Hi, my name is Duncan33! I am Dad and sole carer for my 40 yo son who has special needs and learn...

Duncan33
Duncan33 Online Community Member Posts: 1 Listener
edited April 9 in Families and carers

I am Dad and sole carer for my 40 yo son who has special needs and learning difficulties, I am 79 and not in good health,, Fibromyalgia, CFS , osteoarthritis kidney failure etc. we are approaching the time for my son to go into Shared Living. He is terrified.

He suffers from depression, getting very angry and out of control sometimes, I am coming to the stage where I cannot look after him. I a m also terrified for his future.

I know that when I pass away there is no one to look after him.

Sorry for the long rant, just needs saying.

Michael

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Comments

  • Bluebell21
    Bluebell21 Online Community Member, Scope Member Posts: 10,450 Championing

    Hi @Duncan33 Welcome to the Community. I hope you enjoy your time on the forum. Any questions just ask.

    I am sorry things are so difficult for you.

    You can rant as much as you like. We are always here to listen and offer support where we can.

    Have a look around and join in when you are ready.

    Take care.

  • luvpink
    luvpink Online Community Member Posts: 1,918 Championing
    https://forum.scope.org.uk/discussion/132173/hi-my-name-is-duncan33

    Hi and a very warm welcome to the community.

    I am so sorry to hear of yours and your sons situation.

    Thinking of you both.

  • Holly_Scope
    Holly_Scope Posts: 1,891 Scope Online Community Coordinator

    Hi @Duncan33 and welcome to the community! Thank you for being so open and sharing your situation. I can completely empathise with how you must be feeling, especially with supporting your son all his life. This decision must be incredibly difficult, but it's important that you're evaluating these changing circumstances.

    Have you any thoughts about some additional support options and how you see that looking? It might be a good idea to get an NHS care needs assessment so they can review your needs and work with you to put appropriate care in place. I've added a link to the website here - Getting a care needs assessment - Social care and support guide - NHS

    Best wishes,

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