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Cerebral Palsy Network: Cerebral palsy and epilepsy. Looking ahead to 2025
The cerebral palsy network team are exploring a collaborative event between Scope and Epilepsy Action Wales in 2025. We know that 86% or one third of people with cerebral palsy develop epilepsy. Receiving a diagnosis of cerebral palsy and epilepsy can have an enormous impact on someone’s life. It can lead to feelings of…
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Neurological conditions and access to sport
Sheffield Hallam University Sport and Physical Activity Research Centre is conducting research in playing sports with adults of neurological conditions. Please see the flyer attached for more information about the study: Email: A.Abiodun@shu.ac.uk to participate
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The Cerebral Palsy Charter – World CP Day 2024
RECOGNISING CEREBRAL PALSY AS A LIFELONG CONDITION AND THEREFORE … Enabling access to the framework used by GPs to identify individuals with long term conditions, and offering annual medical reviews. Implementing systematic reviews leading to specialist neuro rehabilitation pathways for health interventions and for…
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Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…
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Investigation of the physical and social Impact of living with hemiplegia.
Do you or your child live with hemiplegia? Have your voice heard UCL is conducting a research study: Investigation of the physical and social Impact of living with hemiplegia. We need adults (18+) as well as parents of children with hemiplegia (0-17 years). The purpose of the study is to hear from the population themselves…
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral Palsy Lucy JamesCerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feeling…
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Maternity Care for women with CP: The RICH Project
We need two more women to join the study. Can you help? RICH Study - The University of Nottingham RIghts and CHoices for women with cerebral palsy: A qualitative studyto understand what works in the provision of their maternity care Purpose of the study: 1. To find out about the reproductive choices and experiencesof women…
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Research study on CP and Mental Health University of Surrey
We are hoping to interview about 15-20 participants with the following criteria: - Be over 18 years old- Be fluent in English- Live with CP- Not currently receiving any form of psychological therapy- Identify as having lived experiences of mental health difficulties related to living with CP- Access to a stable internet…
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Living Healthy Lives: Exploring the effects of growing older with cerebral palsy
For the last 2 years, Scope has been working with Dr. Sonali Shah and the University of Nottingham to understand the effects of cerebral palsy (CP) as people grow older and understand their needs and access to health services as they age. The project was the first and largest UK study about ageing with CP and healthcare…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Scope's Cerebral Palsy Network
The Cerebral Palsy (CP) Network is a group of people with lived experience of CP. The network supports the cerebral palsy community in England and Wales. Who can join? You can join the network if you: * are 18 years or over * have lived experience of CP, or * support someone with CP. Including family, friends, partners or…
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Our Next Welcome Café is Monday 9th of December 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range to…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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In case You Missed it. Spasticity Management with Dr Val Stevenson and Bobath Video
Hello from The Bobath Centre, We wanted to take a moment to thank you for being a part of our Adult meetup with Dr Valerie Stevenson about managing spasticity in CP. We are grateful to Dr Stevenson for her time and are pleased that you were able to join us. The feedback we have received has been very positive and we hope…
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Mental Health and Cerebral Palsy
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your family, has a mental health issue, you are not alone. Mental and physical health are deeply interconnected. While chronic…
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Government announces UK Neuro Forum
Andrew Gwynne MP, Parliamentary Under-Secretary of State at the Department of Health and Social Care, has announced a new UK-wide Neuro Forum will be set up to find ways to improve care and support for people affected by neurological conditions. This landmark announcement follows years of campaigning, calling on the…
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CP & surgery
Hello, I'm new to the forum. My husband (37) has Spastic Diplegic CP and is independent. He's been talking to surgeons about possible ankle surgery (fusion etc) to straighten up his ankle. Does anyone have any experience/advice around this? Can anyone recommend any good surgeons in the South East of England who have…
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Muscular Dystrophy; The struggle to plan an accessible Christmas party.
Cerys Davage a journalist at Newyddion S4C reports on her experiences of trying to find an accessible venue at Christmas. Disability: My struggle to plan an accessible Christmas party - BBC News
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Apologies! 🙄
Hi Everyone at the Cerebral Palsy Network, I'm very sorry, I've to re-post this, but a Friend accidentally gave Me the wrong info but this is the right info, I still wish I'd partied more, 🎉 🥳 🎉 studied less, 📚 made, kept intouch 📱with Friends at B.C. & much to the despair of My Parents spent My College years living like…
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Jean Martin Championing cycling as a lifelong mobility aid
The CP Network's very own Jean Martin has been named one of the 100 Women in Cycling 2024 Jean has been involved with Scope since its creation and has been cycling for almost as long! Jean has been cycling for nearly seven decades, starting with a tricycle chosen for her as a child with cerebral palsy to develop her…
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Former Paralympian realises lifelong dream to sing
Simon Thake BBC News, East Midlands A former Paralympian has set her sights on a new chapter in her life - music. Zoe Edge, from Derbyshire, was born with severe athetoid cerebral palsy, external, but she does not see her disability as a limitation. She won a silver medal in boccia at the 1996 Paralympic Games and has gone…
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End of an era for Cerebral Palsy Cymru
Glenys Evans, founder of Cerebral Palsy Cymru retired in November 2024. Thirty five years ago, Glenys was one of a group of parents who started a specialist therapy centre in Whitchurch, Cardiff for children with cerebral palsy. She has been involved in the centre, now based in Llanishen for all of those 35 years. Sadly…
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RICH: RIght and CHoices for expectant mothers living with CP
In January 2024 Scope and the University of Nottingham collaborated to find out about the reproductive choices and experiences of women with cerebral palsy during pregnancy, childbirth and the postnatal period. These are the FINAL resources we developed as part of the NIHR RICH project around the provision and experiences…
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Man overcome by new accent ahead of wedding
This is the moment a young man from Birmingham was gifted a new West Midlands accent. Jack Reeve, 22, who has cerebral palsy, had been using a communication device with a robotic voice. But ahead of his wedding to fiancee Bethan in 2026, and with the help of special technology, he received a Dudley accent from an anonymous…
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Compensation
Hi all, I was diagnosed with cerebral palsy 2 years ago (I'm 44). Although I knew I had issues with my mobility all my life, it was only diagnosed 2 years ago. I have read that compensation claims should be made in early life however I wasn't diagnosed. Do you think I would stand any chance if I spoke to a solicitor. Thank…
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Voice: Sharing Stories Through Poetry: Exploring Creative Research with Disabled People
Newcastle University is exploring how poetry can be used as a creative way to share experiences and perspectives in healthcare research for people with disabilities or chronic illnesses. Participants will learn about how poetry can be used in research, take part in a simple poetry activity to share their experiences and…
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CP Network Wellbeing Series Feedback
Hi everyone. Myself, @SaraC_Scope and @Lucy_Scope would like to thank everybody who attended the Scope CP Network Wellbeing series hosted by our friends at The Almond Tree Organisation. We would appreciate it if you could leave feedback about the events
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International Day of Persons with Disabilities
Good afternoon Tuesday 3 December 2024 is International day of persons with disabilities. This BBC World Service Episode highlight the ways, people with cerebral palsy are gaining more independence using AI. "I just put my music on and I go." The wheelchair giving independence. Have a good day. @SaraC_Scope Cerebral Palsy…
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England finish fifth as Iran win Cerebral Palsy World Cup
England finished fifth at the Cerebral Palsy World Cup as Iran beat defending champions Ukraine in the final. The Para Lions required a penalty shootout to overcome Argentina following a goalless draw in the play-off for fifth and sixth in Salou, Spain. Iran recorded an emphatic 3-0 victory against Ukraine to avenge their…
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Hi, my name is annawalewska! Surrey care home recommendation
Can anyone recommend a care home in the Surrey area for a verbal cerebral palsy young man, 38 years old, bright and needs stimulation who likes doing activities out side the home and not the usual arts and crafts on offer. Looking for a homely environment ideally not clinical, with similar disabilities and age group for…
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CP Network-We need your ideas for 2025
Hi everyone. We're looking ahead to 2025 and we would love to know if you have any subjects you would like the CP Network to cover in 2025. Put your answers in the comments. Thanks. @SaraC_Scope
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Changing the definition of cerebral palsy
The following article from the University of Michigan by Valerie Goodwin is an important one. Please be aware that some of the language within the article is not the language that I or Scope would use. Changing the Definition of Cerebral Palsy Organisations are now recognising Cerebral Palsy (CP) as a child-onset…
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Cerebral Palsy Cymru's Christmas Market
Cerebral Palsy Cymru are holding a Christmas fair on Saturday 30 November 2024. Starting at 11am until 2pm. If you live in Cardiff or the surrounding area this will be a great Christmas activity, whilst supporting a wonderful organisation. Please click on the link for more information and to register your attendance.…
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CP Network: Wellbeing Workshops: Join us on Wednesday 27 November 6pm
Join us on Wednesday 13 November (next Wednesday) for the first session of our wellbeing workshops. Through real-life stories and practical examples, we’ll explore how thinking shapes our experience. Learn what makes us resourceful, creative, and capable of overcoming life’s challenges. Join us to discover how recognising…
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CPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024
ICPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024 at 5pm UK time. “Finding My Voice - Adolescents with Cerebral Palsy and the Challenges of Growing Up” To mark the International Day of Persons with Disabilities, ICPS is again teaming up with the World Health Organization to…