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Young people living with cerebral palsy — we want to hear from you
💬 Young people living with cerebral palsy — we want to hear from you. Adults often talk about the experiences of young disabled people. Scope and the Cerebral Palsy Network want to make sure we’re listening directly to you. We’d love to hear your perspective on: 💜 How does fatigue actually feel for you? Not just being…
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Invitation to co-design standing frame intervention for a trial
Help us design a standing activity programme for children with cerebral palsy We want to hear from families, carers and professionals. Why this matters Cerebral palsy is a disability that affects the way that children move. Some children with cerebral palsy need full support to move and may spend long periods sitting or…
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Because you matter challenge. Starts today Tuesday 1 September 2026
I'm posting this 30-day challenge on behalf of Chrissie Henson, who has been in touch with Scope. and the Cerebral Palsy Network. Hi, I'm Chrissie. I am a person-centred therapist and author who also lives with Cerebral Palsy. I recently contacted @Richard_Scope as, over the last few months, I have set up a YouTube…
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Neurological Alliance Need You Please Sign the Open Letter
The NHS’s own measure of patient experience, the 2026 GP Patient Survey, shows people with neurological conditions continue to face significant inequalities in access to and experience of care compared with the general population, highlighting the need for a national plan for neurological conditions. People with…
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Disability Sports Wales. Sports Try Out
Disability Sport Wales is hosting another insport Series event this September 2026. The insport Series Event provides inclusive sporting opportunities for children, young people and adults with disabilities and impairments. Whether you're returning to try a favourite sport or looking to discover something new, the day…
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7 Tips for Mindfulness from a Cerebral Palsy Parent
We know that parents and caregivers of children and adults with cerebral palsy often manage more than most parents — whether it’s scheduling specialist appointments, navigating accommodations, or worrying about their child’s future — it can feel like a lot. 1. Non-judging: Okay, this one sounds easy, right? I try to…
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Understanding and Managing the Emotional Impact of Cerebral Palsy
It is Mental Health Awareness Week. So I wanted to talk about the emotional impact of living with cerebral palsy. Living with cerebral palsy can affect much more than movement. For some adults, it can also have an impact on emotional well-being, confidence, relationships, work, independence and social life. This does not…
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Mental health difficulties in cerebral palsy A qualitative study of young people
Study undertaken by: Manjula Manikandan, Jennifer Fortune, Jessica Burke, Aisling Walsh, Aoife Twohig, Ian McClelland, Amanda Breen, Meriel Norris, Jennifer M. Ryan, RELATE-CP study team This study emphasises the urgent need for integrated, person-centred mental health services for young people with CP. Addressing these…
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Autism Acceptance Month and Cerebral Palsy
Cerebral Palsy and Autism: Coexistence. Bridging the gap between two seemingly disparate neurological conditions, researchers unravel the enigmatic dance of autism and cerebral palsy within the human brain. These two conditions, while distinct in their primary characteristics, often intersect in ways that challenge our…
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Naidex,community,and the joy of not pretending you can do everything the hardway
There is something about Naidex that feels a bit like stepping into a very specific kind of family gathering. Not the stressful kind with overcooked buffet food and one relative asking inappropriate questions. The good kind. The kind where people just get it. Where nobody blinks at a wheelchair, a walking aid, adapted…
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Cerebral Palsy Is Lifelong — Services Must Be Too
Cerebral palsy does not disappear at 18. Yet adult services for people with CP are often fragmented, inconsistent, or difficult to access. Adults with CP are: • navigating employment and career progression • managing fatigue, pain and secondary conditions • experiencing ageing with a lifelong neurological condition •…
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Startle Reflex and Cerebral Palsy (CP)
As we approach Cerebral Palsy Month, I thought I would spotlight a question that I get asked in my role as cerebral palsy Programme lead for Scope. The question about the startle reflex is a really good (and very common) question. Outside of the cerebral palsy world, it’s one that often gets under-recognised outside of…
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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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World Suicide Prevention Day: 10 September 2025. Cerebral Palsy
September is Suicide Prevention Awareness Month. September focuses on raising awareness about the often-overlooked challenges faced by individuals living with mental health conditions. Suicide is a pervasive issue that does not discriminate, affecting individuals from diverse backgrounds. In 2023, the recorded rate across…
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Cerebral Palsy PC user needs
Trying to help a friend out. He is a able to use his computer with the aid of heavy duty buttons/paddles operating specialist software (left right and up down buttons on a grid) programmed to undertake various PC tasks. He also uses a Possum Primo to turn on TV etc. He cannot use his upper limbs for anything needing fine…
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Muscle relaxant cream suggestions
I was wondering if I could get some advice of products that have helped people. Not sure if this is the right place to put it, happy to move or delete as required. Context: I have CP that makes my hips tight, this is currently making my lower back tight with a knot that I am looking to relieve. I need to do some stretches…
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CP Teens Accessible Canal Trip!
Join us for a last-of-summer trip on 'Ethel' - the accessible canal boat! Saturday 26th September 2026. Trip departs from Victoria Quay, Sheffield at 11 am. The trip lasts 4 hours and returns to Victoria Quay. The wide beam barge is 57 feet long and is fully accessible. Lifts provide access to all areas of the boat. There…
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CPotential October Intensives – Monday 26th to Friday 30th
Dear CPotential families, friends and supporters, This October half term, from Monday 26th to Friday 30th October, we’re offering an Intensive Therapy Block for children with cerebral palsy and other movement disorders. Intensive therapy gives children the chance to focus on their individual goals over consecutive days,…
