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CP Network: Wellbeing Workshops: Join us on Wednesday 27 November 6pm
Join us on Wednesday 13 November (next Wednesday) for the first session of our wellbeing workshops. Through real-life stories and practical examples, we’ll explore how thinking shapes our experience. Learn what makes us resourceful, creative, and capable of overcoming life’s challenges. Join us to discover how recognising…
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CPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024
ICPS (International Cerebral Palsy Society) is holding an Online Panel Event - 3 December 2024“Finding My Voice - Adolescents with Cerebral Palsy and the Challenges of Growing Up” To mark the International Day of Persons with Disabilities, ICPS is again teaming up with the World Health Organization to organise an online…
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Research participants needed
The University of Plymouth is conducting research into chest health in children with cerebral palsy. Poster description: Are you interested in supporting research in cerebral palsy? CHESTI-Conversations is a research study funded by the National Institute of Health and Care Research. We want to find the best ways to…
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The Cerebral Palsy Charter – World CP Day 2024
RECOGNISING CEREBRAL PALSY AS A LIFELONG CONDITION AND THEREFORE … Enabling access to the framework used by GPs to identify individuals with long term conditions, and offering annual medical reviews. Implementing systematic reviews leading to specialist neuro rehabilitation pathways for health interventions and for…
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Therapy with Cerebral Palsy England
When the National Bobath Cerebral Palsy Centre closed its doors for the last time on May 31, 2024, a group of its dedicated therapists decided to continue delivering specialist neuro-therapy and courses by forming Cerebral Palsy England. Their vision is to ensure that anyone with a neurological condition involving posture…
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Investigation of the physical and social Impact of living with hemiplegia.
Do you or your child live with hemiplegia? Have your voice heard UCL is conducting a research study: Investigation of the physical and social Impact of living with hemiplegia. We need adults (18+) as well as parents of children with hemiplegia (0-17 years). The purpose of the study is to hear from the population themselves…
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Understanding the Startle Reflex and Cerebral Palsy
Why Fire Alarms Give Me Anxiety as a Person With Cerebral Palsy Lucy JamesCerebral palsy is a condition that affects movement and/or motor control issues to varying degrees. For me, living with mild left hemiplegia often includes instances of tripping over my feet and busting up my knees and elbows, or frequently feeling…
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Maternity Care for women with CP: The RICH Project
We need two more women to join the study. Can you help? RICH Study - The University of Nottingham RIghts and CHoices for women with cerebral palsy: A qualitative studyto understand what works in the provision of their maternity care Purpose of the study: 1. To find out about the reproductive choices and experiencesof women…
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Research study on CP and Mental Health University of Surrey
We are hoping to interview about 15-20 participants with the following criteria: - Be over 18 years old- Be fluent in English- Live with CP- Not currently receiving any form of psychological therapy- Identify as having lived experiences of mental health difficulties related to living with CP- Access to a stable internet…
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Living Healthy Lives: Exploring the effects of growing older with cerebral palsy
For the last 2 years, Scope has been working with Dr. Sonali Shah and the University of Nottingham to understand the effects of cerebral palsy (CP) as people grow older and understand their needs and access to health services as they age. The project was the first and largest UK study about ageing with CP and healthcare…
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Assistive Equipment & Bespoke Solutions - Sharing Sources of Support
Able2Wear Wheelchair Clothing – Able2wear supplies specialised wheelchair clothing and accessories and have a unique collection of garments that ranges from waterproofs to underwear. They can also make something unique to suit your needs. Allied Mobility – Allied Mobility is the leading wheelchair accessible vehicles…
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Scope's Cerebral Palsy Network
The Cerebral Palsy (CP) Network is a group of people with lived experience of CP. The network supports the cerebral palsy community in England and Wales. Who can join? You can join the network if you: * are 18 years or over * have lived experience of CP, or * support someone with CP. Including family, friends, partners or…
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Our Next Welcome Café is Monday 9th of December 4:30pm until 5:30pm!
It was so good meeting everybody who could attend our first virtual chat! So good we're going to host another with our friends at CP Sport. If you would like to join us and say hi, Register Here If you have trouble registering for the Cafe, please email me at Richard.Luke@scope.org.uk We have now lowered the age range to…
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Mental Wellbeing and Disability
Mental Health & Disabilities Mental health is often left out of the disability conversation. Mental illness is the leading cause of disability worldwide, affecting 264 million people. Mental health conditions are a common by-product of living with other forms of disability. Mental health should be a crucial part of…
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In case You Missed it. Spasticity Management with Dr Val Stevenson and Bobath Video
Hello from The Bobath Centre, We wanted to take a moment to thank you for being a part of our Adult meetup with Dr Valerie Stevenson about managing spasticity in CP. We are grateful to Dr Stevenson for her time and are pleased that you were able to join us. The feedback we have received has been very positive and we hope…
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Mental Health and Cerebral Palsy
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your family, has a mental health issue, you are not alone. Mental and physical health are deeply interconnected. While chronic…
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Changing the definition of cerebral palsy
The following article from the University of Michigan by Valerie Goodwin is an important one. Please be aware that some of the language within the article is not the language that I or Scope would use. Changing the Definition of Cerebral Palsy Organisations are now recognising Cerebral Palsy (CP) as a child-onset…
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Cerebral Palsy Cymru's Christmas Market
Cerebral Palsy Cymru are holding a Christmas fair on Saturday 30 November 2024. Starting at 11am until 2pm. If you live in Cardiff or the surrounding area this will be a great Christmas activity, whilst supporting a wonderful organisation. Please click on the link for more information and to register your attendance.…
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Hi, my name is LilyS! Travelling with son abroad
Hi. I’ve joined the community as the mother of a son with Cerebral Palsy and hydrocephalus. He has a VP shunt. I always get concerned about travel as I worry about him having problems with his shunt whilst abroad and if the country we are visiting would have neurosurgical facilities. Has anyone any advice about places that…
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Anyone on this group who has an adult child with severe CP and other issues
Hi everyone, I’m keen to find other parents of adult children with complex disabilities. My son Alister is a 27 year old who is unable to do anything for himself. He is registered blind, non verbal and is gastrostomy fed. He has just had a recent hospital stay due to pneumonia. I would love to chat with anyone in a similar…
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Direct payments - transition to adult services and needs fall between two services
My daughter has a social care transition worker, and after an assessment, we were informed that we could apply for direct payments to fund a personal trainer with experience in cerebral palsy to work with her at the gym. I found a suitable trainer, but now we’ve been told that this is considered a healthcare need, not a…
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Lower back pain months after lumbar puncture
So a few months ago I've had a lumbar puncture and I can still feel pain around the area where the needle was inserted. The pain is somewhat dull, when I press on the bone around where the needle was inserted I can feel that exact same pain that I felt when the needle was poked in and the pain that remained for a few weeks…
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Had my first physio session in years today
After a frankly crazy amount of time without any support I finally had a physiotherapy session today and have a long term exercise regime I can follow! My motivation is quite low these days I can't lie but wish me luck 🤞
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Cerebral Palsy Specialist-Cardiff
Good afternoon everyone. I'm Sara and I've worked for Scope for five years in the family services team. I wanted to introduce myself again as I have recently been appointed as Scope's Cerebral Palsy Specialist for Cardiff and surrounding areas. I'm looking forward to working with the cerebral palsy community. Online and…
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Connecting the dots in an infant’s early development
REGISTER FOR THE WEBINAR Connecting the dots in an infant’s early development - Cerebral Palsy Scotland This webinar will provide Health Visitors and parents with practical ideas to support your baby’s development and milestone achievements. We will discuss strategies to support ongoing gross motor skill progression and…
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Hip problem due to muscle spasm
I would like to know why a person with cerebral palsy can have pain in the hip I have a strange feeling of pain on the left side of my hip Is it because I am more spastic in my legs due to my spastic diplegia What to do I am 49 years old I have not been followed by a neurologist since I was 13 We do not have many resources…
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CP and autistic
Hi. I am autistic and also have CP. I am just wondering if anyone else identifies as autistic?
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Man with cerebral palsy who gave up hope of finding work models for Primark
Grace Dean BBC News Rachel Price BBC News A man, Elliot Caswell, is sitting in an electric wheelchair in front of a blue backdrop in a photography studio. He is wearing a grey tracksuit and a black gilet and is smiling at the camera. A woman in a black top is taking his photo with a large camera. Elliot Caswell was…
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I’m Autistic And Have Cerebral Palsy — We Need To Get Menopause Support Right
"The average age for starting menopause is 51, but for people with learning disabilities, it tends to start earlier."By Emma Fraser I’m 43 years old, I’m autistic, and I have cerebral palsy. Now, I’m also navigating perimenopause. There are around 13 million people currently peri- or menopausal in the UK, equivalent to a…
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'In horse riding I don't have to depend on anyone'
Govind, a 16-year-old dressage rider from south-east London, has found independence on the back of a horse. "I have to rely on a lot of people in my day-to-day life, but in horse riding I don’t have to depend on anyone," he said. He has cerebral palsy, and began riding on the advice of his doctor, to help strengthen his…
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Discover Your Paralympic Potential events
Following a spectacular Paralympic Games in Paris where we saw so many inspirational performances from ParalympicsGB athletes, we are on a mission to bring sporting opportunities to as many disabled people as possible. We are excited to announce that each National Disability Sport Organisation and ParalympicsGB, are…
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What's Life with Cerebral Palsy Like? My Neuro Survey 2024-2025
What's life with cerebral palsy really like? Share your experiences We're urging Scope supporters to fill out My Neuro Survey. Run by The Neurological Alliance, My Neuro Survey is the largest patient experience survey of people with neurological conditions in the UK. By filling in the survey, you will help to improve the…
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Communicating with cerebral palsy: How Maddy found her voice
Maddy Norman says she was born without a voice, using technology to communicate since she was five - now she performs poetry recitals. Watch Maddie's interview on ITVX
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Reconnection with My College Friend! 🥰
Hi Everybody at Cerebral Palsy Network, I’d really like to reconnect with Claire Dalgety (lives in Goole) because when I was at Beverley College with her, I couldn’t see the Wood for the Trees! 🌳🌳🌳🌳 I wish I’d partied 🎉🥳🎉 more, studied less, I also wish I’d kept in touch & made more Friends at the Beverley College, too!…
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Mum writes play about her battle for son's cerebral palsy support
Mumfighter-Swansea play review. Powerful play explores life bringing up a disabled child. Wales Online Mumfighter play review
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The Art and science of Living with Cerebral Palsy
For those of us that were not up and about at 4 am. Here is the recording of the webinar. This webinar was hosted by My CP Guide and presented by a lived experience panel in an open discussion facilitated by Stacey Cleary of CP-Achieve. This webinar explores individual experiences with medication. Each person from this…
