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An ongoing battle-Parents battle for their children to access changing places in hospitals
It's devasting to read this article. Why are so many public buildings and public services lacking the essential facilities disabled people require. A Changing Place isn't a luxury, for some it's a necessity. Imagine visiting a hospital or a school or any public space, needing the toilet, but someone says, No, sorry they…
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Ciaran Fitzgerald. Playwright. Work In Progress-Play Review by Sara Edwards
Ciaran Fitzgerald – Playwright -A Fragile Hope. Ciaran Fitzgerald is an RTS Cymru award-winning disabled screenwriter and playwright from Port Talbot. His TV series ‘BWMP’ aired on S4C in 2025 and is the first Welsh-language comedy with a disabled protagonist. Produced by Octagon Content, its pilot won an RTS Cymru Award…
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Living with cerebral palsy-What career pathway did you choose?
Hi all. I'm supporting the Employment team here at Scope. After a meaningful conversation about cerebral palsy, the team wondered about the career pathways of people with CP . Alongside people’s employment history, the team wondered how long people have been in those positions and if they required any reasonable…
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FIDELIO Project Falling in the lives of adults with Cerebral Palsy
FIDELIO Project Falling in the lives of adults with Cerebral Palsy: Taking action to prevent, manage, and support through the life course Can you help the University of Nottingham and Scope? Purpose of the study is to collect information about: Why adults with cerebral palsy fall, trip, stumble – from standing, from a…
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Cerebral Palsy and Early Menopause Article
Cerebral Palsy and Early Menopause – Sara Edwards-Cerebral Palsy Specialist When it comes to women's health, many topics remain shrouded in silence, particularly for those living with disabilities. As someone with cerebral palsy and epilepsy, my journey through gynaecological health has been fraught with…
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You've Got to be Ballsy to Have Cerebral Palsy Poem and Video
On the occasion of World Cerebral Palsy Day 2025, the FightTheStroke Foundation presents "More than Palsy," an international awareness campaign about Cerebral Palsy, created in collaboration with DUDE: Milan and under the patronage of the Cariplo Foundation, the International Cerebral Palsy Society, Cerebral Palsy Europe…
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NHS 10 Year Plan
🟢 Help Shape the Future of Neurological Care We know that cerebral palsy isn’t just a childhood condition – it affects people right across their lives. That’s why it’s so important that your voice is heard as the NHS develops its new 10-year plan for health and care. NICE (National Institute for Health and Care Excellence)…
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Chest health and cerebral palsy
Help improve chest health for children and young people with cerebral palsy. Here is a video that explains more about the research: Participants needed: • People aged 8-25 with cerebral palsy • Parents or carers • Health, social, and education professionals • Researchers Your input will guide crucial measures for research…
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Why the Moro (Startle) Reflex Persists in Cerebral Palsy (CP)
A blog by Liz Whitely of Liz Whitely Counselling and Psychotherapy Understanding the Startle Reflex The startle reflex, which is also known as the Moro reflex, is a natural response that we often see in newborns. When a baby suddenly hears a loud noise or feels unexpected movement, they instinctively stretch out their arms…
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Publication of Commissioning Framework for Children and Young People with Cerebral Palsy
After working with NHS England and other key stakeholders, the most important of which were families, Scope is very pleased to announce that the Commissioning Framework for Children and Young People with Cerebral Palsy was published at the start of May. The framework can be found here: NHS England » Commissioning framework…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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Cerebral Palsy -social media advice page for young people
It's natural for teenagers and young adults to want to be part of a friendship group or community. Some find this networking activity an easy process, but for others it can be particularly difficult to find where they belong. Some young people with cerebral palsy can face challenges with building social networks. They…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Oldest person with CP?
We have been asked: "I
have had Cerebral Palsy since Birth. I am now 78 Years old and will be 79 in
July. Could you tell me if I am the oldest person with thus condition. If not
can you tell me the age of the longest living survivor of this condition?" I think the oldest person we interviewed for
Speaking for Ourselves was…
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Hi, my name is LilyS! Travelling with son abroad
Hi. I’ve joined the community as the mother of a son with Cerebral Palsy and hydrocephalus. He has a VP shunt. I always get concerned about travel as I worry about him having problems with his shunt whilst abroad and if the country we are visiting would have neurosurgical facilities. Has anyone any advice about places that…
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COMMUNICATION MATTERS FULLY FUNDED TRAINING AND DEVELOPMENT FOR AAC USERS
Peer Support & Mentoring Project: CM have funding from the National Lottery for the following training sessions (Zoom): 'Achieving Level 1 in Mentoring Qualification' Tuesday 2nd December 2025 2.00 pm - 3.30 pm: Becky Tyler (AAC user) and Verity Elliott (CM Mentoring Project Co-ordinator) This is an opportunity to find out…
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Water Therapy has Given my Daughter Confidence
A 15-year-old girl who was told she may never walk after being born with cerebral palsy has grown in confidence thanks to aqua therapy, her mother has said. Listen to Lillie's mum, Keighly discuss this with Radio Sheffield. BBC News Cerebral Palsy
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Profiling bed I can't get rid of
About 7 years ago I was given a profiling bed for my son who used to visit me at week-ends. My son has since stopped staying overnight and I don't need the bed anymore. The problem is that the NHS supplier has no record of the bed in their computer system and won't take it back! I've tried everything I can to give this…
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Breaking Barriers with Power Hockey
Ellis Palmer invited me to Greenbank to play power hockey. Greenbank offers a range of inclusive sports including power football, hockey, and boccia. We know moving with cerebral palsy is essential, especially as we get older. But it can be challenging to know where to start or even to meet fellow disabled people. Clubs…
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Getting fed up
Now after being diagnosed recently with moderate osteoarthritis of my lumber kyphoscoliosis of upper thoracic spine now after results of a neck mri I have cervical osteoarthritis cervical radiculopathy and degenerative disc disease have to go and see specialist as nerve severely compressed bilaterally because of bone spurs…
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Sexual surrogate
Hi, I have cerebral palsy and I am struggling to find a sexual surrogate, I need some advice on this please, I would appreciate the help.
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Invisible Disability Week & Blogging about my CP
Hello everyone, I hope you’re all doing well I recently learned that it’s Invisible Disabilities Week. Back in September, I finally plucked up the courage to start writing about my Cerebral Palsy in a blog. I wanted to share it with you all, but wasn’t sure how or when to do so. I’ve incorporated Invisible Disabilities…
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Consequences of Falls in Individuals with Cerebral Palsy
Please join us to learn more about the Consequences of Falls in Individuals with Cerebral Palsy Next Monday, October 27, at 1 am UK / 8 pm ET, clinical scientist Liz Boyer, PhD, will share findings of her study about falls in people with CP called “Consequences of Falls in Individuals with Cerebral Palsy.” This…
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Meet the Challenge Squad - BBC Children in Need
Last night, I watched the One Show introduce their Challenge Squad for Children in Need. All I can say, is what a great group of people to take on their challenges. I felt emotional listening to their stories. You can read more about them following the link below. Meet the Challenge Squad. Children in Need
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Frailty Index Could Improve Lives of Younger Patients
Researchers at a Scottish university have discovered a measure used to assess the health of older people can improve quality of life for younger patients. BBC News Cerebral Palsy
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World Menopause Day 2025
To mark World Menopause Day, our friend has written a very informative and helpful piece on menopause and cerebral palsy (CP). For many women with cerebral palsy, ageing can bring its own special challenges, particularly during menopause. “Often, they feel unprepared for the changes their bodies undergo during this time,…
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What do Special Schools Need to Know about the Law
National Association of Special Schools (NASS) Do you know your school’s legal duties under SEND law? On Tuesday, 18th November, Maria Bloom from IPSEA - Independent Provider of Special Education Advice is delivering a tailored online training session for special schools on what they need to know about the law. Topics…
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Join CP Scotland's new AAC Group for Children
📣 Exciting new opportunity for children with cerebral palsy! Thanks to generous funding from The National Lottery Awards for All, we’re thrilled to launch a brand new group for children aged 1–5 years with cerebral palsy, focused on building communication skills through Augmentative and Alternative Communication (AAC). 🎈…
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Need help for my daughter who has Cerebral Palsy
I am in desperate need of some help. My daughter Aimee has Cerebral Palsy and recently had a sore mouth which led to her movement of her tongue to get worse and then her body movements in general. She and I are finding it nearly impossible to sleep. She has upped her Baclofen a week ago to 20mg three times a day but…
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Mental Health Matters
This is a post from The Rosie Jones Foundation, which is doing some important work in the area of mental health and cerebral palsy. This World Mental Health Day, we continue to celebrate this week's announcement of our partnership with Disability Plus. This partnership focuses on providing lived experience-led mental…
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World Mental Health Day and CP
World Mental Health Day takes place every year on 10 October. It’s a reminder of the importance of good mental health and the need to prioritise and invest in good mental health. This year's theme is 'access to services - mental health in catastrophes and emergencies'. The theme highlights the importance of people being…
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Acrostic World Cerebral Palsy Day
A poem by Network CP member Jay for World CP Day Cerebral palsy makes us unique Every day we achieve something new. Remember we are unstoppable individuals will never stop until we reach the top. Every single day we learn a new skill. Being resilient is our biggest strength. Really proud of our accomplishments in our…
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Forty Years Later: The Viewpoint of Cerebral Palsy from a Sibling’s Perspective.
For World CP Day 6 October 2025. Warning- This article might contain information which some might find upsetting. When parents received a diagnosis of cerebral palsy and epilepsy in the 1970s and 1980s, it was an emotionally and practically overwhelming time. But what if you’re a sibling in this scenario? How does your…
