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Where do you draw the line between transparency and privacy in a relationship?
If your partner constantly checks your phone, social media, and messages, is that: A. A sign they care about you. B. A sign they don't trust you. Let me hear your thoughts. 👇🔥
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I ran the width of England for my inspiring brother
A man has run the width of England in one go, inspired by his close relationship with his younger brother who lives with cerebral palsy. Charlie Isaac, 32, who grew up near Stroud, Gloucestershire, completed the 70‑mile (115km) challenge along Hadrian's Wall from Carlisle to Newcastle, raising £5,900 for Wiltshire's…
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First christmas alone research
A week before Christmas, I become a researcher again. Not the neat, academic kind with clean questions and manageable variables. The kind you become when your life turns into an experiment you didn’t consent to and your only tool is attention. I study my own days the way a historian studies a crumbling archive: carefully,…
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Want to join the conversation about ageing?
Registration of Interest to Participate – Fill in form We need to hear your voices to ensure this research speaks for all members of society. If you would like to know more, please have a look at the information sheet.
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Hi, my name is chrissie44!
hello I’m 58, and suffer with lipodema & Lymphodema. Use a wheelchair a lot of the time but can use crutches at times.
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Can CP get worse with age?
Hi there, I'm a 48-year-old woman with Athetoid CP, and up to now, my involuntary movements haven't been a problem, maybe the odd month or two. However, every time I drink, my head flips back, and the drink goes all over my head. It has got to the stage where I'm scared to drink even though I'm thirsty. I would really…
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Advice on dating or making friends as a disabled person in the UK?
Hi everyone, I'm new here and based in London. I have [your disability if you want to share, e.g., cerebral palsy / mobility issues / etc.], and I've found it really hard to meet people for friendship or dating. Mainstream apps feel tricky because of judgments or accessibility stuff. Has anyone had success with online…
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Grants for autistic person
Hi my daughter is autistic and she hasn’t spoken in 4 years we want to get her started with a AAC device to see if this would benefit her which I believe it will immmensly does anyone know of any charities that give grants for iPads and proloquo2go? She is 19 years old and we get PIP for her but it really isn’t enough we…
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DLA Mobility Timescales
Hello automatic review forms came out as son turned 5, DLA received them back 9th march. Can anyone advise of current wait times for a decision?
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Hi, my name is RebeccaSENDbeacon!
What a fantastic community here. I look forward to listening and learning and hearing what the current challenges and successes are.
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My son can barely walk but officials say he must attend mainstream school
Ami Phillips said it has been a 'constant battle' to try to get her son the support he needs My son has cerebral palsy and I'm fighting for his education (Wales Online)
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It's Purple Day-26 April 2026
Today is Purple Day! A worldwide day to acknowledge and celebrate those living with Epilepsy. It was founded in 2008 by a young Canadian Cassidy Megan, it encourages people to wear purple and host events to raise funds and awareness. Lavender is the international flower of epilepsy, symbolizing isolation often experienced…
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Help for my family
hi hope someone can help me and my family. i am nearly 19 with cp learning difficulties my mum is 47 also ill she has ccopd arthrtis through her body diabbities and mental health then there is my dad he is 44 and the family carer. also i have aq 16 year old brother who has problems but we dont know what they are we just…
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Unaffordable public transport
It used to cost me £10 per week to put fuel into my car to visit my Daughter and Grandchildren in the next village (rough terrain and poor mobility means walking isn't an option sadly). Now it takes over an hour to get there and £7 per visit on public transport which has made seeing my family more than once a month…
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Mind
Mental health issues
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Educational adjustments for daughter
Hi everyone, My daughter passed college due to no exams only coursework, however to attend university she had to pass English which she took for 5 years and failed, she had diagnosed dyslexia and dyscalculia and a recent referral for autism. She passed her English only due to Covid and the way the college tested, on…
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Social Services - advice wanted
I would like to ask for advice on behalf of a friend. My friend is a vulnerable woman with learning difficulties, but is able to live independently. She has been divorced from her abusive ex husband for many years. She has 2 adult daughters, also with learning difficulties, who were being cared for by her ex husband. Until…
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Getting married but living apart on UC
Hello, Could I ask advise please. My partner and I want to get married to make that ultimate commitment to eachother but we don’t want to live together. We both in our mid 50s and settled in separate home lives and want this to continue. My partner lives alone 20 miles away and I live with my adult daughter who helps me…
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I AM NOT OKAY - Spotlight - on BBC2 at 9pm tonight
I Am Not Okay - SpotlightSpotlight Mothers reveal to Tara Mills their struggles to cope with sons whose complex needs can lead to distress and aggressive outbursts, often leaving themselves and other family members injured. They tell Tara they feel judged and blamed by the system that is meant to protect them, and feel…
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Reaching out
Hi, I was diagnosed with COVID October 2020 and within weeks of the effects staying with me, got the dreaded Long COVID diagnosis. Here I am 5 1/2 years later, still struggling daily and feeling like I'm getting worse, not better. No taste. No smell. Chronic aches and pains. SOB. Now being treated for COPD. Struggling with…
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Uc and non dependant earnings
Hi, my uc claim includes my 24 year old and a deduction is made. She also pays me 350 for bills food and travel. Is this allowed or is it classes as earnings for me
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Feeling guilty as a carer when you’re exhausted – how do you reset?
I care for my parents alongside a full-time job and, most days, I just about manage. But every now and then I hit a wall and feel completely worn out. On those days I’m not as patient as I’d like to be with my dad, and afterwards I feel really guilty. I know I’m not the only one juggling work, caring and trying to have…
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RIghts & CHoices to maternity care for women with cerebral palsy video
This video was made by Dr Sonali Shah with the support of Scope, CPAAUK and ScienceExplained. It is part of a NIHR funded project to explore access and utilization to maternity care for women with CP. It is informed by interviews with women with CP talking about barriers and facilitators experienced during pregnancy,…
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Hello 👋🏽
Just joined this group I am looking for ways to support my stepdaughter who is 35 and has mild cerebral palsy, so I have a better understanding of how to assist her
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People refusing to let me be more independent with my Cerebral Palsy
Hi I wanted to start this discussion because I have been thinking about my own independence. I would love to learn to drive but problem is I have people telling me that I can't do it because I have a weakness in my right side and it annoys me when people like my family say you can't do this you can't do that. I have…
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Just wanted to say hello
I wanted to say a big hello from the southwest of England. I’m happy to be part of your community. I’m also looking for a new role to be part of this project in a lived experience and frontline experience way as I have many years of experience working with vulnerable people seeking who are seeking support and advice. I am…
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Growing up with cerebral palsy. Then, Now and What comes next. Podcast.
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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When decided
Nose 👃🏽
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I don’t want my mum as my appiontte I want my partner to be
I am moving out and I need my partner to be my appointee as I’m moving in with him and I don’t have the best relationship with my mum I manage my own bank account but can’t manage my own benifits when it comes to pip assessments reviews ect I’m on pip and esa can anyone help I have no idea were to even begin with it all as…
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Sleep deprived
