to have joined the CP Network Meeting ..... First Time
Thank you for having me on the zoom call meeting, at first i felt very nervouse to speak to everyone so decided to message in the chat and it helped me feel less nervouse and included and made me laugh smile and be more happy, so tank you and i will definately be joinging more.
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Research Opportunity: Were You A Premature Baby?
Summary Around 1 in 10 babies worldwide are born preterm, before 37 weeks of pregnancy. Thanks to advances in neonatal medicine, 95% of babies that are born preterm now survive to adulthood. We know a lot about the challenges these babies face early in life, but much less about what life is like when these preterm babies…
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Oldest person with CP?
We have been asked: "I
have had Cerebral Palsy since Birth. I am now 78 Years old and will be 79 in
July. Could you tell me if I am the oldest person with thus condition. If not
can you tell me the age of the longest living survivor of this condition?" I think the oldest person we interviewed for
Speaking for Ourselves was…
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Hi, my name is LilyS! Travelling with son abroad
Hi. I’ve joined the community as the mother of a son with Cerebral Palsy and hydrocephalus. He has a VP shunt. I always get concerned about travel as I worry about him having problems with his shunt whilst abroad and if the country we are visiting would have neurosurgical facilities. Has anyone any advice about places that…
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COMMUNICATION MATTERS FULLY FUNDED TRAINING AND DEVELOPMENT FOR AAC USERS
Peer Support & Mentoring Project: CM have funding from the National Lottery for the following training sessions (Zoom): 'Achieving Level 1 in Mentoring Qualification' Tuesday 2nd December 2025 2.00 pm - 3.30 pm: Becky Tyler (AAC user) and Verity Elliott (CM Mentoring Project Co-ordinator) This is an opportunity to find out…
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Water Therapy has Given my Daughter Confidence
A 15-year-old girl who was told she may never walk after being born with cerebral palsy has grown in confidence thanks to aqua therapy, her mother has said. Listen to Lillie's mum, Keighly discuss this with Radio Sheffield. BBC News Cerebral Palsy
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Profiling bed I can't get rid of
About 7 years ago I was given a profiling bed for my son who used to visit me at week-ends. My son has since stopped staying overnight and I don't need the bed anymore. The problem is that the NHS supplier has no record of the bed in their computer system and won't take it back! I've tried everything I can to give this…
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Breaking Barriers with Power Hockey
Ellis Palmer invited me to Greenbank to play power hockey. Greenbank offers a range of inclusive sports including power football, hockey, and boccia. We know moving with cerebral palsy is essential, especially as we get older. But it can be challenging to know where to start or even to meet fellow disabled people. Clubs…
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Getting fed up
Now after being diagnosed recently with moderate osteoarthritis of my lumber kyphoscoliosis of upper thoracic spine now after results of a neck mri I have cervical osteoarthritis cervical radiculopathy and degenerative disc disease have to go and see specialist as nerve severely compressed bilaterally because of bone spurs…
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Sexual surrogate
Hi, I have cerebral palsy and I am struggling to find a sexual surrogate, I need some advice on this please, I would appreciate the help.
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Invisible Disability Week & Blogging about my CP
Hello everyone, I hope you’re all doing well I recently learned that it’s Invisible Disabilities Week. Back in September, I finally plucked up the courage to start writing about my Cerebral Palsy in a blog. I wanted to share it with you all, but wasn’t sure how or when to do so. I’ve incorporated Invisible Disabilities…
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Consequences of Falls in Individuals with Cerebral Palsy
Please join us to learn more about the Consequences of Falls in Individuals with Cerebral Palsy Next Monday, October 27, at 1 am UK / 8 pm ET, clinical scientist Liz Boyer, PhD, will share findings of her study about falls in people with CP called “Consequences of Falls in Individuals with Cerebral Palsy.” This…
