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Flower power
I was feeling rather fed up this morning and dealing with health flared up yet again then I got a knock on the door a delivery of tiny plug plants that I completely forgot I ordered in early January on a special offer deal so it was a nice surprise today seeing these tiny little plants about an inch big and knowing that…
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Carers allowance suspended
hi my daughter receives high care and low mobility and I work one day a week! I was advised to apply for carers she under 16 no esa or pip had letter to say I was entitled and was expecting first payment today! Nothing called them said claim suspended no notes so no idea why he’s filled report in :(
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PIP appointee for son and mobility when we already have a car on finance
Hello looking for some advice please. My 16 year old son has just been awarded enhanced daily living and enhanced mobility of PIP and I am his appointee. I don’t drive but my husband does and the car is used to get my husband to and from work, shopping and appointments. Our current car is on finance which was taken out…
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Hi ,every one my question about benefits
,Hi I am on PIP and ESA support group and UC and I have 2 sons they start working does it effect my benefits ? and when I need to inform benefits office ? please advice
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Reassurance
Well yesterday my daughter aged 22 broke down with chronic anxiety about the benefit cuts although she has a few health conditions including autism she was refused pip a couple of years ago and took it to heart saying they think I am lying so refused to go through the process anymore she is doing her modern history masters…
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Hi, my name is Jo69! I am trying to find out if my Mum has to pay council Tax or can she get a...
Hiya I am trying to find out if my Mum has to pay council Tax or can she get a reduction please. Her council tax has gone up to £240 month can she get any help with this please. My Mum has lung Cancer and COPD her lung cancer has returned after a year of having it removed and they told us it is not curable. My brother her…
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Hi, my name is sunshine93! Hi, I’m a mom of four and I take care of my disabled sister. She has ...
Hi, I’m a mom of four and I take care of my disabled sister. She has cerebral palsy . I have a problem with the housing and I really need help with any advice of what to do. We live in a 3bedroom rented house and joined the house register 2.5 years ago when my sister had a really bad fall on the stairs and since then her…
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Divorce help/info
Hi, I was wondering if anybody had any advice for me. Please be gentle. I'm on PIP and have been for years, I've been married for 5 and live with my mum and my husband - both who work full time. My husband and I are looking at getting a divorce, uncontested. I cannot afford the pay for the full divorce and he's been…
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Claiming housing benifit and council tax
Hi , my parents are pensioners and claim pension credit , they currently dont pay council tax and rent , however my father recently passed away and the council have contacted her to say the benifits have been cancelled and need to reapply my question is now with my fathers savings going to my mum she will have over £16000…
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Hi, my name is RachelBirch!
Hi everyone 👋 I am new to this group. I do have a number of aggressive chronic conditions including Parkinsons just to life a tad harder 🥹 I’m looking forward to joining in where I can. Thank you every one 🙏🏻🥰
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My cerebral palsy and epilepsy journey. Cerebral Palsy Awareness Month
I was diagnosed with right sided hemiplegia at the age of one in 1977. I had my first seizure at the age of two and was diagnosed with epilepsy soon after. In the early days physio was part of my childhood routine, and I accepted it. But as I got older, I noticed people would stare at me when we were out and even though I…
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Child benefit
my daughter finishes college this June and I was wondering when I notify child benefit or if it naturally stops ?
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UC And Non-Dependent Contributions
Apologies if this post is long or convoluted, I just want to make sure I’m doing things right. Basically my wife is disabled and we claim UC with LCWRA. She also gets PIP. I get carers allowance which is paid separately to the UC. We have 4 children and 2 of them are non-dependent who work (although my older son is…
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Carers allowance and UC
hi all, My mum gets carers allowance for caring for me, but she’s planning on getting her pension instead. I’ve read that if my mum doesn’t get carers allowance, it can impact how much I receive with UC (LCWRA) - I was wondering how much I could expect to lose (if any) when she stops getting carers allowance, please, so I…
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No state pension
Hi, I am a carer for my brother in law who is reaching 66 in September. I have just received the letter to say that he will be receiving a lower rate of ESA from August 31. He receives higher rate PIP but no other benefits. He is not entitled to a state pension as he has never worked. He does live relatively independently…
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Hello Everyone! I am looking to connect and make new friends.
Hi Everyone, I'm Andy, and I'm navigating life with neurodiversity. I received a late assessment confirming autism spectrum disorder (ASD), attention deficit hyperactivity disorder (ADHD), pathological demand avoidance (PDA), sensory processing disorders (SPD), and specific learning difficulties (SpLDs) like dyslexia and…
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International Women's Day - Celebrating Disabled Mothers and Mothers of Disabled Children
Part 2 - Navigating Motherhood With A Disability with Sarah Part 3 - Challenging Attitudes Towards Mothers of Disabled Children with Jenna It is International Womens Day this Saturday and so in the leadup to that, this weeks focus is going to be on celebrating disabled mothers and mothers of disabled children. Motherhood…
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International Womens Day - Navigating Motherhood With A Disability with Sarah
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Three - Challenging Attitudes Towards Mothers of Disabled Children with Jenna As part of celebrating International Womens Day on the community this week, this is an interview with Sarah who is a Child and Family Specialist on Scope Helpline This…
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International Womens Day - Challenging Attitudes Towards Mothers of Disabled Children with Jenna
Part One - Celebrating Disabled Mothers and Mothers of Disabled Children Part Two - Navigating Motherhood With A Disability with Sarah For our final part of our week long celebration of International Womens Day, this is an interview with Jenna who is a mother to 2 disabled children. We hope this will help shine light on…
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What Do Parents/Carers/Families Want To See From The Community?
I am interested in what parents/carers of disabled children and their families want to see from the family side of the online community. This will let me know what content to create and how I can be most helpful for you and your family! Please vote in the poll or comment below what you would like to see on here from me or…
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Using respiratory support (CPAP, non-invasive ventilation/NIV or similar).....
Are you a parent of a child (with cerebral palsy) who uses (has used) breathing support (like CPAP or similar devices) at home when asleep? Or has tried to use such breathing support? If so, then we would like to hear about your journey! Sleep, and breathing issues in sleep (i.e. sleep apnoea) can be really challenging for…
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Teen who beat the online bullies. On a mission to improve wheelchair access
A great story during Cerebral Palsy Awareness month and to celebrate Purple Day for Epilepsy. A teen is on a mission to improve wheelchair access after seeing success of law against online bulling. Zac Eagling, from from Liversedge, West Yorkshire, has cerebral palsy following a brain injury at birth but that has not…
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Teen who beat the online bullies with Zach's Law. On mission to improve wheelchair access
A great story during Cerebral Palsy Awareness month and to celebrate Purple Day for Epilepsy. A teen is on a mission to improve wheelchair access after seeing success of law against online bulling. Zac Eagling, from from Liversedge, West Yorkshire, has cerebral palsy following a brain injury at birth but that has not…
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Attendance Allowance online application
Morning guys, yesterday I helped my mum apply for attendance allowance using the online form. I helped my late father apply about 5 years ago, however it was the paper based form back then. I am shocked at the lack of detail in the online form and how there wasn't any option to provide any real commentary regarding how…
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CP Network and Epilepsy Action Collaboration-Interview with Jan Paterson Epilepsy Action
As part of Cerebral Palsy Awareness month, we are discussing CP and co-existing conditions. Janet Paterson from Epilepsy Action Cymru is hosting an insightful presentation on March 12 2025, "Epilepsy-It's not one type of seizure." Please register at to attend this event. I recently interviewed Jan where we discussed her…
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Cerebral Palsy Awareness Month-Archie's Story
BBC-Same But Different. Archie's Story In this short film for primary schools we meet Archie, a ten year old boy who has cerebral palsy. Archie tells us how he views himself and how he would like others to view him. Archie plays wheelchair basketball, where he loves to socialise and be part of a team. Archie sees his coach…
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Cerebral Palsy Awareness Month. BBC-Same But Different
BBC-Same But Different. Archie's Story In this short film for primary schools we meet Archie, a ten year old boy who has cerebral palsy. Archie tells us how he views himself and how he would like others to view him. Archie plays wheelchair basketball, where he loves to socialise and be part of a team. Archie sees his coach…
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Social services the relationship has totally broken down.
Owing to historic issues that started when I was a child Social services got it badly wrong, I had one amazing social worker sadly she burned herself out and had to quit, things got worse in the end one social worker actually screamed at my mother who was getting over breast cancer to "get the hell out of the room", My…
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Uc claimant with 17yr old N.E.E.T on claim
hi all Recently my child s college stated they could no longer support them and therefore they had to leave. They were aware they’d been referred for neurodivergent assessment but without funding they can’t support. When I advised uc they’d had to leave college due to their health they immediately stopped my child element…
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Hi, my name is Bertie1960!
If Benefits are there to stop people being left out or suffering hardship. Is it ok to feel Content with my Lott in life? Is it Ok to be happy and have a laugh and not feel as if I shouldn't be here or be free to do anything. Is it ok to buy things nice or "spoil myself" Ever again ?
