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🛀Keeping Routine At Home for Parents & Carers of Disabled Children - Summer Holiday Support 🛀
Part One - An Introduction for Parents & Carers of Disabled Children Part Two - Accessible Days Out For Parents & Carers We’re in the middle of the summer holidays and if the lack of routine is proving difficult then please know you’re not alone! The shift away from the routine and support of school can be a big adjustment…
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Hi, my name is Starhero! I am my daughter appointee for universal credits, she has limited ...
I am my daughter appointee for universal credits, she has limited capability for work, sensory processing skills, communication difficulties and hypermobility. She is at university. I have just been through a review with enhanced review team which impacted greatly with my daughters relationship. I originally received a…
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Playday 2025🤸♀️😄
Yesterday was Playday which is the UK’s annual celebration of the importance of play in children and young people’s lives. This year’s theme focused on the need for better quality play spaces that support happiness, health and belonging. It’s so important there is more accessible, inclusive and welcoming spaces where all…
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🌳Summer Holiday Support - Accessible Days Out For Parents & Carers of Disabled Children🌳
Part One An Introduction for Parents & Carers of Disabled Children Part Three -Maintaining Routine in the Summer Holidays Finding fun, inclusive and accessible days out can be a challenge but there does seem to be an increasing number of places that are becoming more accessible and inclusive for disabled children and their…
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Hello. UC query
HI, My 26 year old daughter lives with us and works. We are just moving from ESA to UC. I'm in receipt of DLA (middle care) and my husband gets high rate PIP. Will our UC credit be reduced because my daughter works? Thanks
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⭐️Summer Holiday Support - An Introduction for Parents & Carers of Disabled Children ⭐️
Part Two - Accessible Days Out For Parents & Carers of Disabled Childre Part Three - Maintaining Routine in the Summer Holidaysy We’re at least a week into the summer holidays now, perhaps even longer for some of you! How is it going? The summer holidays can be a time of fun and freedom but it can also bring some…
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what will happen to my UC TP?
This discussion was created from comments split from: UC Note "We have arranged a compliance telephone interview for you" having a panic attack .
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Hi, my name is seka! .I currently get carers allowance and non work related esa with a premium next
Hi ..I currently get carers allowance and non work related esa with a premium next month it is all due to switch over to UC. My youngest is going to uni in september and is considering residency and is currently recieving UC how does this affect us both? where can we find what we would both be able to claim under these…
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💫🤩What Has Your Child Taught You? - Disability Pride Month🤩💫
Part One - Disability Pride Month For Parents & Carers of Disabled Children As we’re in Disability Pride Month, I thought it would be a good time to shine a light on the children of the wonderful parents and carers here in the community! As parents and carers of disabled children you all do so much such as advocating,…
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Hi, my name is Abbee!
Hi all, in a bit of a negative place right now. Strike survivor, not recovered as well as I’d hoped (so far). My father passed away recently and the tiny bit of blood family have all abandoned me. I do not do drama and myself and my father made a point to stay away from it. now it’s all going on. I can’t do any of my…
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Transitional protection and non dependant moving home
I recieve transitional protection on uc because I was migrated from income support which had disability premiums included as I recieve pip and live alone. My adult son wants to move back home due to his relationship ending and I'm obviously not going to see him on the streets but I am worried about how this will affect my…
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Hi
anyone online I’m new here but I’m struggling to understand why my family and so called real friends can turn on me just because I’m disabled have few medical issues ,making me feel worthless out here ,so I found this group ,feel fre3 to talk to me anytime as Iv no one to talk to
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😄✨Disability Pride Month For Parents & Carers of Disabled Children ✨😄
Part Two - What Has Your Child Taught You? Disability Pride Month is a time to celebrate disabled people, identities, and communities. For parents of disabled children, it can also be a time to reflect on how far you’ve come, what you’ve learned and what disability pride means to you and your family! For many parents, it…
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World Wellbeing Week
On the last day of World Wellbeing Week, here is a simple and effective technique to help manage negative thinking. We live in a world filled with uncertainties and it's all too common to be overwhelmed by stress and anxiety. This state of being can often lead to negative views of feeling worthless or unloved. Emotions…
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Help with disability aids
Hi, sorry if this is the wrong category I'm very new here (made an account only a few minutes ago) I've gotten a diagnosis last year and have only just warmed to the idea of using an aid, I feel a bit anxious about it and worried people in my life will think I'm exaggerating. I ideally need a cane or a wheelchair but I'm…
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Attendance Allowance online application
Morning guys, yesterday I helped my mum apply for attendance allowance using the online form. I helped my late father apply about 5 years ago, however it was the paper based form back then. I am shocked at the lack of detail in the online form and how there wasn't any option to provide any real commentary regarding how…
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Children with Speech Issues Risk Poor Mental Health.
Children struggling with their speech and language are at greater risk of developing mental health problems like anxiety and depression, the charity Speech and Language UK has warned in a report seen exclusively by the BBC. BBC News Speech and Language Issues Related to Poor Mental Health
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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Happy Best Friends Day - Disabled Children and Friendships 😀👯♀️
Happy Best Friends Day! Making friends can be tough for anyone, but there can be extra hurdles for disabled children. These may include things like accessibility issues, social barriers or a general lack of awareness or understanding. If your child doesn’t make friends right away, especially when they’re young, please…
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Carers Week
A carer is a person of any age who provides unpaid care and support to a family member, friend or neighbour who is disabled, has an illness or long-term condition, or who needs extra help as they grow older. (Carers UK, 2025) I have cerebral palsy and epilepsy; my mum has a dementia diagnosis. Families like ours, rarely…
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BBC Make a Difference Awards in Wales 2025
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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BBC Make a Difference Awards in Wales.
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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Barriers to Accessing Education Online Sessions
[FREE for all Families in Wales] We are hosting more online sessions for families who are experiencing challenges with their child accessing education. This could be due to emotional, social, behavioural or academic needs. It's a space that you can utilise to ask questions, seek support and guidance, and hear the…
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Join our online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Designing Digital Services For Parents of Disabled Children - Survey
Hi everybody😀 I have recently started a new course called Designing Digital Services and I am particularly interested in creating digital services for parents and carers of disabled children. I have created a very short survey which I have linked below that I hope will give me more insights and information on the sorts of…
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Disabled Children and Sleep - Practical Sleep Strategies for Parents and Carers🌙😴
Part One - Disabled Children and Sleep - An Introduction😴🛌 Part Three - Services and Signposting Support😴💤 As part of our focus on sleep this week, this blog post is all about practical sleep strategies you can try at home. You don’t need to do everything, just pick and choose what feels manageable and see what works best…
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Disabled Children and Sleep - Services and Signposting Support😴💤
Part One- An Introduction😴🛌 Part Two - Practical Sleep Strategies for Parents and Carers🌙😴 As our final post for sleep week, we are going to look at signposting and services available to help families caring for disabled children. Specialist Help with Sleep Cerebra has free sleep service and offer individual support for…
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If you can, plan ahead , a success story
I was born with cerable palsy, .My parents were told that I would never be able to read, walk and speak properly. However thanks to their support I managed to overcome most of these difficulties. I started working with a few minor jobs until my early 30s. I was then fortunate enough to find a well paid job, get married and…
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Migration to UC and elderly parent moving in
hi all I’ve been renting from my mum for over 13 years, I am on PIP and income related ESA support group, I get housing benefit and council tax benefit, I live with my 22 year old daughter who is at university at the moment. i did ask on here before that if my elderly mother moved in would it affect my ESA. I understand…
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Removing an appointee
Hi My son previously claimed PIP and UC when very unwell a few years ago. He's thankfully fully recovered, his claims stopped in 2023, he's been to uni and can now manage independently. He needs to claim UC for a few months while he looks for a job. I'm still down as his appointee and we've called numerous departments try…
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Carers allowance and carers element
Hi, Me and my Dad both care for my Mum. My Dad has just stopped receiving Carers Allowance payments as he has reached pension age but he is still registered with the Carers Allowance as my Mums carer. I receive UC, am I able to claim for Carers Element for looking after my Mum or not because my Dad is claiming carers…
