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Join our special online event for Parents of Children with Cerebral Palsy š
You're Invited! š¤ Connect with other parents š§ Meet our Cerebral Palsy Specialist, Lucy š¬ Share your story and let us know how we can support you š When: Thursday, 26 June š¦ Time: 11:30 AM ā 1:00 PM š Where: Zoom š Reserve your free ticket now on Eventbrite!
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause ā Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught withā¦
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CP Network and Cerebral Palsy Adult Advice UK. Wrexham Meeting
On Monday 12 May 2025, Scope's CP Network and CPAAUK held the first face to face gathering in Wrexham. It was great to meet those who attended. We had meaningful conversations about CP and life in general. Attendees enjoyed the session and left wanting to share news of the group with friends and colleagues in theirā¦
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Do have a child that has Cerebral Palsy?
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get your ticket We look forward to seeing you āŗļø
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part ofā¦
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Do You Have Difficulty Having Sex Due to Tight Muscles?
No subject is off-limits for Sam at Inclusfit! This subject was brought up by a few of my PT clients. Those with spastic cerebral palsy have high spasticity in their muscles. This means we get tight muscles very quickly and this can also mean we get a lot of pain. This also limits our movement & what we can do. Those withā¦
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Meet the Author-Samantha Maxwell. CP Isn't Me and other ventures
Samantha Maxwell-Interview with Sara Edwards-Cerebral Palsy Specialist. Samantha Maxwell from Wrexham is the author of CP Isnāt Me and Disabling Ableism. I caught up with Samantha to discuss the inspiration behind her writing, the impact of her books and what the future holds. Samantha has a mild form of cerebral palsy. Inā¦
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CP Network and Epilepsy Action Collaboration-Interview with Jan Paterson Epilepsy Action
As part of Cerebral Palsy Awareness month, we are discussing CP and co-existing conditions. Janet Paterson from Epilepsy Action Cymru is hosting an insightful presentation on March 12 2025, "Epilepsy-It's not one type of seizure." Please register at to attend this event. I recently interviewed Jan where we discussed herā¦
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Exciting research project. Ulster University. Your Voice on Pain. Take part.
Help Us Shape the Future of Pain Research for Adults with Cerebral Palsy SCOPE CP is excited to collaborate with Rebecca Taylor, a postgraduate researcher at Ulster University, on a study aimed at understanding how pain affects adults with cerebral palsy (CP) comparedĀ to those without the condition. Rebecca's personalā¦
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Are you a parent of a child with cerebral palsy?
We have our first Parent support group for children with cerebral palsy. Get together with other parents of children with cerebral palsy. Come along to share your experiences and help us shape our offer for Leeds. Our Cerebral Palsy Specialist will be there to offer advice, and provide support When: Thursday 24 April 2025.ā¦
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. Theyā¦
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Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025
The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025. We know that 86% or one third of people with cerebral palsy develop epilepsy. Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someoneās life. It can lead to feelings ofā¦
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Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving postureā¦
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral Palsy Lucy JamesCerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feelingā¦
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Living Healthy Lives: Exploring the effects of growing older with cerebral palsy
For the last 2 years, Scope has been working with Dr. Sonali Shah and the University of Nottingham to understand the effects of cerebral palsy (CP) as people grow older and understand their needs and access to health services as they age. The projectĀ was the first and largest UK study about ageing with CP and healthcareā¦
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing ā Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility ā Allied Mobility is the leading wheelchair accessible vehiclesā¦
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Our Next Welcome CafƩ is Monday 9th of June 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range toā¦
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In case You Missed it. Spasticity Management with Dr Val Stevenson and Bobath Video
Hello from The Bobath Centre, We wanted to take a moment to thank you for being a part of our Adult meetup with Dr Valerie StevensonĀ about managing spasticity in CP. We are grateful to Dr Stevenson for her time and are pleased that you were able to join us.Ā The feedback we have received has been very positive and we hopeā¦
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Mental Health and Cerebral Palsy
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your family, has a mental health issue, you are not alone. Mental and physical health are deeply interconnected. While chronicā¦
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Should I start maybe thinking of finding a boyfriend online through another community?
Hi currently I'm limbo or rather feel as i am, I've been trying wirh the idea for ages now about joining another online disabled community, but I'm feeling like I can't because I'm too scared of what my family will think and tell me to get off it! Or do I don't for me and **** the consequences. @pooleemily29
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Interested in More Touch and Affection in Your Life? š
Are you disabled? Are you non-disabled?Ā Either wayāyouāre invited to join us in creating something special.Weāre buildingĀ inclusive, welcoming workshopsĀ for: People with physical disabilities Neurodivergent people Their friends, allies & curious peers All focused onĀ affectionate touch, consent, and connection.Join Us forā¦
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Network CP Leeds Meet up!
On Monday 19 May we had our first Scope CP Network meet up at the Scope Leeds Hub. We organised this in partnership with Cerebral Palsy Adult Advice UK (CPAAUK). We had a great time getting to know each other over a biscuit and a brew. We discussed our commonalities; the difficulty in getting healthcare, startle reflex,ā¦
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Experience of Tizanidine vs Baclofen
Background: When i was a child i used to take delicious sugary like raspberry but no raspberries in it bacolfen. Transitioned to boring tablets and then off everything but recently increasing stiffness. Did a brief search and obviously increasing physical activity is a must (got appointment next week), but does any haveā¦
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CP Multi level Surgery
HI my son is 10 and will be having multilevel surgery later this year and I wondered if anyone has any advise/information/tips they could share. As a family we are all pretty nervous about it but are hopefully doing the best thing for him. He currently uses a walking frame and sometimes a wheelchair but he is being moreā¦
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Race Across the World's Tom admits fears over "diagnosis" defining him.
21 year old Tom has opened up about being diagnosed with cerebral palsy and his fear that it would "define" him. Read his story in the link below. Race Across the World-Not Letting Disability Define Me
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Vicki Wilson: Championing Disability Inclusion Through Business and Policy Change
Disabled entrepreneur and advocate Vicki Wilson, founder of Vicki Admin FairyĀ®, is celebrating a weekend of national recognition, both for her business journey and her commitment to supporting disabled-led enterprise. On Thursday 9th May 2025, Vicki received the Inspiring Journey Award at the prestigious Woman Who Achievesā¦
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Best Invention/ part of CP for people in poem form
I'll start - Glory be to the blue badge, indeed, my help anytime or at least 3 hours mine. With cerebral palsy, walking's tough,But parking close is needed enough.Those double yellows, A stress removed, a welcome start to journey success. Lets get out, no need to dread,Leaving boring parkers instead.
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Given increasing evidence of a genetic component to some cerebral palsy cases would you test?
https://www.medicine.net/news/Pediatrics/Study-supports-genetic-testing-for-people-with-cerebral-palsy.html
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Creating Awareness
hey ya, Iām fairly new to all of this and have CP myself but desperately wanting to advocate and already more awareness etc. does anyone know of any events or anything going on- Iām based in the midlands but willing to travel. I think I want to educate and spread the message of hope, I know that CP for sure has its scaryā¦
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Leaders/colleagues view on disabilities
Hi, My son has cerebral palsy with spasticity and dystonia and is a manual wheelchair user and works full time. He loves and enjoys his job. He works in Customer Service and does a lot of pushing in his wheelchair to support customers resulting to getting calisis on his hands and tired. His leader says to the team ākeep onā¦
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British Cycling and CP Sport Track and Trike Taster
British Cycling and CP Sport Track and Trike Taster Date: 22nd June Location: National Cycling Centre, Manchester, M11 4DQ Time: 11 am - 3 pm It is for 10-24-year-olds at the iconic venue of Manchester Velodrome with a tour included. There is a range of bikes, including track, recumbent and Frame Runners. So there shouldā¦
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Standing Frames Research
Standing Frame Research for Cerebral Palsy We are looking for young people and parent/carers with recent experience of using standing frames to get involved in co-producing research about the effectiveness of standing frame programmes. Contact: rachel.rapson@nhs.net or phone 07971246592
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Webinar: See me, not cerebral palsy
This webinar was hosted byĀ My CP GuideĀ and presented byĀ Madison Heady, disability advocate, athlete, and Young West Australian of the Year 2023. Madison Heady is a vibrant young woman navigating life after high school while living with a disability. Born with cerebral palsy, Madison exemplifies the significance ofā¦
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New Parent Group for Children With Cerebral Palsy
Do you live in Leeds? Meet other parents who have children with Cerebral Palsy, and shape the local offer in Leeds. Where: Scope Community Hub Time: 11AM until 12:30PM Get yourĀ ticket We look forward to seeing you āŗļø
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Paralympian's recovery inspired frame running club
A Paralympic swimmer has set up a frame running club to help disabled people after crediting the sport with helping her recover from a career-threatening injury. Tully Kearney said she was left unable to swim after she suffered complex concussion syndrome in 2023 when her head was accidentally hit by a closing car boot.ā¦
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Hi, my name is jang!
My sister has mildish cerebral palsy but as she us now well into 50s is experiencing decreased mobility issues.Does anyone know if there are specialist followup facilities in the NHS for people with CP?
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Yeovil Man to Run the London Marathon
Connor Hyde who has epilepsy and cerebral palsy ran the London Marathon 2025. BBC News
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Any advice Improving Balance
Should probably go to the GP but recently by balance has decreased significantly. I used to be ok walking short distances unassisted but now even slight inclines of the real world (which sadly isnt flat, make me tense up unable to move) To return to my old baseline I have been doing my classic throw myself on the floor andā¦
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Wrexham Cerebral Palsy Get Together-CP Network and CP Adult Advice UK
We're excited to launch the Wrexham Cerebral Palsy get together. Monday 12 May 2025 from 9am. Please let us know in the comments below, if you are attending. Many thanks.
