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Help with disability aids
Hi, sorry if this is the wrong category I'm very new here (made an account only a few minutes ago) I've gotten a diagnosis last year and have only just warmed to the idea of using an aid, I feel a bit anxious about it and worried people in my life will think I'm exaggerating. I ideally need a cane or a wheelchair but I'm…
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Attendance Allowance online application
Morning guys, yesterday I helped my mum apply for attendance allowance using the online form. I helped my late father apply about 5 years ago, however it was the paper based form back then. I am shocked at the lack of detail in the online form and how there wasn't any option to provide any real commentary regarding how…
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Children with Speech Issues Risk Poor Mental Health.
Children struggling with their speech and language are at greater risk of developing mental health problems like anxiety and depression, the charity Speech and Language UK has warned in a report seen exclusively by the BBC. BBC News Speech and Language Issues Related to Poor Mental Health
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British Pediatric Neurology Association- Approaching Children's Tone Seminar
On Thursday 12 June and Friday 13 June, I attended a two-day Public Patient Involvement (PPI) called Approaching Children’s Tone. It was hosted by the British Paediatric Neurology Association (BPNA). I was invited as a professional with lived experience of children presenting with tone concerns and to contribute to this…
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Happy Best Friends Day - Disabled Children and Friendships 😀👯♀️
Happy Best Friends Day! Making friends can be tough for anyone, but there can be extra hurdles for disabled children. These may include things like accessibility issues, social barriers or a general lack of awareness or understanding. If your child doesn’t make friends right away, especially when they’re young, please…
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Carers Week
A carer is a person of any age who provides unpaid care and support to a family member, friend or neighbour who is disabled, has an illness or long-term condition, or who needs extra help as they grow older. (Carers UK, 2025) I have cerebral palsy and epilepsy; my mum has a dementia diagnosis. Families like ours, rarely…
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BBC Make a Difference Awards in Wales 2025
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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BBC Make a Difference Awards in Wales.
Community heroes from across Wales have been shortlisted for the BBC Cymru awards on 20 September 2025. You can read all the nominations by following the link BBC Make a Difference Awards One of the Young Hero Award nominations is Andrei Santau. Diagnosed with CP, Andrei took his first independent steps at the age of 10. A…
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Barriers to Accessing Education Online Sessions
[FREE for all Families in Wales] We are hosting more online sessions for families who are experiencing challenges with their child accessing education. This could be due to emotional, social, behavioural or academic needs. It's a space that you can utilise to ask questions, seek support and guidance, and hear the…
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Join our online event for Parents of Children with Cerebral Palsy 💚
You're Invited! 🤝 Connect with other parents 🧠 Meet our Cerebral Palsy Specialist, Lucy 💬 Share your story and let us know how we can support you 🗓 When: Thursday, 26 June 🕦 Time: 11:30 AM – 1:00 PM 📍 Where: Zoom 🎟 Reserve your free ticket now on Eventbrite!
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Designing Digital Services For Parents of Disabled Children - Survey
Hi everybody😀 I have recently started a new course called Designing Digital Services and I am particularly interested in creating digital services for parents and carers of disabled children. I have created a very short survey which I have linked below that I hope will give me more insights and information on the sorts of…
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Disabled Children and Sleep - Practical Sleep Strategies for Parents and Carers🌙😴
Part One - Disabled Children and Sleep - An Introduction😴🛌 Part Three - Services and Signposting Support😴💤 As part of our focus on sleep this week, this blog post is all about practical sleep strategies you can try at home. You don’t need to do everything, just pick and choose what feels manageable and see what works best…
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Disabled Children and Sleep - Services and Signposting Support😴💤
Part One- An Introduction😴🛌 Part Two - Practical Sleep Strategies for Parents and Carers🌙😴 As our final post for sleep week, we are going to look at signposting and services available to help families caring for disabled children. Specialist Help with Sleep Cerebra has free sleep service and offer individual support for…
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If you can, plan ahead , a success story
I was born with cerable palsy, .My parents were told that I would never be able to read, walk and speak properly. However thanks to their support I managed to overcome most of these difficulties. I started working with a few minor jobs until my early 30s. I was then fortunate enough to find a well paid job, get married and…
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Migration to UC and elderly parent moving in
hi all I’ve been renting from my mum for over 13 years, I am on PIP and income related ESA support group, I get housing benefit and council tax benefit, I live with my 22 year old daughter who is at university at the moment. i did ask on here before that if my elderly mother moved in would it affect my ESA. I understand…
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Hi, my name is seka! .I currently get carers allowance and non work related esa with a premium next
Hi ..I currently get carers allowance and non work related esa with a premium next month it is all due to switch over to UC. My youngest is going to uni in september and is considering residency and is currently recieving UC how does this affect us both? where can we find what we would both be able to claim under these…
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Removing an appointee
Hi My son previously claimed PIP and UC when very unwell a few years ago. He's thankfully fully recovered, his claims stopped in 2023, he's been to uni and can now manage independently. He needs to claim UC for a few months while he looks for a job. I'm still down as his appointee and we've called numerous departments try…
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Carers allowance and carers element
Hi, Me and my Dad both care for my Mum. My Dad has just stopped receiving Carers Allowance payments as he has reached pension age but he is still registered with the Carers Allowance as my Mums carer. I receive UC, am I able to claim for Carers Element for looking after my Mum or not because my Dad is claiming carers…
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Disabled Children and Sleep - An Introduction😴🛌
Part Two- Practical Sleep Strategies for Parents and Carers🌙😴 Part Three - Services and Signposting Support😴💤 This weeks focus on the family side of the community is sleep. If your child struggles to fall asleep, stay asleep or wakes frequently throughout the night, you’re definitely not alone. Sleep difficulties are…
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Non-Dependant Deduction
Hi, My son has recently been awarded the Daily Living Component of PIP. Will a non- dependant deduction for him still be calculated in my housing and council tax costs? I am his carer and have no disabilities myself. Many thanks.
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Child element
hello my child is still in school leaving school soon to start college I’m having mixed reviews on google it says your child working effects your u c and that I must report it to u c can someone help I’ve got a compliance interview with child element don’t know what’s it’s about
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Guardianship
Does anyone have experience of setting up guardianship for an adult (aged 55)? My stepson, who lives in Scotland but likely moving to England this year, has LPA in place by his stepdad who wants to revoke this and pass responsibility to his Dad and I. I'm concerned that he will not pass the capacity test for a new LPA now…
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Phone compliance interview - child element review
hello please can someone give me advice I’ve had a message on my journal to say I’ve had a telephone interview in two weeks time it says they have information to suggest that me child element needs reviewing my child is due to finish school this year and when I continue to read the letter it goes on about not declaring…
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Live in carers
Hi all, I live with my dad who has clinical depression and sadly I have developed very severe health anxiety due to his illness and living in an environment that is mentally unhealthy. Also getting pericarditis was a huge trigger. He is a great dad but I just can’t cope here anymore. I have unfortunately been in and out of…
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Leeds family voices wanted
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Barriers to accessing education-Free wellbeing session for parents of disabled children
FREE for Families in Wales Barriers to Accessing Education Is your child struggling to attend, or maintain attendance in school? Join our drop-in session for parents; a relaxed and supportive space where you can seek advice, speak to others, or simply listen. What’s It About? • Guidance and Advice: Get practical tips on…
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World Autism Acceptance Month - Pathological Demand Avoidance (PDA)
Part One - World Autism Acceptance Month – Introduction for Parents and Carers Part Two - World Autism Acceptance Month - Practical Strategies for Parents and Carers Part Three - World Autism Awareness Month - Autism and Girls Pathological Demand Avoidance(PDA or sometimes known as Persistent Drive for Autonomy) is a…
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Dementia and Benefits
Hi all, I am currently receiving Support rate New ESA and PiP. I live with my long suffering husband who works full time we are both in our mid-late 50s. My Mum is nearing 90 and although physically fit, she has rapidly increasing dementia and now is at the point where she needs constant supervision. She isn’t wandering,…
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Hi, my name is cda! My son is applying for pip and I’m his appointee. I filled in the form then ...
Hi My son is applying for pip and I’m his appointee. I filled in the form then got a telephone assessment date. After receiving the date for the assessment, I asked if it could be a paper based assessment because it would cause my son significant distress. They noted this but said it may get rejected. Not heard anything…
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Hi, my name is Eviemae98! First time on here,my daughter is the one with a chairi 1malformation...
hey all first time on here,my daughter is the one with a chairi 1malformation and she has always experienced symptoms of it,but her neuro consultant has always dismissed her symptoms she now works and is doing an apprenticeship which she loves but she does come home completely whacked out!!and effects her mood,does anyone…
