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It's Purple Day-26 April 2026
Today is Purple Day! A worldwide day to acknowledge and celebrate those living with Epilepsy. It was founded in 2008 by a young Canadian Cassidy Megan, it encourages people to wear purple and host events to raise funds and awareness. Lavender is the international flower of epilepsy, symbolizing isolation often experienced…
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Help for my family
hi hope someone can help me and my family. i am nearly 19 with cp learning difficulties my mum is 47 also ill she has ccopd arthrtis through her body diabbities and mental health then there is my dad he is 44 and the family carer. also i have aq 16 year old brother who has problems but we dont know what they are we just…
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Unaffordable public transport
It used to cost me £10 per week to put fuel into my car to visit my Daughter and Grandchildren in the next village (rough terrain and poor mobility means walking isn't an option sadly). Now it takes over an hour to get there and £7 per visit on public transport which has made seeing my family more than once a month…
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Mind
Mental health issues
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Educational adjustments for daughter
Hi everyone, My daughter passed college due to no exams only coursework, however to attend university she had to pass English which she took for 5 years and failed, she had diagnosed dyslexia and dyscalculia and a recent referral for autism. She passed her English only due to Covid and the way the college tested, on…
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Social Services - advice wanted
I would like to ask for advice on behalf of a friend. My friend is a vulnerable woman with learning difficulties, but is able to live independently. She has been divorced from her abusive ex husband for many years. She has 2 adult daughters, also with learning difficulties, who were being cared for by her ex husband. Until…
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Welsh CP Network Meeting 17 February 2026.
Join Scope's Welsh CP Network on Tuesday, 17 February at 6 pm. It's our second online meeting! It was great see so many people from across Wales at our first meeting in January 2026. We want to grow our Welsh community, so please spread the word about these new meetings for Wales. You can sign up for February's meeting by…
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Getting married but living apart on UC
Hello, Could I ask advise please. My partner and I want to get married to make that ultimate commitment to eachother but we don’t want to live together. We both in our mid 50s and settled in separate home lives and want this to continue. My partner lives alone 20 miles away and I live with my adult daughter who helps me…
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I AM NOT OKAY - Spotlight - on BBC2 at 9pm tonight
I Am Not Okay - SpotlightSpotlight Mothers reveal to Tara Mills their struggles to cope with sons whose complex needs can lead to distress and aggressive outbursts, often leaving themselves and other family members injured. They tell Tara they feel judged and blamed by the system that is meant to protect them, and feel…
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Reaching out
Hi, I was diagnosed with COVID October 2020 and within weeks of the effects staying with me, got the dreaded Long COVID diagnosis. Here I am 5 1/2 years later, still struggling daily and feeling like I'm getting worse, not better. No taste. No smell. Chronic aches and pains. SOB. Now being treated for COPD. Struggling with…
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Uc and non dependant earnings
Hi, my uc claim includes my 24 year old and a deduction is made. She also pays me 350 for bills food and travel. Is this allowed or is it classes as earnings for me
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Advice on dating or making friends as a disabled person in the UK?
Hi everyone, I'm new here and based in London. I have [your disability if you want to share, e.g., cerebral palsy / mobility issues / etc.], and I've found it really hard to meet people for friendship or dating. Mainstream apps feel tricky because of judgments or accessibility stuff. Has anyone had success with online…
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Feeling guilty as a carer when you’re exhausted – how do you reset?
I care for my parents alongside a full-time job and, most days, I just about manage. But every now and then I hit a wall and feel completely worn out. On those days I’m not as patient as I’d like to be with my dad, and afterwards I feel really guilty. I know I’m not the only one juggling work, caring and trying to have…
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RIghts & CHoices to maternity care for women with cerebral palsy video
This video was made by Dr Sonali Shah with the support of Scope, CPAAUK and ScienceExplained. It is part of a NIHR funded project to explore access and utilization to maternity care for women with CP. It is informed by interviews with women with CP talking about barriers and facilitators experienced during pregnancy,…
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Hello 👋🏽
Just joined this group I am looking for ways to support my stepdaughter who is 35 and has mild cerebral palsy, so I have a better understanding of how to assist her
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People refusing to let me be more independent with my Cerebral Palsy
Hi I wanted to start this discussion because I have been thinking about my own independence. I would love to learn to drive but problem is I have people telling me that I can't do it because I have a weakness in my right side and it annoys me when people like my family say you can't do this you can't do that. I have…
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Just wanted to say hello
I wanted to say a big hello from the southwest of England. I’m happy to be part of your community. I’m also looking for a new role to be part of this project in a lived experience and frontline experience way as I have many years of experience working with vulnerable people seeking who are seeking support and advice. I am…
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Growing up with cerebral palsy. Then, Now and What comes next. Podcast.
I was recently invited to speak on the Brain Injury Group's podcast series. Growing Minds. It was a privilege to be asked and share my lived experience of cerebral palsy and epilepsy. Here is the link to the conversation. Growing Minds Cerebral Palsy Conversation
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When decided
Nose 👃🏽
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I don’t want my mum as my appiontte I want my partner to be
I am moving out and I need my partner to be my appointee as I’m moving in with him and I don’t have the best relationship with my mum I manage my own bank account but can’t manage my own benifits when it comes to pip assessments reviews ect I’m on pip and esa can anyone help I have no idea were to even begin with it all as…
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Sleep deprived
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Accessible Gaming
Hello, We’re a group of disabled and supporters of disabled people who are bringing gaming companies to account for their inequalities towards making their games available to play for all. For example driving games not being controlled by a steering wheel but instead by a controller which those with cerebral palsy has…
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Motability and appointee
I am my daughter's appointee. She has mental health issues and some physical disabilities. She can manage at times but also needs support with dealing with things like benefits. She wants to get a motability car. Am i responsible for the car legally as her appointee? Has anyone else been in a similare situation and how did…
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Disability benefits and my child leaving a-levels
my daughter turned 18 in December and she’s still doing her a-levels she finishes in June this year . I get pip and also UC , child element , child benefit and transitional protection because I moved over from esa . My daughter might go to university in September but she will still be living at home or she might start an…
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Parents, carers & teachers - your thoughts on children's adaptive fashion?
If you are a parent, carer, teacher or work with children (aged 7-16) with a disability I would love to hear your experiences, insights and wants/needs with children's adaptive fashion. I am doing my University dissertation on the need for more adaptive fashion for children on the UK high street. I want to bring attention…
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Blue Badge - Car
Hi all, I was just having a discussion with my mother and can’t find answers online regarding this. So my sister is a blue badge holder and we have acquired a motability car on her behalf. We use it to take her to appointments. I’m estimating she gets driven around once every 2 months. I drive the car for my personal use…
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Advice
I am on benefits disability & pip high rate. Also on universal credit. At the moment it is me and my husband and daughter. She is 16 in college. We have a three bedroom house. Which we all occupy one room each. I have incontinence so that's why separate rooms. The problem is my son is moving in with us and wife and two…
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Single, disabled parent
Well what can I say, being ill sucks. Parenting a child while disabled and ill. Seeing your past partner move on and enjoy his future. I had not always been disabled, we met I was perfectly healthy. He left when the going got tough, I just get to bring up his son. My family really don't get it, they forget I'm not who I…
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Seeking support after an event that affected my sense of safety at home
Hello everyone, I’m reaching out to the Scope community because I’m struggling to process a situation that has had a serious impact on my mental and physical health, and I’m hoping to hear from others with lived experience or knowledge in this area. I live with multiple long-term conditions that significantly affect how I…
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My life now, never thought it would happen
Hi. I'm Steph. When I was a teenager, I absolutely thought that, at best, in the future, I'd be living in a flat with a carer. I believed that that would be my life. Man, was I wrong…. It wasn't because I thought that I couldn't do it, i just didn't even consider it because, unfortunately, society told me that it wouldn't…
